Autism Research Starter Pack

Front cover of the starter pack with cartoon faces.Want to involve autistic people in your research? Well now there is a Starter Pack to help guide you through the participatory process. 

“This Starter Pack is for participatory autism research and is for anyone involved in autism research – in any discipline, in any capacity and in any stage of their lives. It describes how you can begin to genuinely involve autistic people in your research – in such a way that it promotes trusting relationships, is built on mutual respect, and involves listening to, and learning from, one another – that is, being empathetic researchers.” The starter pack is published with Issuu and is a set of slides with key information.

There is also the Participatory Autism Research Collective that is about promoting autistic involvement in autism research. 

A related open access research paper reports on the outcomes from a seminar series, identifying topics relevant to building a community of practice in participatory research. The title of the article is Making the future together: Shaping autism research through meaningful participation.

Another, more dense publication, On the ontological status of autism: the ‘double empathy problemdiscusses the issues as contested social realities.

And a free online course, Understanding Autism  from Future Learn and the University of Kent