Co-design in research: shifting the power

People with disability are often left out at the beginning of the research process when organisations want research done quickly. This reduces the level of power they have as members of the research team. For co-design in research to be effective, people with disability must be in decision-making positions before research proposals are developed.

People with disability are expected to be involved as researchers and decision-makers in research projects. But co-design methods require respect for the process from the outset.

A man in a blue check shirt is sitting in front of a laptop on a desk and is writing with his left hand in a notebook.

Researchers have to navigate tensions inherent within research institutions when involving people with disability from the beginning of the process. Improving the quality of the research is one of the aims of co-designing with people with disability. It also gives an opportunity to employ people who might not otherwise find a job.

A research team led by Flinders University use a case study to show how to engage with prospective co-designers. They looked at the different factors or conditions that enable or constrain co-design work, and how they relate to each other. The funding of commissioned work has an effect on the internal dynamics and relations within the team. They also found that authority and power can shift and change depending on how these components interact.

Clearly there is more to simply gathering a group of people with disability within a research team and thinking co-design will just happen. Factors such as institutional requirements, and authoritarian hierarchies can have a significant impact on co-design processes.

The title of the article is, Shifting power to people with disability in co-designed research.

People with and without disability need to work together to resist when co-design work is not treated with respect by people or systems.

Two pairs of women sit at a table with paper and pens. One of the pair looks to be explaining something to the other.

From the abstract

This paper explores tensions navigated by researchers and project leaders when involving people with disability as experts in co-design and in the core team. Part of an evaluation aiming to improve paid employment of people with intellectual disability is used to consider this work.

Structural conditions of funding and institutional support were foundational to the co-design. These included accessible practices, core roles for people with disability and resolving ableist conditions.

Power shifts were easily undermined by institutionalised norms that disrespected the co-design contributions. The value of co-designing research was centre to articulating key issues, methodology and analysis.

Driveways are part of the footpath

Is the driveway to the shopping centre carpark part of the road or is it part of the footpath? Most people – motorists and pedestrians – don’t realise that driveways are part of the footpath. And what about crossing side streets adjoining main roads? Who should give way to whom?

Sometimes it’s difficult to tell because the visual cues are confusing. If the footpath section has a steep camber towards the roadway it looks like the road. And sometimes there are hazard warning tactile markers where the driveway goes over the footpath. So it looks like the road. Also, the colour of the driveway is often different to the adjoining footpath.

Augustus Brown discusses the issues in his article about continuous footpaths at driveways and side streets. Drivers crossing the footpath to or from a driveway must give way to people walking. Drivers must also give way to people crossing the road when turning at intersections.

To highlight the priority for people walking, footpaths should be designed to give a clear visual cue that drivers need to slow and give way.

Image from the article

A wide driveway uses the same colour concrete as the footpath. It is level and not cambered towards the road. Vehicles must slow to negotiate the short kerb ramp.

Design principles of continuous footpaths

  • Footpaths should be visually uninterrupted at the crossing point
  • Footpath pavement material should be consistent
  • Footpath pavement should remain level at the crossing
  • Narrow kerb ramps should lift crossing vehicles to the height of the footpath

Images from the article

A side street roadway is painted to indicate that pedestrians are on a footway, not a roadway.

Clearly marked continuous footpaths and cycle lanes give priority to both cyclists and pedestrians.

A footpath and cycle lane are side by side and receive the same continuous treatment across a side street.

Brown’s article has several examples of well designed treatments of footpaths across driveways and side streets and some drawings with more information. The title of the article is, Continuous Footpaths at Driveways & Side Streets.

Queensland has a technical guideline for path users and driveways.


Co-designing social housing policy

Co-designing social housing policy is a relatively new concept in Australia, so it’s good to see tenants involved in policy development. New AHURI research tackles the issues amid the need for urgent reform of the housing sector. Tenant participation leads to benefits for all involved.

‘For policy co-design methods
to work well, there must be
respect and recognition of the
expertise of all participants
involved in the policy making
process…’

A new three storey housing development still has the chain link fencing around it. Social housing policy.

AHURI’s summary paper of the research acknowledges the role of champions within organisations who must lead the development of the design processes. Otherwise, they are not successful or sustainable. However, they require resources and support for these processes to succeed.

Attracting ‘representative’ tenants is difficult because those with the most complex challenges often cannot spare the time because they are in crisis. If participation programs are online or use written forms, only those who can read will be included.

What’s needed for successful co-design

Other important findings from the research include:

  1. A toolbox of participatory methods is needed for engagement across the diverse population who have varied needs for housing assistance.
An old wooden box with mental handles and clasp.

2. Recognition of expertise of frontline staff is an important but untapped source of potential policy expertise.

3. An ongoing commitment is necessary to resourcing, investing in, and training workforces, and building participant capability and supports for policy co-design. And an evaluation program to confirm what works well, under what conditions and for whom.

The title of the policy summary is, Including social housing tenant voice in policy leads to better outcomes.

The report’s executive summary, Social housing pathways by policy co-design: opportunities for tenant participation in system innovation in Australia has more. Or you can read the full report as well.

Gendered spaces in urban design

Gender refers to the social, cultural and economic attributes and roles associated with being male, female or non-binary. These attributes can significantly influence how individuals experience and navigate spaces. This is how we end up with “gendered spaces”. Understanding these nuances is essential for creating inclusive and equitable environments.

The traditional division of labour can influence spatial patterns. For example women bear the primary household tasks which can affect their travel patterns.

A woman in a bright yellow coat and black hat is walking away from the camera down a street.

A short article by Kavita Dehalwar highlights three aspects that require consideration in spatial planning. Safety and security, universal design and accessibility, and participation and decision-making.

Safety and security

Women and transgender individuals may experience harassment which reduces their perceptions of safety. When this occurs it restricts freedom of movement and limits social and economic activity. Lighting, surveillance mechanisms can mitigate safety risks and engender a better sense of safety.

Universal design and accessibility

Gender-sensitive design considers how spaces are used by men, women and non-binary individuals. Gender-neutral facilities accommodating diverse identities and preferences reduces stigma and discrimination. Taking a universal design approach includes accessibility and convenience for everyone.

Participation and decision-making

Gender dynamics also influence participation in decision-making processes. Marginalised groups are often underrepresented in planning processes. This results in policies and intervention that inadvertently fail to address their needs. Co-designing with marginalised groups is one way forward.

The title of the short article is, Gender and Its Implications for Spatial Planning: Understanding the Impact.

Gender Equity in Design: A guide

Front cover of the Gender Equity in Design Guidelines.

Design impacts on the way we can navigate the world and participate. Gender equity in design is yet another element of designing inclusively. 

Rights, responsibilities and opportunities should not depend on gender. Treatment of women, men, trans and gender diverse individuals are often subject to stereotyping or generalisations about roles. But for many designers and policy makers gender equity is a new concept. So the Gender Equity in Design Guidelines are a great help. 

The City of Whittlesea in Victoria produced the Guide. As a local government authority the guide focuses on community facilities. It introduces the case for gender equity and has a focus on issues for women. While there is an emphasis on safety and easy access for women with children, gender diverse groups are included.  

What the guidelines cover

Many of the features capture the essence of universal design. The twenty page document covers site planning, concept design and documentation for:

  • Community centres
  • Maternal and child health
  • Youth facilities
  • Community pavilions
  • Aquatic and major leisure facilities
A young woman attends to a small child in a child seat on the back of the bicycle. The bike has a shopping basket.

The Guidelines acknowledge that any building project goes through several stages and has different stakeholders. Consequently, it only covers planning, concept design and detailed design and documentation. The construction phase is dependent upon the follow-through from planning and design.

The aim of the Guidelines look through a gender lens and is therefor not prescriptive. Consequently, regulatory standards and building code compliance and accessibility are outside the scope of the document. 

Gender Inclusive Urban Planning

Front cover of the Handbook. Blue background and white text.

A city that works well for women, girls, and gender non-conforming people of all ages and differing levels of capability supports economic and social inclusion. The World Bank ender inclusive planning and design is:

  • Participatory: actively including the voices of women, girls, and sexual and gender non-conforming people
  • Integrated: adopting a holistic, cross-cutting approach that centres gender throughout and promotes citizen-city relationship building
  • Universal: meeting the needs of women, girls, and gender non-conforming people of all ages and abilities
  • Knowledge-building: seeking out and sharing robust, meaningful new data on gender equity
  • Power-building: growing the capacity and influence of under-represented groups in key decisions
  • Invested-in: committing the necessary finances and expertise to follow through on intentional gender equity goals

Chapters cover the rationale for gender inclusion, foundations of planning and design, processes and project guidelines, case studies and further resources.

Urban planning and design shape the environment around us — and that shapes how we live, work, play, move, and rest. This handbook highlights the relationships between gender inequality, the built environment, and urban planning and design.

The 18MB file is downloadable directly or from The World Bank. An article in the Latin American Post summarises some of the content. 

A short video from The World Bank briefly explains some of the issues and what should be done. 

Smart cities: the road to inclusion?

The term “Smart Cities” conjures up ideas of good urban planning linking with Internet and communications technology. But how can it be smart if it is not also accessible and inclusive for everyone?

The smart city is about connecting technology with urban planning. But will it solve all the accessibility and inclusion problems?

A city skyline at night against a backdrop of a computer circuitry board.

Women, children and people with disability face difficulties accessing public space. This is because of safety concerns and physical barriers in the built environment. But public space must be welcoming and meaningful for all citizens. This is where community-led activities in designing public space becomes important.

Two researchers looked at digital technologies to see how they could help reframe public space design to be more inclusive. Technology should go beyond data collection to playing a central role in promoting social responsibility. Their research established a framework for creating inclusive public spaces based on site visits and users’ opinions.

The research study emphasises the importance of involving citizens in the governance of public spaces. They provide valuable data and insights about the quality and use of these spaces.

The title of the article is, The Use of the Smart Technology for Creating an Inclusive Urban Public Space.

From the abstract

Urban public spaces should be about community building, physical and mental well-being, social interaction, civic engagement, citizen participation, and economic vitality. However, low-income individuals, women, children, and people with disabilities often miss out. The paper discusses:

A framework of eight indicators: spatial distribution, typology, facilities and services, green and humid areas, governance and management, safety, user categories, and user satisfaction.

Involving citizens in leveraging smart technology for monitoring, providing real-time information and services improves facility efficiency, and creates an eco-friendly environment.

This paper promotes the development of an urban public space that caters to the diverse needs of the community, fostering a sense of belonging and well-being for all.

London’s Smart City Strategy

The aim of a smart city strategy is to improve the wellbeing of residents, social life and economic welfare through technology based interventions. Although technology offers several benefits for more inclusive and liveable environments, there are also drawbacks.   

Inclusiveness is embedded in the London Smart City Strategy, but there is still room for improvement.

A wet wintery street scene in London showing a line of mid-rise buildings and shops. London's smart city strategy.

A study of the strategy indicates that spatial inclusion is the major focus of the London smart city policy. A variety of assistive technologies promote inclusive housing, transport and health management systems. 

Improving citizen engagement through collaborations, increased transparency, and measures for preventing data misuse and misinterpretation will boost inclusiveness.

The London case study highlights the potential barriers in implementing inclusive strategies for smart cities in practice. The valuable lessons may provide good information for other cities. 

The title of the article is Inclusive Smart Cities: An Exploratory Study on the London Smart City Strategy.

Smart cities: a revolution?

City-wide technology offers hope for people with disability, but only if there is a shift towards universal design and inclusive solutions.

An article by Marcin Frackiewicz discusses the possibilities for smart and inclusive cities from a optimistic perspective of technology.

A smart phone and wifi icons sit over a background picture of a cityscape.

Street cameras to help keep people safe and automatic doors are commonplace technology. And newer ideas such as ridesharing are possible because of technology. Apps for real-time updates for public transport to minimise unpleasant surprises. So what else can we look forward to?

Frackiewicz claims that the use of data for fine-tune urban services enables a place for “undervalued voices”. He optimistically says smart city technology is equalising, by making sure that everyone thrives.

The title of the magazine article is, Breaking Barriers: The Smart City Revolution’s Quest for Universal Accessibility. It’s a flowery writing style with lots of poetic turns of phrase.

Information in an emergency

Getting information in an emergency can mean the different between life and death. Or at least the difference between feeling helpless and knowing what to do. But communication is a complex process and not everyone responds to the same methods. So what is accessible information? It’s information provided in different formats.

Easy Read and Easy English use pictures as well as words. These are good for the 44% of the population with a low level of literacy. Even for the 15% of people with a high level of literacy, plain language works well.

A blackboard with words: learn, language, adjectives, nouns, verbs, adverbs written in chalk

Other formats are braille and Auslan, and captioning for videos. The Disability Discrimination Act lists places and services that must not discriminate, but there is nothing specific about information methods. This is something that needs to be made clearer in the legislation. However, the Commonwealth and state governments have policies to cover the provision of information.

Accessible emergency and crisis information

Researchers found four things to improve crisis information.

  1. Accessible information providers, such as Easy Read professionals, are not experts in the subject at hand. They need support from experts such as doctors or police.
Black and white logo for easy read, has a tick and a open book

2. Accessible information providers need to stay up to date with changing details. Having one direct source is the best way to manage this.

3. Making high quality accessible information takes time and skill. It’s essential to have the capacity and capability ready to act – don’t wait for the crisis to happen.

4. Agencies need to be upskilled. Sometimes crisis information needs to be available immediately such as an evacuation order. Emergency services need more baseline skills to make this information themselves.

The title of the article from The Conversation is, Crisis communication saves lives – but people with disability often aren’t given the message. The call for action is to have accessible crisis information included in a new Disability Rights Act.

Four men with orange lifejackets are standing in a yellow State Emergency Service boat on a swollen river.

Media organisations, businesses and services need to get on board too. The more people who produce accessible information, the better.

Defensive architecture, hostile design

Bleacher seating along the river front is covered with different coloured bean bags.Design can have a dark side, often as a result of unintended consequences. This can happen when designers have just one group of people in mind – usually people like them. Or when good design ideas are changed at the last moment. The Fifth Estate article about the Howard Smith Wharves in Brisbane illustrates how good design can morph into bad design.

The wharf development was supposed to be a vibrant playground for ‘lovers of the good life’. The development included restaurants and an active transport corridor along the river. The path required separation with line markings, but all this changed just before opening.

A gravel path was installed with the idea that this would be a “go slow” zone. Of course the community objected. A key city thoroughfare was disrupted and the gravel reduced accessibility. And new safety hazards arose because of no line markings. Who then were the ‘lovers of the good life’? Image above from Facebook. 

The title of the article is, Urban design has a dark side to it’s creativity – two projects in Brisbane show how. Somehow, the Planning Institute of Australia thought this was worthy of an urban design award. 

Defensive architecture – hostile design

A concrete bench with spike barriers to prevent people from sleeping and even sitting.Design is powerful. It can include or exclude. While many designers are doing their best to be inclusive, others are deliberately creating hostile designs. Why do this? It’s under the heading of “defensive architecture” – ways to prevent crime. But should this be solved with design – it’s the opposite of universal design.

An article from UNSW begins, “Spike, bars and barricades are not typically things you would associate with a park. But it turns out they are part of a growing suite of hostile design interventions in public spaces.”

Creating urban discomfort

Spikes are embedded in flat surfaces underneath bridges to deter rough sleepers. Seats and flat surfaces made too uncomfortable to sit on for any length of time. Flat surfaces act as seating for those tired legs. Meanwhile, it goes against all the principles of universal design and encouraging people to get out and about.

The article is titled, Defensive architecture: design at its most hostile. It has examples and pictures and discusses the issues of designing to exclude. 

There is a similar article in The Guardian, Anti-homeless spikes: ‘Sleeping rough opened my eyes to the city’s barbed cruelty

Image courtesy UNSW newsroom.

What good is design if not for everyone?

Johan Carey in jeans and black polo shirt is on the stage at a Ted Talk on what good is design if it's not for everyone.“I believe design functions like the soundtrack that we are not fully aware we are playing. It sends subconscious messages about how to feel and what to expect” says John Carey in his Ted Talk. So what good is design if it’s not for everyone?

John Carey calls fellow architects to create places and spaces for people other than themselves – who, for the most part are white males. “Dignity is to design is what justice is to law and health is to medicine”. “The design reflects back to you your value”. “If good design is only for a privileged few, what good is it?” “Good design shapes our idea of who we are in the world and what we deserve.”

Unlike law and medicine, architecture has failed to attract and sustain women and people of colour. This is a passionate talk that does not mention accessibility specifically, but is a call to consider everyone in designs. Check it out.

 

Older people and product design

Industry’s ideas about the usability of their products doesn’t match those of older people. That’s what the Centre for Modern Ageing found in their survey of 1000 older people and product design. Given Australia’s ageing population, product designers should focus more on making everyday products more user-friendly. That means taking a universal design approach and using co-design methods.

A word cloud created a visual representation of how many times respondents used a word to describe the difficulties they have with product design. And these are everyday products. The image is from the report.

A screenshot from the report showing a word cloud. Words include difficult, small, expensive, complicated, poor instructions, impossible, frustrating and disappointing.

Key findings from the survey

Key findings focused on products older people use in their daily lives.

  • 93% said product usability supports independent living
  • 43% rarely or never seek assistance to operate the product even when dissatisfied with product usability
  • More than 50% believe products are not user-friendly.

The Image is from the report.

A graphic showing the different issues with product design. Opening mechanisms, weight and handling, safety, connectivity and compatibility, inadequate instruction, remotes and interfaces, small print and complicated technology

Grip issues related to slippery handles, tight lids, weight of products, and small text on labels and confusing instructions weren’t helpful either. Product packaging is also a challenge and probably not just for older people.

Electronic devices with menus and different functions as well as issues connecting devices to others and to networks were difficult and challenging.

The title of the report is Empowering Older Australian with Better Product Usability. Go to the Global Centre for Modern Ageing to download the report for more detail.

Help for product designers

The Inclusive Design Toolkit from the University of Cambridge has an Exclusion Calculator to show how many people can’t use a design due to their level of capability. It covers most of the issues discussed in the report. It’s an excellent online resource for product designers.

The Universal Design of Products and Services has more detailed information which includes guidelines on body size.

Note that some designs are potentially covered by the Australian Disability Discrimination Act.

Useability of small kitchen appliances

A busy array of small kitchen appliances and cooking utensils.

Meal preparation is something most of us do every day. It’s not until you can’t do it that you realise how much it impacts on wellbeing, independence and quality of life. 

Researchers from the University of Wisconsin-Milwaukee worked with General Electric to develop an audit tool they can apply to the design of their small appliances. The tool can be used by engineers, retailers and individuals as well.

The title of the tool is Small Kitchen Appliance Accessibility and Universal Design Information Tool (SKA AUDIT). It includes 7 features: doors, lids, dials, on/off water reservoirs, buttons and “ready” indicators. Both physical and cognitive conditions were considered in the development of the tool.

The title of the article is Small Kitchen Appliance Accessibility and Universal Design Information Tool (SKA AUDIT).  

The Pain of Design

A work table is filled with paper and folders and a woman is cutting a piece of paper with scissors. It looks like a group of people are working on a design.

Arthritis is a common condition and is not often referred to as a disability. However, the pain of arthritis is disabling. So how to design out pain? Design Council ran a workshop with people with arthritis. They found that no-one was interested in special products, which are often stigmatising. So the principle of inclusive design became the top issue.

“Inclusive design is crucial. You have to step away from the idea that it’s “older people” having a problem and start looking at a universal problem and therefore a universal solution.”

They found the most important thing is that people want desirable, stylish, mainstream products that anyone would want to own. People don’t want medicalised, stigmatising equipment. Clearly, including the user-voice is the way to design for all rather than the mythical average. 

The article is titled, Ollie Phelan of Versus Arthritis writes about the importance of the end-user being at the heart of design, and can be accessed on the Medium.com website where there is more information.

Ableism in health care

You’d think health care workers would know about disability, but apparently, disabilities are not discussed or taught in a health care context. Questions over quality of life, ability to decide and choose are all issues that affect people with disability when interacting with the health profession.

An article written by two nurses calls out ableism in health care. Ableism occurs when a person with disability experiences discrimination or prejudice from a health care provider.

A man in a turquoise hospital gown, cap and mask is holding a thumbs up sign. He looks like a nurse or a doctor.

They can underestimate the person’s quality of life or competence which affects their level of care. Patients need to feel safe and not to be fearful of being judged or not being heard.

Case study

The article uses a case study of a 60 year old women with Down syndrome to illustrate the issues during the COVID pandemic. This case is not about the care provider being ableist, but being an advocate for the woman. The doctor was pressured by family members to activate the do not resuscitate (DNR) code when the woman entered ICU. The doctor persisted in advocating for the patient and she eventually recovered.

Communication with patients is key. Patients with cognitive disabilities may face attention, memory and comprehension challenges. Nurses must therefore adapt their communication style, learn about the disability and avoid negative language that insults or demeans.

The authors encourage nurses to advocate for people with disability within health care services and in the design of environments.

Entrance to the emergency section of a hospital.. Co-design and ableism in health care.

Ableism isn’t just about patients – it includes family members, and other health care workers. Knowledge can help overcome stereotypes and stigma and improve health and wellbeing for all. Knowledge also helps nurses and other health professionals to feel confident when engaging with people with disability.

This short summary of Ableism in Health Care is open access, and you can access the full paper in the American Journal of Nursing.

Architectural Science and User Experience

A book of long abstracts from the International Conference on Architectural Science and User Experience shows how varied this topic is. From Biophilic design and carbon reduction to environments that stimulate play and primary school design. One paper discusses the difficulties the architectural profession might encounter for new requirements to design inclusively. Time for some social science in architectural degrees?

The proceedings includes: active travel, housing, ageing, dementia, disability, digital technology, education and practice, air quality, landscaping, tourism, and more.

Front cover of the book of proceedings from Architectural Science and User Experience.

These short papers are from the 55th International Conference of the Architectural Science Association, 1-2 December 2022, Perth, Australia. Here is an overview of just one of the papers.

Architecture of inclusion

Architectural knowledge about designing for people with disability was held back by committing people to institutions and group homes. Consequently the teaching and design skills have not kept up with the times. The tendency is to conform to existing regulations, rather than being a driver of innovation.

New references in the National Standard of Competency for Architects around designing for disability require graduates to demonstrate these competencies. Using the experience of the inclusion of Indigenous competencies in the National Standard, this paper explores the difficulties the profession and teaching institutions may encounter around identifying people with lived experience working in architecture, or as design teachers.

The paper discusses the units of competency and relevance to building codes, standards and planning controls including barriers to access for all. In essence, educators and practitioners must draw on building and environmental sciences and social sciences in their preliminary work.

Skills in diversity equity and inclusion are not supported with legislation. The challenges for architecture courses is the lack of disability knowledge and Indigenous knowledge. University systems, structures and teaching competencies are challenged by these new requirements.

Architecture needs to move on from ‘risk’ in administrative processes such as contracts, to progressive themes including care for Country and equitable access.

The title of the conference proceedings is, Architectural Science and User Experience: How can Design Enhance the Quality of Life. It consists of short papers rather than full papers.

Access the whole book via the article, Regenerative Design Performance assessment: a critical review on page 504 on ResearchGate. It will show all the other abstracts. Otherwise you can purchase the book online.

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