Policy and Policy Development Archives

What does inclusion actually mean?

Kat Holmes found the origin of include was to “shut in”. Similarly, the origin of exclude was to “shut out”. Maybe “inclusion” is not the right word for describing the inclusion of everyone in products, places and things. So what does inclusion actually mean?

Holmes explains in the video below, that the topic of diversity is discussed as gender, sexual orientation, religious belief, ethnicity, and race. Disability is usually mentioned last in the list, if at all. “But it is the one category that transcends all other categories”, she says. “Abilities are constantly changing”.

Holmes’ offers an alternative way for designers to consider diversity, and is based on her book, Mismatch: How Inclusion Shapes Design. An engaging talk for all upcoming designers in any field. And not just professional designers either. We all design things every day, so we all have a role to play.

Editor’s Note: I discussed this issue in a 2009 paper. Inclusion requires those who are already included to invite into the group those who are excluded. Semantics are important. What we need is inclusiveness – that’s where inclusion has already happened and there are no exclusions. Inclusion is a futuristic concept – it’s something we are striving for. It it were achieved, no further discussion would be needed.

What drivers can’t see on the road

Here’s a call to traffic planners. A group in the UK is calling for slower speed limits on roads to help reduce pedestrian accidents. They list all the conditions where slower speeds could make a difference and allow people to cross the road safely. Drivers can’t see if someone has anxiety, dementia, post traumatic stress or sleep disorder. Traffic can make them feel vulnerable and fearful. 20 miles per hour equates to 30 km per hour.

People who are deaf or hard of hearing, and people with low vision are also at risk of accidents. Pregnant women, older people, and people with prosthetic legs or chronic illness might not be spotted either. Even if they are, it is unlikely to change driver behaviour or alertness. The 20’s Plenty for Us media release links their call to the disability rights agenda which requires equitable treatment for everyone. Traffic planners should therefore assume everyone is vulnerable.

“At first sight it’s impossible to tell if someone has a mental health problem – anxiety, dementia, post traumatic stress or sleep disorder. Yet sufferers are vulnerable and fearful. Also the partially sighted, hearing impaired, those with a prosthetic leg, cancer, the elderly or pregnant women have protected characteristics not obvious at a distance from a driver’s seat behind a windscreen.”

Language Guide for Journalists and Others

Acceptable language regarding people with disability has changed, and standards continue to adapt as understanding and perceptions evolve. Many terms once widely used are now considered to imply inferiority and serve to marginalise people. The National Center on Disability and Journalism updated their Style Guide in 2021. It provides alternatives to terms still seen too often in the media.

The guide also gives an explanation for why some terms are considered offensive, derogatory, and/or marginalising. Unless the context of the story relates to the disability, it might not be necessary to point to any kind of impairment. And think about illustrations and photos too.

Here are a few common terms to avoid:

Afflicted with: Implies that a person with a disability is suffering or has a reduced quality of life.

Able-bodied: Refers to a person who does not have a disability. The term implies that all people with disabilities lack “able bodies” or the ability to use their bodies well. Use non-disabled. Use person without disability.

Confined to a wheelchair: Describes a person only in relationship to a piece of equipment designed to liberate rather than confine. Use wheelchair user.

Stricken with, suffers from, victim of: These terms carry the assumption that a person with a disability is suffering or has a reduced quality of life. Use living with…

Demented: Refer to someone as having dementia only if the information is relevant to the story and a formal diagnosis has been made. Use “a person with dementia” or “a person living with dementia.” Do not use senile.

Special needs: This can be problematic where there are government funded programs for “special schools”. The term is considered stigmatising – use “functional needs” or describe the specific issue or disability. Everyone has needs.

Inclusive illustrations: What’s in a face?

It’s often someone other than the writer of an article that chooses a picture to go with it. Usually this is a stock photo that might not convey the intended message. Stock photos of older people are often patronising. They show young and old hands, or a young person looking lovingly at an older person. Most illustrations are far from inclusive.

Similarly, stock photos of wheelchair users often use non-disabled models and not real wheelchair users. An article and guideline from an illustrator discusses how to add diversity to your brand whether an organisation, service or a product. The title of the article is, Your Face Here: Creating illustration guidelines for a more inclusive visual identity.

Whether being used to distill complex messages or add a touch of whimsy, illustration is one piece that makes up a company’s visual brand identity.”

Also have a look at these stock photos of older people and see what you think. Note that they are all white and active – no diversity here.

Do’s and Don’ts of disability language

Language etiquette around the topic of disability seems to get some people tongue-tied. Fear of offending often results in just that. But so does using outmoded terms such as “handicapped”. So what are the do’s and don’ts of terminology and language use?

People with Disability Australia (PWDA) have a great guide. It gives a context to the importance of language and how it relates to dignity and respect. It is based on the social model of disability. That is, disability is not an individual medical problem. Disablement is the result of an environment filled with physical and social barriers.

Should you say “People with disability” or “disabled person?” It depends on the individual. However, government policies use the person first version – people with disability. The one to avoid is “the disabled” because it dismisses people and puts this diverse group into one category. The same can be said for “the elderly”.

Adaptations of the word disability, or euphemisms, should not be used either. Terms such as differently-abled, special needs, or handicapable sound clever but are demeaning. Other terms such as “all abilities” suggests the opposite – a special place for people with disability. If it is inclusive it shouldn’t need a “special” title. However, accessible features can be included in any descriptions of the place or service.

The PWDA guide gives an overview of ableist language and its impact, some advice on reporting on disability, and a list of words and recommended alternatives.

Disability is not about inspiration

One other important aspect of reporting on disability is what the late Stella Young described as “inspriation porn” in an entertaining TED talk. The portrayal of a person doing everyday things, or achieving a goal, as being inspiring gets the no-go signal. People with disability are often portrayed in the media as being “sufferers” or “heroes”. Rarely is either the case.

The evolution of universal design and accessibility

Bess Williamson takes a look at two books and reviews them in tandem, which makes for an interesting read in its own right. Both are about the history of disability, accessibility and universal design, but approach the topic from different perspectives. Aimi Hamraie takes a legal and rights view of history, while Elizabeth Guffey tracks the work of individual designers and the development of symbols and images, particularly the access symbol we know today. They show how accessible design was developed in more than one place at the same time, which shows at least two family trees of access and universal design. One from the bottom up (“crip technoscience”) and one from the top down (standards and codes). An excellent and thoughtful review by someone who understands this field of research. The books are:

Aimi Hamraie Building Access: Universal Design and the Politics of Disability (University of Minnesota Press, 2017)

Elizabeth Guffey Designing Disability: Symbols, Space, and Society (Bloomsbury Press, 2017). Or from Trove (National Library of Australia).

Accessibility by another name – does it work?

Norway uses the term accessible to signify solutions specifically for people with disability when not required generally in the population. An interesting distinction by Olav Rand Bringa using his 20 years of experience working in the field of universal design.

In his paper, Bringa says succinctly, “The term accessibility for people with disabilities does not broadcast an understanding of qualities beyond the targeted user group”. Consequently other terms try to compensate for this.

However, it is difficult to move away from this term because it is perpetuated in legal and other statutory documents. Bringa writes thoughtfully about the issues of getting language right to get inclusion right. An important contribution to the quest for inclusive societies. The title of the article is, Universal Design as a Technical Norm and Juridical Term – A Factor of Development or Recession? it’s open access. The picture is of the Oslo Opera House.

From the abstract

Universal design was introduced as an ideological and technical concept in Norway in 1996 and was introduced in the first law in 2003. Since then universal design has replaced accessibility for people with disabilities in national policies, laws, regulations, standards, projects and everyday language.

Accessibility is used to characterize solutions made more exclusively for people with disabilities or when a high, general quality is not required. Few countries have made this extensive use of the concept of universal design and the concept has faced several challenges from lawmakers, architects, economists, user organizations, entrepreneurs and debaters.

This paper reflects on more than 20 years of extensive use of the concept of universal design. It tries to answer the question: Is universal design an academic invention with little extra positive impact compared to accessibility for people with disability? Or does the concept defend its supposed role as a step towards a society with equal opportunities for all?

The open access paper was presented at the UDHEIT 2018 conference held in Dublin, Ireland.

10-step guide to queer UX

The concepts of universal design are expanding to encompass marginalised and disenfranchised groups in our community. In the article A 10-step guide to queer UX, there is a nice quote “There’s nothing revolutionary about technology if it is only for a limited number of people.” Making products and places more accessible for gender non-conforming and trans folk is also making them more welcoming for everyone. Roniece Ricardo writes about her observations and interaction with software as a queer gender non-conforming woman. She makes ten points:

1. Allow users to change or write in their own gender
2. Consider not having users specify gender
3. Allow users the choice to hide or display identifying information from profiles
4. Don’t assume anything about gender presentation
5. Don’t assume your user’s pronouns
6. Be careful with your marketing materials
7. Don’t make assumptions about who your users date (or don’t)
8. If you are making a niche product, receive actual feedback from the people in the niche
9. Be mindful of regionalisation
10. Diversify your staff.

For more detail on these ten points go to the article on the FastCompany website.

Access to Premises Standard and existing buildings

Michael Small’s Churchill Fellowship report tracks and compares discrimination laws and industry practice in relation to public buildings. He questions whether the control of the Access to Premises Standard is falling more into the hands of industry as Human Rights Commission resources are becoming increasingly constrained.

Three of his recommendations are: that more training is needed for industry to help them understand the standards; more flexibility is needed for building upgrades; and better systems are needed for compliance enforcement and auditing. The title of his report is, Ensuring the best possible access for people with disability to existing buildings that are being upgraded or extended. The countries visited and compared are Canada, United States of America, Ireland and United Kingdom.

Housing quality improves health

Ever wondered what the long term effects of a home modification are? A longitudinal study shows that household improvements in social housing can reduce risk of hospital stays.

The study picked up major improvements in chest and heart health as well as a reduction in falls and burns.

Over ten years, researchers found that modified and upgraded homes correlated with reduced hospital events. That means savings in the health budget or beds freed up for other patients. Obviously it is better for occupants too.

The title of the study is, “Emergency hospital admissions associated with a non-randomised housing intervention meeting national housing quality standards: a longitudinal data linkage study”. Sarah Rodgers et al. Journal of Epidemiology and Community Health.

Universal Design drives Housing Quality

Fundamental changes in the building code and regulations have occurred in Norway. However, it seems that none of this has guaranteed improvements in quality on the usability of homes. Perhaps there are some lessons for Australia in implementing the Livable Housing Design Standard.

Architects, more than any other group in the construction industry are trained to break conventional frameworks. The way regulations are applied is the key to success. This is where the education of architects and building designers comes in.

The title of the article is, Universal Design as a Booster for Housing Quality and Architectural Practice. It seems we could learn from this experience – regulations are one thing, but applying them appropriately and for maximum effect is another. The abstract gives a good overview of the project.

From the abstract

Changes to the Norwegian building code in 2010 gave a clear framework for the implementation of accessibility and universal design. However, neither increased awareness of accessibility requirements and universal design, nor compliance with the building code guarantees improvement of housing quality and usability.

The Norwegian regulations have gone further in the direction of performance requirements than most other countries. This applies to all types of requirements, including requirements for usability, functionality and accessibility. Hardly any specifications are to be found in the regulations.

Ideally, this lack of specifications should give designers the opportunity to develop innovative answers and to respond to different contexts. Still, many architects and builders ask for clear specifications, to speed up design processes. Many architects understand guidelines as minimum requirements. Consequently, they are reproducing the identical solutions without considering users.

They see accessibility as another regulatory pressure and requirements as restrictions rather than positive incentives. However, there are examples of designers who have internalised the regulatory framework. These designers are able to create and integrate inclusive design in their daily work.

This paper presents examples of practice where dwellings have been developed within a framework of universal design. Focus is on the approach of the design team and their understanding and use of the regulatory framework to create better homes.

Relationship between housing and health

A systematic review of the literature found there is a strong association between housing and health. However, it is not clear that there is a causal link. Findings showed that provision of adequate heating, improvements to ventilation and water supply were associated with improved respiratory outcomes, quality of life and mental health. The title of the article is, The relationship between buildings and health: a systematic review.

From the abstract

The built environment exerts one of the strongest directly measurable effects on physical and mental health. This study provides a systematic review of quantitative studies assessing the impact of buildings on health. In total, 39 studies were included in this review.

Findings showed consistently that housing refurbishment and modifications improved health. Adequate heating, improved ventilation and water supply were associated with improved respiratory outcomes, quality of life and mental health. Prioritization of housing for vulnerable groups led to improved wellbeing.

This review found a strong association between certain housing features and wellbeing such as adequate heating and ventilation.

Mapping Norway’s Status of Accessibility

How do you know if your action plan for accessibility and universal design is actually being implemented? The Norwegian Government’s plan to be universally designed by 2025 now has a tool to monitor progress. A standardised method to collect and measure data nationally has been trialled.

The first results show that Norway still “faces many challenges to meet the government’s goals for Universal Design”. Data were collected on buildings and major facilities such as transport hubs, walkways, cycleways and car parks. The techniques are discussed in the article, “Mapping Norway – a Method to Register and Survey the Status of Accessibility“. The authors conclude that while their system is not perfect due to the need to fully standardise and simplify complex data, they believe it will be valuable to municipal and recreational planners and developers. The article and others can be found in the Proceedings of the International Cartographic Association.

2021 Update – next steps

Mapping accessibility in Norway – a Method to Register and Survey the Status of Accessibility in urban areas and recreational areas. You will need institutional access for a free read.

From the abstract:

The Norwegian mapping authority has developed a standard method for mapping accessibility walking in urban and recreational areas. . All data are stored in a geospatial database, so they can be analysed using GIS software. By the end of 2020, more than 230 out of 356 municipalities are mapped using that method.

The aim of this project is to establish a national standard for mapping of accessibility and to provide a geodatabase that shows the status of accessibility throughout Norway. The data provide a useful tool for national statistics, local planning authorities and private users. The results show that accessibility is still low and Norway still faces many challenges to meet the government’s goals for Universal Design.

Universal Design: Social justice or just marketing?

Does universal design pursue social justice or is it a marketing strategy? Aimi Hamraie takes a look at universal design from a feminist perspective and claims that this is not a value-free notion and not without symbolic meaning. So, is universal design social justice or just marketing?

If disability is a product of the built and social environments rather than something intrinsic to the body, then universally designing should be the ideal outcome of disability politics. However, the physical environment alone is not enough to account for exclusion. Also, design professions grapple with the idea that universal design is “one-size-fits-all”, which it is not.

This philosophical essay challenges conventional wisdom about universal design. It has a distinctly North American approach underpinned by the civil rights movement. It charts the history of universal design, argues why design matters, and asks, “How can design be universal?” Hamraie concludes that collective access is the way forward – essentially arguing for participatory design, “shifting from value-explicit design for disability to design with and by misfitting bodies more generally.” The title of the article is, “Designing Collective Access: A Feminist Disability Theory of Universal Design”.

Hamraie is also co-author of a new book, Building Access that brings together UD history and architectural history in designing and making built environments usable by all. The authors ask who counts as the everyone of universal design.

Universalism: who does it serve?

Rob Imrie and Rachael Luck discuss universal design from the perspective of the lives and bodies of people with disability. Their philosophic offering is the introduction to a set of eight papers in a special issue of Disability and Rehabilitation. They ask, Universalism: who does it serve?

Some important questions are raised about the role of universalism and the embodiment of disability. For example, proponents of universal design say that users are crucial to the design process. But what does that mean for the skills of designers – will they be lost or discounted? Designers have the power and skills to design for the benefit of some groups and not others.

The focus of universal design is often on techniques and operational outcomes. Is this enough – are there other aspects to think about? Imrie and Luck provide a paragraph on each paper in the edition. It is an open access publication.

Imrie and Luck conclude:

“The papers, as a collective, are supportive of universal design, and see it as a progressive movement that is yet to realise its potential. The contributors provide insight into the tasks ahead, including need for much more theoretical development of what universal design is or ought to be in relation to the pursuit of design for all and not the few. This includes development and deployment of concepts that enable non-reductive conceptions of design and disability to emerge, aligned to political and policy strategies that enable universal design to become a socio-political movement in its broadest sense.”

The title of the editorial of the special edition of Disability and Rehabilitation is, “Designing inclusive environments: rehabilitating the body and the relevance of universal design“. Thought provoking reading for anyone interested in UD as a social movement as well as design thinking.

Category: Policy and Policy Development

What does inclusion actually mean?

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What drivers can’t see on the road

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