Consulting people with disability

Front cover Consulting with persons with disabilities.
Full guidelines

Consulting people with disability need not be scary or difficult. Not if it is planned well. Yes, of course it takes time, but all consultation takes time. But it is always worth it because it saves time in rectifications later. 

The United Nations Inclusion Strategy has guidelines for consulting persons with disabilities. The main guideline document is very detailed and links with the UN Convention Indicator 5. It covers representative organisations, when to consult, and how to do it. The Easy Read version is very helpful for everyone. 

Front cover of Easy Read Guide Consulting people with disability.
Easy Read version

The Easy Read version encapsulates the key information. It covers the importance of consulting, taking part in decisions, and working with representative organisations. There are links to the 2030 Sustainable Development Goals with the promise of “leave no one behind”. 
One key point in this version is that people with disability should be involved in decisions about everything – not just things to do with disability. 

 

Some days don’t have 24 hours

Lots of clock faces piled on top of each other showing different times. Week has seven days and every day has 24 hours. We all know that. But some people don’t have the same amount of time available within 24 hours as others. And it isn’t a case of poor time management. Time gets stolen. So what does it mean when I say, “some days don’t have 24 hours”?

Sheri Byrne-Haber pinpoints the issues in her article in Medium about the disability time thief. Sometimes it’s a few moments here and there, and sometimes it a regular chunk. The whole day is stolen if you can’t get out of bed. Byrne-Haber calls this the Disability Tax. 

People without disability are unaware of those extra moments it takes to do everyday things such as putting on shoes. Other time stealers are searching for websites your device can read, or waiting for someone to open a heavy door. And that is only if you have a disability. If you are a woman or a person of colour with disability you have extra discriminations to deal with.

The title of Byrne-Haber’s article is We don’t all have the same 24 hours. Anyone who thinks that we do lives in a monster privilege bubble.

This article shows why consulting with people with disability is not a matter of setting a date and time and sending out the invitation. The time of day and the place are really important considerations. 

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