The problem with economic models is that they count the things you can count and leave out things you can’t. And sometimes that’s what can happen with co-design methods – doing what you know and not what is possible. A group of researchers adapted the Doughnut Economics model to create the Futures Doughnut tool for co-design for complex settings.
Doughnut economics seeks to address inequities, poverty, and standard of living. It’s about meeting the needs of humans and the planet. A group of researchers have adapted this economic thinking in the context of co-design.
Using a participatory design process, 115 stakeholders explored the model to navigate socio-ethical challenges. The process fostered constructive dialogue, and explored values and boundaries. This is a good process for working in complex institutional systems where stakeholders have diverse perspectives and priorities.
The title of the paper is, Baking an Institutional Doughnut: A systemic design journey for diverse stakeholder engagement. While the context of the paper is a university setting, it sets a good example for other situations with the Futures Doughnut Tool.
Limits of co-design activities
Co-design activities are good for advocating for and helping to generate creativity. However, they are insufficient for complex systems design where continuity of consultation goes beyond design ideation.
Co-creation methods are difficult to compare by definition because they are context dependent. An adaptive and staged systemic design process requires significant time and buy-in from stakeholders. Without this commitment there is a risk of misunderstandings and therefore consensus on decisions.
Co-design is good for finding common ground with diverse vocabularies, disciplines and lived experience. However, it also needs the right tools and methods and the Futures Doughnut was developed with this in mind.
From the abstract
Doughnut Economics offers a compass for navigating the complexities of creating a safe and just space where humanity can flourish while respecting ecological boundaries. This pictorial reports on how the Doughnut Economics model can be applied as a tool for facilitating complex stakeholder engagement.
We present a visual framework and facilitation method for systemic and values-led thinking. The context is establishing a new interdisciplinary academic institution.
Using a participatory design process, 115 stakeholders from academic, research, and administrative backgrounds explored this model. The aim was to co-create an institutional compass to navigate the socio-ethical challenges of their professional practices.
The concept of universal design has evolved over the last 50 years, and so it should as we learn more about how to be inclusive. However, many authors continue to base their writings on outdated notions of universal design. So it’s refreshing to find an article on co-creating urban development that advances our thinking about the concept.
Nordic countries embraced a universal design policy for urban development at the turn of the century and continue to learn from their experiences. Universal design thinking has evolved to using co-design and co-creation methods in design processes. This the point at which Emil Erdtman takes up the ideas and develops them further.
Universal design is three things:
an ethical principle for inclusion of diversity
a vision of an inclusive society
a unifying approach to policy and perspectives
In Sweden universal design is a guiding principle for policies, procurement and living environments. While it is applied in local projects, little is known about local practice. Hence Erdtman’s research. His explains the differences between consultation, partnership and co-creation in the graphic below.
Consultation is a one-way facilitation process, partnership is a negotiating process between competing interests, and co-creation is equal contribution for innovation.
Erdtman describes the projects in his study and the methods he used which included conversations about participants’ understanding of universal design. The conversations allowed for critical discussions rather than “battles about words”.
Discussions about terminology are detrimental to the pursuit of inclusive practice so it was good to see the focus stayed on the concept itself. Nevertheless, universal design was only connected to impairment despite the intersectional nature of the concept. A focus on impairment hides a more general user perspective as social beings in urban life.
Co-creation at the local level
Erdtman found that universal design practice shows diversity and inspired new methods. However, changing municipal practice takes time. A concept like universal design does not replace routines of planning, negotiation and rational management.
Co-creative ways of collaborating is about integrating experiences from a diversity of people, not thinking in separate tracks. It’s about equal participation and responsibility. It is not about commenting on ready-made proposals or delivering experiences as information. Limiting accessibility as just for people with disability risks leaving out invisible needs of others.
Universal design must be contextualised
Universal design transcends conventional categories and fosters continuous improvement. It enriches urban development by integrating diverse user experiences. It must be continuously contextualised, and developed differently depending on the locality.
Universal design should inspire innovation beyond group interests, regulations and human categorisation. Otherwise it will be just another rationalistic planning model.
This chapter contributes to knowledge about the understanding, implementation and co-creation of universal design. Interviews and group discussions were conducted and participant observation was made in three urban development projects.
The understanding of universal design was multifaceted. It is an ethical principle for inclusion of diversity, a vision of an inclusive society, and a unifying of policy and perspectives. Participants emphasised flexibility, predictability and personalised support. They linked universal design to accessibility as a separate and target group with a focus on regulatory compliance.
In the local context universal design practice will be expressed in diverse ways. Collaboration between municipalities and local disability organisations is formal and established. Different conditions and expectations created tensions about roles and interpretation of disability experience.
Disability experience is information for facilitating processes and for negotiation outcomes. However, there were conditions for co-creation.
To plan, design and build with diversity in mind is a complex process. While goals such as inclusion, participation and social sustainability may be present in the vision for a future product, service or environment, studies show that the initial vision isn’t always realized in the end result. There are still far too many products, services and environments that are hard to access or use for parts of the population. In this text we focus on comparatively simple, lightweight, tools – “low hanging fruits”.
Such tools are already available, there are personas, context cards, but also checklists and guidelines. Inspired by the existing work, we have developed one deck of cards, intended to serve as thought support by visualizing population diversity. In order to obtain a similar effect in digital environments (egin digital twins and other 3D environments used in planning and development) we have also developed 3D models (vehicles, devices and humans) that can be put in the digital environment, and serve as a reminder to the users of the digital environment of population diversity.
Does the design of medical products impact on the safety of patients and health practitioners? The answer in many cases will be, yes. For patients it affects everyday medical items like respiratory equipment. But the real issues are for health practitioners. That’s why we need design skills in healthcare.Authors of a recent paper discuss some of the issues. They note that when design unwittingly excludes whole groups of users it becomes bad design. Medical products and services designed to best fit a Caucasian male body type means a poor fit for others. The authors provide an excellent example of where a design is potentially dangerous. “In one example, the only green button on a defibrillator switched the device off, whereas the only red button was for shocking. In simulated emergency situations, it was no surprise that some participants pushed the green button and inadvertently switched the device off when intending to shock.” Co-design is considered the appropriate approach in healthcare services, products and building design. It enables stakeholders in healthcare sciences and delivery to provide input at the early stages of design. Although co-design is accepted as a good idea, design skills are yet to be emphasised and captured in co-design processes. The title of the paper is, Design as a quality improvement strategy: The case for design expertise
From the abstract
Bad design in safety-critical environments like healthcare can lead to users being frustrated, excluded or injured. In contrast, good design makes it easier to use a service correctly. Design impacts on both the safety and efficiency of healthcare delivery, as well as the experience of patients and staff. Co-design as an improvement strategy has gained traction in the healthcare quality improvement literature. However, the role of design expertise and professional design is much less explored. Good design does not happen by accident: it takes specific design expertise.We define design, show why poor design can be disastrous and illustrate the benefits of good design. We argue for the recognition of distinctive design expertise and describe some of its characteristics. Finally, we discuss how design could be better promoted in healthcare improvement.
The Commons Social Change Library has a new guide for disability messaging. The guide has tips based on research which shows effective ways of building public support. The document was led by a steering committee of people with disability and messaging experts.
The guide is supported by Disability Action Network Australia (DANA), Centre for Australian Progress and Common Cause Australia. Access via The Commons Social Change Libraryor download in PDF.
Key content
The guide begins with a note about language and why they prefer the term “disabled people”. The introduction covers the messaging principles such as the audience and speaking from the frame of experience. The overarching themes for talking about disability are self-determination and diversity. This is followed by the 7 top tips.
Story structure
Design Frame
Strengths language
Our story, not theirs
Bring NDIS back to values and benefits
Build empathy with human stories
Show change is possible
The guide has good examples to explain concepts and how to change old messages into ones that are more attuned to self determination. One example is to talk about being “led by disabled people” rather than “a seat at the table”. The reasoning is to replace inclusion and tokenism with self determination.
Another example is making passive sentences active. Rather than talk about how disabled people experience discrimination, say who is discriminating. And people like to be presented with solutions rather than problems so focus on these.
People with disability are often left out at the beginning of the research process when organisations want research done quickly. This reduces the level of power they have as members of the research team. To be effective, people with disability must be in decision-making positions before research proposals are developed.
People with disability are expected to be involved as researchers and decision-makers in research projects. But co-design methods require respect for the process from the outset.
Researchers have to navigate tensions inherent within research institutions when involving people with disability from the beginning of the process. Improving the quality of the research is one of the aims of co-designing with people with disability. It also gives an opportunity to employ people who might not otherwise find a job.
A research team led by Flinders University use a case study to show how to engage with prospective co-designers. They looked at the different factors or conditions that enable or constrain co-design work, and how they relate to each other. The funding of commissioned work has an effect on the internal dynamics and relations within the team. They also found that authority and power can shift and change depending on how these components interact.
Clearly there is more to simply gathering a group of people with disability within a research team and thinking co-design will just happen. Factors such as institutional requirements, and authoritarian hierarchies can have a significant impact on co-design processes.
People with and without disability need to work together to overcome resistance when co-design work is not treated with respect by people or systems.
From the abstract
This paper explores tensions navigated by researchers and project leaders when involving people with disability as experts in co-design and in the core team.
Structural conditions of funding and institutional support were foundational to the co-design. These included accessible practices, core roles for people with disability and resolving ableist conditions.
Power shifts were easily undermined by institutionalised norms that disrespected the co-design contributions. The value of co-designing research was centre to articulating key issues, methodology and analysis.
Building capacity for engaged research
Talking about co-design and stakeholder engagement is one thing. Knowing how to do it is another. While organisations and universities like to make engagement central to their work, institutional practices are not keeping pace. Institutional policies, publishing pressures, and additional time needed stand in the way. Building capacity for engaged research is more than knowing how to run a focus group.
Engaged research embeds stakeholder views throughout the life of the research project. It encourages creation, and active collaboration with policy makers, practitioners and communities.
A workshop was held mid 2024 to bring together research leaders with hands-on experiences. These are people who are keen to see their research improve things for society and individuals. They see this as a timely opportunity for key people to coordinate their efforts. The result is a large volume published by the National Academies Presscontaining the workshop discussions and ideas.
Partnering with communities, policy makers and others is challenging. Measuring the impact of such research requires a suitable evaluation system.
The book of proceedings has 8 chapters:
Introduction
Importance of engaged researach
Challenges and solutions: synthesising two landscape reviews
Promising approaches for addressing key tensions in community engaged research
Aligning mission and incentives: valuing and prioritizing engaged research
The complex challenges facing society today call for new ways of doing research that bring researchers, policy makers, community leaders and members, industry stakeholders, and others together. The aim is to identify evidence needs, contribute different kinds of knowledge and expertise, and use evidence to accomplish shared goals.
Although momentum is building toward a research enterprise that more routinely enables and rewards this type of collaboration, the development of institutional capacities to support diverse forms of engaged research have not kept pace with the need for them.
Co-research with Experts with Disability
The following abstract is from a paper that requires institutional access for a free read.
Existing co-research methods often limit participation and perpetuate exclusion of highly diverse populations. This chapter introduces an approach to co-design research that is inclusive and supports full participation of individuals with unique or diverse needs.
Co-research has moved from the “design for” perspective to the “design with” perspective, and more recently to the “design by” perspective. Design by means the population most impacted by the design is supported in creating the design.
Inclusive co-design is a mindset that is applied in three ways: appreciating, scaffolding, and keeping (the ASK approach). Appreciating involves recognition of co-researchers as experts in their lived experience.
Keeping gives ownership and builds capacity within the co-researchers and their communities in the research process and outcomes. We build on our own experience from over one hundred inclusive co-design research activities, to provide guidance and approaches to other researchers who want to engage in inclusive co-design research.
Co-designing social housing policy is a relatively new concept in Australia, so it’s good to see tenants involved in policy development. New AHURI research tackles the issues amid the need for urgent reform of the housing sector. Tenant participation leads to benefits for all involved.
‘For policy co-design methods to work well, there must be respect and recognition of the expertise of all participants involved in the policy making process…’
AHURI’s summary paper of the research acknowledges the role of champions within organisations who must lead the development of the design processes. Otherwise, they are not successful or sustainable. However, they require resources and support for these processes to succeed.
Attracting ‘representative’ tenants is difficult because those with the most complex challenges often cannot spare the time because they are in crisis. If participation programs are online or use written forms, only those who can read will be included.
What’s needed for successful co-design
Other important findings from the research include:
A toolbox of participatory methods is needed for engagement across the diverse population who have varied needs for housing assistance.
2. Recognition of expertise of frontline staff is an important but untapped source of potential policy expertise.
3. An ongoing commitment is necessary to resourcing, investing in, and training workforces, and building participant capability and supports for policy co-design. And an evaluation program to confirm what works well, under what conditions and for whom.
Public transport infrastructure in Queensland is undergoing significant design changes using co-design methods. The new Cross River Rail project embraced the concept of co-design to ensure new and upgraded infrastructure is fully accessible. The result is a transport infrastructure co-design toolkit as well as accessible trains and stations.
Co-design of large-scale public transport infrastructure spans several stages in the design process. Consequently, embedding a culture of co-design across the organisation is essential in the planning, development and implementation stages.
Image from the Toolkit
The authority responsible for the project collaborated with the disability community and established strategic priorities to support ongoing infrastructure design.
Accessibility agenda
First there needs to be an accessibility agenda – finding out the diversity of accessibility challenges. That means establishing ways of working with the disability sector to drive decision making. However, there is a risk that some of these priorities disappear in pre-project activities such as feasibility studies and technical requirements. Some decisions made at these stages cannot be changed as they lock in key aspects of the design.
A culture of accessibility
An organisation-wide culture of accessibility is essential for the success of projects. Without this culture change the potential for “gaps” in the travel chain will arise for travellers. Sharing information across the different transport organisations and contractors and consultants is a must. By consolidating the knowledge base across the sector, it eventually gets easier to create inclusive public transport projects.
The title of the Toolkit is, Embedding Accessibility Co-design into the Delivery of Public Transport Infrastructure. The document is the result of research collaboration between the Hopkins Centre and the Cross River Rail Delivery Authority. The outcome has established a clear set of priorities for continued support of changes including those already underway. They key element is co-design with the disability community.
Toolkit contents
There are three parts to the document: Context and background, Outline of the co-design process, and Facilitating the co-design process. The appendices have extra detail and additional resources.
The Appendix on co-design mindsets appears to follow the theory of the once popular Myers-Briggs Type Indicator. Nevertheless it does indicate that different people think differently – a concept aligned with Universal Design for Learning. It means people should be given the opportunity to express their thoughts in different ways.
The video below gives an overview and showcases some of the innovations in design. For more about accessibility, visit the Cross River Rail website where there are more videos with transcripts.
Colour is used in may ways to communicate information. This is where a colour checker for images comes in handy. Maps and bar charts are everyday examples of using colour to differentiate one feature from another. Advertisements, and web pages use colour to attract the eye and convey messages. But what if some people can’t distinguish colour in the same way as the chart or web designer?
Colour vision deficiency (CVD), commonly called colour blindness, occurs in approximately 8% of the population.
Colour checkers and contrast checkers are not new with various apps available, mostly for websites. From the University of Glasgow comes Colour Quest designed for conveying statistical information in various chart forms. It’s a free application that tests histograms, bar charts, line charts, scatter charts, and box plots. However, it will test any jpg or png image.
Colour Quest shows how a chart or image looks for people with either one of two types of CVD: red-green vision deficiency (Protanomaly), and blue-yellow deficiency (Deuteranomaly). It’s rare to have both where colour becomes various shades of grey.
Screenshot of the heatmap mode of the colour checker.
The Colour Quest applicationis easy to use and to explore the best colours to use from the standard palette. You can try any png or jpg image and experiment with colours chosen from the left hand bar to see how it works.
The significance of color palette selection goes beyond aesthetics and scientific communication, encompassing accessibility for all, especially individuals with color vision deficiencies.
To address this challenge, we introduce “Color Quest,” an intuitive Shiny app that empowers users to explore color palettes for data visualization while considering inclusivity. The app allows users to visualize palettes across various types of plots and maps to see how they appear to individuals with color blindness.
Colour Quest enables users to visualize palettes on their own custom-uploaded images. It was developed using open-source standards. Color Quest aligns with accessibility discussions, and is a practical tool and platform for raising awareness about inclusive design.
Being open-source fosters transparency, community collaboration, and long-term sustainability. Color Quest’s practicality renders it indispensable for scientific domains, simplifying palette selection and promoting accessibility. Its impact extends beyond academia to diverse communication settings, harmonizing information dissemination, aesthetics and accessibility for more impactful scientific communication.
Statistics capture many important measurements which are reported as facts, but who chooses what to measure and how it is measured and counted? If the lives of some people are left out of the research questions their facts become invisible. So researchers in the Netherlands took up the issue of inclusive data collection. The project was about mapping the inclusive city by engaging people with disability as co-researchers.
Improving the relevance and quality of research beyond statistical approaches, requires the involvement of community members with ‘the problem’. Image from Heeron Loo’s website.
The research team, including people with disability, explored issues of accessibility in urban spaces. The digital map-based tools worked well and provided insights into accessible locations. However, it is not known if these locations are welcoming and inclusive. The notion of inclusion within places mapped needs a new design thinking cycle for all researchers.
Mapping accessibility is a different endeavour to mapping inclusion, and this research team has opened up the potential to find ways to map inclusion. Accessibility is an essential first step. Getting around is one thing, feeling welcoming with a sense of belonging is another. Urban design features and the attitudes of fellow citizens have an important role to play.
Traditional social research methods are discouraging of involving people with (intellectual) disabilities. This is largely because of governance issues relating to ethics committees. However, participatory research methods with people with disability are more acceptable. The article outlines the participatory research method emphasising the equal participation of all parties involved in the process.
From the abstract
Given the lack of collaboration with people with disabilities in (spatial) decision-making processes, our aim was to develop and test a method that allowed for the involvement of people with disabilities in community development, and in particular in mapping accessibility and inclusivity in various places and spaces in the city of Groningen (the Netherlands).
In this project, we collaborated with an organization that provides housing and care for clients with acquired brain injury, deafness with complex problems and chronic neurological disorders. We describe our approach and experiences in participatory research, focusing on the opportunities and challenges in developing and implementing a data collection method that enabled us to involve people with a disability as co-researchers.
Accessibility at bus stops
A research paper from Chile takes a similar approach. Instead of conducting a physical access audit, the researchers asked people about their bus stop experiences. It is another way of finding out how well access standards promote inclusive environments. Getting to and from the bus stop and boarding and alighting the bus all have to work together.
The researchers conclude that legislation and standards are insufficient to overcome gaps in this part of the travel chain. Consequently, people with disability are not afforded equal conditions.
This research is part of an interdisciplinary work that seeks to study universal accessibility for people with mobility impairments from different perspectives. From Engineering, it is important to highlight the relation to the dimensions of the space used, while in Occupational Therapy, it is relevant to include the perceptions when participating in the occupation.
The results contribute to the lived experiences of people with disability. They reveal the barriers, challenges, and opportunities that influence successful participation in mobility in the community. In conclusion, there is a lack of regulations regarding the characteristics of spaces. The perceptions of people with mobility impairments must be brought into the design to guarantee the right to move in equal conditions.
What if you could turn your slide notes into automatic subtitles during your presentation? That would be good for everyone. The advantage is that you can write out the presentation and then deliver it perfectly without having to use lots of text on your slides. As you give your talk you click through the subtitles (captions) in the same way as you click through your slides. Best part, this subtitles for slide shows tool is free from the Cambridge Inclusive Design Team.
The audience gets a better experience with the actual words, because there’s no reliance on speech recognition and no time delays.
Presenting from pre-made subtitles is great for presenters who are prone to lots of ‘ums’ and ‘ers’. It’s also good for speakers who:
Have to give a presentation in a language other than their native language
Have a quiet voice, or substantial accent
Need to customise the length of a presentation to an exact time slot
Want to make a video of their presentation
Have to deliver a presentation that was written by someone else
How do the subtitles work?
The Cambridge Subtitles for PowerPoint tool splits the text in your slide notes into short subtitles and adds these to the slide as animated text boxes. The tool adds a new toolbar to your ribbon which adds subtitles to your slides from the slide notes. The tool is offered free until the end of 2024 and available separately for Windows and Mac. You can download from the links on their webpage.