Want to involve autistic people in your research? Well now there is a Starter Pack to help guide you through the participatory process.
“This Starter Pack is for participatory autism research and is for anyone involved in autism research – in any discipline, in any capacity and in any stage of their lives. It describes how you can begin to genuinely involve autistic people in your research – in such a way that it promotes trusting relationships, is built on mutual respect, and involves listening to, and learning from, one another – that is, being empathetic researchers.” The starter pack is published with Issuu and is a set of slides with key information.
There is also the Participatory Autism Research Collective that is about promoting autistic involvement in autism research.
A related open access research paper reports on the outcomes from a seminar series, identifying topics relevant to building a community of practice in participatory research. The title of the article is Making the future together: Shaping autism research through meaningful participation.
Another, more dense publication, On the ontological status of autism: the ‘double empathy problem’ discusses the issues as contested social realities.
And a free online course, Understanding Autism from Future Learn and the University of Kent