Want to involve autistic people in your research? Well now there is an Autism Starter Pack to help guide you through the participatory process. It is about a mindset of belief that all people have something to offer.
“This Starter Pack is for participatory autism research and is for anyone involved in autism research – in any discipline, in any capacity and in any stage of their lives. It describes how you can begin to genuinely involve autistic people in your research. It does it in a way that it promotes trusting relationships, is built on mutual respect, and involves listening to, and learning from, one another. That is, being empathetic researchers.” The starter pack is published with Issuu and is a set of slides with key information.
There is also the Participatory Autism Research Collective that is about promoting autistic involvement in autism research.
A related open access research paper reports on the outcomes from a seminar series, identifying topics relevant to building a community of practice in participatory research. The title of the article is Making the future together: Shaping autism research through meaningful participation.
Another, more dense publication, On the ontological status of autism: the ‘double empathy problem’ discusses the issues as contested social realities.
And a free online course, Understanding Autism from Future Learn and the University of Kent