Go-along walking for dementia research

An older man with a walking cane walks along a path in a park. He is by himself. Go-along-walking research.Understanding the experiences of people with dementia is difficult if they cannot express those experiences well. The next best thing is to observe those experiences. That’s what the go-along walking method is – an observation of how people with dementia experience the environment. 

Researchers carried out go-along walking interviews with fifteen people with dementia. They followed this up with sit down interviews that included a family member. The participants’ stories of venturing outdoors showed that they were aware of their changing circumstances. They all shared a sense of vulnerability and not knowing if they could trust strangers to help if they needed it.

Dementia also has a gender dynamic. Male participants were willing to relinquish control to their wives, whilst female participants were prepared to adapt to changing family dynamics. Men still wanted to be seen as independent as this equated to ‘manliness’. 

A dementia-friendly environment is one thing, but alleviating the pervading personal sense of vulnerability is also important. Regardless, the research showed that people with dementia are able to take responsibility and create other ways of being in the outside world. 

The title of the article is, On being outdoors: How people with dementia experience and deal with vulnerabilities. It’s available for download from ResearchGate

From the abstract

This paper advances understanding of how vulnerability is experienced and dealt with by people with dementia when outdoors, and at times shared with family carers. We found that for the person diagnosed with the condition, an awareness of failing knowledge about oneself or the ‘rules’ of outdoor life, which individuals experienced emotionally and dealt with civically. People with dementia attempted to manage risks and anxieties, often doing this independently so as not to burden family members. 

Ruth Bartlett has a follow up article that builds on this work. The title is, Inclusive (social) citizenship and persons with dementia. It is published in Disability & Society and needs institutional access for a free read. Or request a copy from the author. 

From the abstract

The study found that access work entailed three spheres of activity: ‘access to location technologies’, ‘access to ordinary places’, and ‘consciously sharing the responsibility of access work’. Overall, this article contributes to the growing literature on cognitive accessibility by evidencing the mental demands of access work, as experienced by people with dementia, and need to share the responsibility of access work between humans and non-humans, and state and non-state actors.

 

Universal Design includes DeafSpace Design

Two people walk down a ramp signing to each other. DeafSpace Architecture.

Ramps are not just good for wheeled mobility devices, they are good for people who communicate by signing. DeafSpace Design means a few extra tweaks in a universal design approach to design thinking. Examples of DeafSpace Design are few and far between. One reason they are hard to find is because the term “DeafSpace” is not used in design briefs. Nevertheless, aspects of DeafSpace Design are sometimes included without fanfare. 

Julia Coolen explains how DeafSpace design is, or could be, integrated into general universal design principles. She explains which design aspects are particular to people who sign and/or lip read. Images help with the explanations. 

The example of the ramp is a case in point. Importantly, the width of the ramp should allow two people to walk side by side so they can continue signing. Steps and stairways interrupt their vision and therefore their conversation. Coolen discusses three principles: Mobility and Proximity, Space and Proximity, and Sensory Reach.

The title of the article is, DeafSpace and Disability: A research into DeafSpace design and its peculiarities in relation to other architectural adaptations for disabilities.  It is an open access thesis, which is relatively short with text that is to the point. The university page has a link to the PDF at the bottom of the page.

If you prefer to get a quick grab of the concepts, watch the video featuring Gallaudet University. 

Abstract

Throughout history the built environment has mostly been designed from an able-bodied perspective, which causes a set of challenges for people with disabilities. In the 20th century however, a growing attention for disability in architecture took place that resulted in a shift in architecture. This thesis focusses on DeafSpace design and how architecture has historically responded to the need to design for people with disabilities. This leads to the research question of this thesis: What makes design for DeafSpace so special compared to other architectural adaptations for other disabilities?

By analysing three buildings that follow the DeafSpace design principles, this thesis shows what makes DeafSpace special compared to other architectural adaptations for other disabilities. DeafSpace concerns design principles that go beyond the mere application of a ramp for wheelchairs. DeafSpace creates spaces that benefit ‘every-body’, it refuses the ‘normalisation’ and ‘standardisation’ of the able-bodied perspective.

It is about creating awareness and it seeks to design and improve spaces to be functional for the deaf and hard-of-hearing. In saying so, it is to be concluded that, in contrast with its name, DeafSpace and its five design principles—Space and Proximity, Mobility and Proximity, Sensory Reach, Light and Colour, and Acoustics—are beneficial to ‘every-body’.

Disability and Planning Research

A book and notepad lay open on a desk in a library.Planning research has not yet evolved to include disability perspectives. Is it because the medical model of disability still prevails? Or is it mistakenly believed that disability is not a design issue? Some might say it’s because the needs of people with disability are fragmented across government departments. Practitioners in the planning field are required to engage with communities, but it seems the researchers are not keeping up. 

Two Canadian researchers took a look at the situation. A search of five prominent planning journals showed that people with disability largely remain invisible. The researchers found just 36 articles – most of which come from the US and the UK. Only 20 had people with disability as the central topic. 

The authors describe the content of the papers that go back as far as 1916. Attitudes towards people with disability clearly changed over the years but including them in research did not. Papers that did mention people with disability generally added them to a list of other groups considered vulnerable or marginalised. 

The paper concludes:

“Planning researchers and practitioners, therefore, must continue to question what knowledge, assumptions, and biases we may have toward PWD and experiences of disability that manifest through our environment. More broadly, planning scholarship can be strengthened by continuous questioning of self—on the processes through which certain knowledge is produced or a pursuit of certain knowledge is prioritised within the discipline. The development of critical discourse focusing on PWD can be a vehicle for such self-reflection.

The title of the article is, The Precarious Absence of Disability Perspectives in Planning Research. It is open access on cogitation press website, or you can download directly

Tokyo’s Olympic legacy acknowledges population ageing

The two mascots, one blue one bright pink for the Tokyo O,ympics.Although Japan has the oldest population in the world, creating accessible urban spaces is making very slow progress. Tokyo aimed to have all parts of the city that linked to the Olympic venues completely barrier-free. That includes buildings, transportation, services and open spaces. Tokyo’s Olympic legacy is discussed in a book chapter, which is open access. 

Deidre Sneep discusses the issues regarding the urban design legacy in the Japanese context and commercialisation. The title of the book chapter on page 91 is, Discover tomorrow: Tokyo’s ‘barrier-free’ Olympic legacy and the urban ageing populationIt’s free to download, but if you have institutional access you can access the journal article version.

One interesting aspect is that some argue that the government’s guide to promote a ‘barrier-free spirit’ makes it sound like an act of friendliness. Any kind of patronising attitude or slogan only serves to maintain marginalisation as the norm. Posters focus on young people and make barrier-free a special design. There are no older people in the pictures.

The implementation of the universal design concept is increasingly commercialised says Sneep. This is likely due to the history of universal design in Japan. One of the first international universal design conferences was held in Japan in 2002, and was led by giant product manufacturers such as Mitsubishi. The International Association for Universal Design (IAUD) remains active. 

In 2020 Tokyo will host the Olympic and Paralympic Games for the second time in history. With a strong emphasis on the future – Tokyo’s slogan for the Olympic Games is ‘Discover Tomorrow’ – Tokyo is branded as city of youth and hope. Tokyo’s demographics, however, show a different image: in the coming decades, it is expected that well over a third of the citizens will be over 65. Despite the focus on a youthful image, Tokyo is well aware of the fact that its demographics are rapidly shifting.

Governmental bodies have been actively trying to find solutions for anticipated problems related to the ageing population for decades. One of the solutions that is being discussed and implemented is highlighted by the 2020 Olympics: the implementation of universal design in public spaces in the city in order to make it more easily accessible – in other words, making Tokyo ‘barrier-free’ (bariafurī).

This chapter presents the concept of ‘barrier-free’ in a Japanese setting, critically analyses the history and current implementation of the concept, pointing out that it seems to be increasingly commercialised, and evaluates the purpose of implementing the concept in the light of the 2020 Olympic Games.

 

Community involvement for design in planning

A woman strikes a yoga pose alone in a city square with tall buildings around.Planning is also about design. And good design now includes users. Community involvement is a key part of planning processes. It must take account of our human diversity otherwise designs will unintentionally exclude. Community involvement in planning also introduces designers and planners to “other ways of being”. 

Design and planning go hand in hand, but design has been a subject to avoid in planning, particularly in the U.S. This is according to a journal article that challenges planners to move beyond policies of spatial organisation.   

The article covers climate change and climate justice, and social and racial justice. A workshop using collaborative processes is the basis of a case study highlighting the issues. Community involvement was pivotal to the success of the project and the research outcomes. The subject of the case study is an affordable housing provider. The aim was to move from standard cookie cutter designs to designs that suited the potential residents. The new design was applied to a prototype home. 

The author concludes that there are profound implications for planning research. Designers need to engage with planning because they can better address the social and environmental concerns. 

The title of the article is, Design in Planning: Reintegration through Shifting Values.  

Abstract

Design is increasingly entering planning beyond the subfield of urban design. At a larger scale, designers are moving into the social sciences to apply design skills at intersections with the social sciences. This article offers an overview of research and practice at the forefront of both interpreting design fields and understanding their growing importance within planning. This transcends examinations of urban design to incorporate the potential of design more broadly in planning, with particular emphasis on community development and engagement.

The article does this through a case study of an existing design-based nonprofit (bcWORKSHOP) which leverages techniques across design and planning to generate new forms of community planning practice in the State of Texas. Ultimately, this case study begins to ask whether planning can fully address a number of issues (like social/racial justice and climate change) without understanding these issues from both design and planning perspectives simultaneously. It also emphasizes the importance of training planners to both envision and build alternate possible worlds, a skillset fundamental to design that could reshape planning education and practice.

Norway: A guide for universal design is not enough

An aerial view of a hospital courtyard showing gardens, seating and children's play equipment.Guides give guidance, but you need to know the point of universal design. Knowing the point is a key success factor in taking a universal design approach. This is what the Chief Architect of St Olav’s Hospital in Norway said about the way the hospital precinct was designed. That’s why a guide for universal design is not enough – you need to know the point of it.  

The point is inclusion – it’s about society, not just design. The focus on compliance with standards does not tell you the point, just what to do.  An article in Citylab provides some examples of how Norwegian designers are embracing the principles of universal design. The Norwegian policy Norway Universally Designed by 2025 is the driving force for change.

St Olav’s Hospital in Trondheim is a great example of how universal design is deployed across the whole hospital setting. That’s from the outdoor and external features through to the internal design. The Chief Architect says, “Guidelines are not enough, you need clear intentions. You have to know what’s the point of this”. 

relates to With a Deadline In Place, Norway Warms Up to Universal Design

“It looks like a nice urban environment,” said Onny Eikhaug, Program Leader at the Norway Design Council. “It doesn’t look like a hospital, it doesn’t smell like a hospital.”
DOGA, The Innovation Award for Universal Design

The Norwegian policy was launched in 2005, and includes transportation, open spaces and ICT and communications. Nicely written article by Marie Doezema.

Olav Rand Bringa was part of the early movement and wrote about the processes in, Universal Design and Visitability: from Accessibility to Zoning.  He also presented at the UDHEIT conference in Dublin.

The kerbside and mobility

A streetscape of the future with street plantings, outdoor eating and a driverless car in a 30 kph zone.
Image from the whitepaper depicting a future street

The idea of smart cities, driverless cars, and artificial intelligence is propelling us into the unknown. But there are some things we can predict. Everyday things will be seen in a new light. The kerbside for example. Other than kerb ramps most of us don’t think about the kerbside and mobility. But somebody else has.

The Future of Place webpage has a link to a report that looks at the Future Ready Kerbside. The publication by Uber and WSP explores what the future might hold in the context of shared mobility and liveable cities.

The kerb is the intersection between the pedestrian area and the road. How space is allocated each side of the kerb dictates who can access these spaces. The kerbside is not passive infrastructure so we need to prepare for its future use. It needs careful management by city leaders.

There are ten recommendations in the Executive Summary of the report and they include:

    • Co-design the vision for places in partnership with the community, businesses and governments. 
    • Move from general parking to pick-up/drop-off for people and goods to improve kerbside productivity and access to local places.
    • Take a people-and-place first approach so that new mobility is an enabler and not a detractor to realising the co-designed vision.
    • Street design guidelines must get ahead of new mobility and proactively focus on the best possible outcomes for people and places.
    • Prioritise walking to access local places, along with transit and
      micro-mobility, supported by funding for local infrastructure. 

The full report is titled, Place and Mobility: Future Ready Kerbside and has more technical detail.  Both the full report and the executive summary have interesting infographics and images depicting how the future might look. 

Pedestrians on Wheels: A new paradigm?

Personal mobility devices are shown as the Segway, Hovertrax, Ninebot Mini, Solowheel, Onewheel, and Z-board.Pedestrians are becoming more diverse. Consequently, moving through public spaces needs more design consideration by urban designers. It also means accessibility and safety is more than having kerb ramps and level footpaths. Pedestrians on wheels is a new paradigm.

Mobility will become more complex as mobility choices increase especially with battery powered devices. We already have a diversity of pedestrians. They come with baby strollers, wheeled suitcases, wheelchairs, guide dogs, walking frames, and skateboards. Then we add powered devices: mobility scooters, wheelchairs, Segways, hover-boards, and e-scooters. And the line between mobility aids and other wheeled devices is blurring in terms of road and footpath use. 

Manoeuvring around all these different pedestrians is difficult enough. Then we need to add in people who are using umbrellas, carrying large parcels, pushing delivery trolleys, and those looking in shop windows and their smart phones. And let’s not forget bicycles and e-bikes. 

 An interesting study on personal mobility devices is reported in  Diversity of “Pedestrians on Wheels”, New Challenges for Cities in 21st Century“. The article has a surprisingly long list of different categories of pedestrians and their differing obstacles and needs. For example, pedestrians with wheeled elements and pedestrians requiring more action time. 

Cars take priority in planning

Traffic management authorities collect data on vehicle traffic flows, but not pedestrian movements. Data are, however, collected on pedestrian road accidents and deaths. Pedestrians who feel unsafe on the street will curtail their movement in their neighbourhood. The number of journeys not made because of road and street design are not known. 

In the conclusions, the authors discuss the need for regulations for users and on the use of the devices, and using designs which can be easily detected by other pedestrians by using colour and sound. 

New ideas about “Movement and Place” are at odds with the “Roads and Traffic” paradigm. Something will have to give if we want more walking. People limit where they go based on how safe they feel. Pedestrian crossings aren’t designed with all pedestrians in mind – they’re designed with traffic flows in mind.

Extract from Abstract 

Reality shows us that pedestrian diversity is a reality that is becoming increasingly complex. In the 20th century the car set aside horse carriages and pedestrians. In the same way, 21st century pedestrians are taking centre stage with policies for walkability. But the design of streets for this new paradigm has yet to be solved. 

Citizens on scooters, skates, skateboards, Segways, and unicycles, are added to the already traditional baby strollers, wheelchairs, and suitcases with wheels. “Pedestrians on wheels” poses new challenges of coexistence and design. These are considerations of universal accessibility that we cannot leave out while our society progresses.

This paper identifies some of these new needs and presents a progressive analysis in three phases: 1 classification of the different user of the street, 2 study of the Personal Mobility Devices (PMD) and 3, the new accessibility barriers that arise with the use of PMD. As a result, some action strategies are pointed out to respond to the difficulties of accessibility derived from this new reality and to integrate them into the universal design of the urban public space.

The article is from the proceedings of the UDHEIT 2018 conference held in Dublin, Ireland. It is open access publication.

One of the seven Lime designs. A two seater tricycle.Micromobility is now accessible for people with disability thanks to seven new designs launched by Lime. They are not “disability” specific – just good design useable by more people. The article is on FastCompany website. 

Disasters and emergencies: Leave no-one behind

Road Closed signs and a barrier of a road that reaches down to swollen river.‘Leave no-one behind’ is the tag line for the Sustainable Development Goals. In disaster management this idea takes on a very practical meaning. People with disability are two to four times more likely to die or be injured in a disaster than the general population. So why is our disaster planning and risk reduction failing people with disability?

Being able to attend community meetings to find out what to do in an emergency is one factor. Having more than one person in the household with disability is another. Community education and plans assume everyone can get out of the house with a few belongings, get in the car and drive to safety. But some of the problem is that people with disability don’t make a plan or don’t tell anyone their plan. 

There is no nationally consistent standard for including people with disability in disaster risk reduction. An article in The Conversation explains some of the research into this. It includes the comments made by people with disability when asked about disaster planning. One such comment is very telling,

“But I spoke to three different people who had three different disabilities, and you realise that the communication has to be targeted. Because those three people required completely different things. And the information they got was not in a mode which they could use.”

Four men with orange lifejackets are standing in a yellow State Emergency Service boat on a swollen river.The title of the article in The Conversation is, ‘Nobody checked on us’: what people with disability told us about their experiences of disasters and emergencies

The academic version was published in the International Journal of Disaster Risk Reduction. The title of the paper is, Applying a person-centred capability framework to inform targeted action on Disability Inclusive Disaster Risk Reduction, and is available from ScienceDirect.  

Key points from the study are:

    1. Disability Inclusive Disaster Risk Reduction requires collaboration with people with disability to remove barriers that increase risk in emergencies.

2. The Person-Centred Emergency Preparedness framework directs attention to the choices that people with disability have in emergency situations and factors that enable or limit them.

3. Findings can be used to support implementation of Australia’s National Strategy for Disaster Resilience by defining person-centred responsibilities of people with disability and service providers in emergencies.

Findings gave deep insight into the diversity and interrelatedness of factors that increase the vulnerability of people with disability. The report offers new perspectives on why Australian’s with disability are disproportionately affected by disaster. 

Universally designed emergency management

With the increasing frequency of extreme weather events, the need to have inclusive emergency systems is paramount. Although there is some awareness of people with disability within emergency management, there are few tools that embrace universal design principles.

Research has focused on the general public, but not on stakeholders such as first responders, control room personnel and decision makers. Many of us turn to our mobile phones and downloaded apps to keep us up to date. But how inclusive are they?

A research paper from Norway takes the topic of emergency management beyond the physical environment, such as escape routes, to communications technology. Appropriate technology can improve disaster management for everyone.

The paper is a literature review of universal design methods in emergency management. Among the findings was awareness of people with disability was increasing and systems were being adapted accordingly. However, gaps remain.

Some of these are:

    • Most of the work on ICT tools and platforms for Emergency Management does not take into account Universal Design nor accessibility.
    • There is a lack of communication support between emergency medical responders and people that are deaf.
    • In use of social networks in emergency situations, the age gap was identified as significantly more severe than the disability gap.
    • Accessible tools and platforms exist, but most of them are on the conceptual or at best on the prototype level.
    • Research on the use of assistive technology by older adults during disasters is a neglected issue.
    • Accessibility is often limited to access to Internet, rather than the diversity of stakeholders and their access to digital solutions.

They also found that participatory design methods gave best results but were rarely used. Maps for visualising disasters were unlikely to be accessible, but had high value for users. The article is comprehensive and covers every aspect of emergency and disaster management, particularly from the perspective of emergency personnel. 

The title of the article is, Universal Design of ICT for Emergency Management from Stakeholders’ Perspective. It is open source.

 

Universal Design and the Circular Economy

A yellow skip bin is overflowing with rubbish.Concerns for climate change and waste production are driving the concept of a “circular economy“. This requires designers to think and create in different ways. But will these new ways also be inclusive, accessible and universally designed? Chances are the answer is “yes”. That’s because a circular economy requires designers to engage with stakeholders in the design process.

Including universal design frameworks in the concept of a circular economy is one way to draw together the many disciplines. A circular economy shares at least one thing in common with universal design – the need to consult with stakeholders. This is one aspect discussed in an article from Sweden that discusses the issues in terms of challenges and practical implications.

The concept of a circular economy is new and mostly discussed in theoretical terms. So it is good to see the concept of universal design being brought into the conversation before implementation strategies are formed. The title of the open access article is, How circular is current design practice? Investigating perspectives across industrial design and architecture in the transition towards a circular economy.

Abstract  

The transition to a circular economy (CE) produces a range of new challenges for designers and requires specific knowledge, strategies, and methods. To date, most studies regarding design for a CE have been theoretical and conceptual, hence, limited research has been conducted on the practical implications of designing for a CE. Therefore, the aim of this study is to provide a better understanding of how design practitioners interpret and implement the CE concept in practice. To capture the complexity of real-world cases, semi-structured interviews were carried out with design practitioners (N = 12) within the disciplines of architecture and industrial design who have actively worked with circularity in a design agency setting. The results show that the practitioners have diverse perspectives on designing for a CE, relating to (1) the circular design process, (2) the effects of the CE on design agencies, (3) the changing role of the designer, and (4) the external factors affecting circular design in practice. Some differences were identified between the architects and industrial designers, with the industrial designers more strongly focused on circular business models and the architects on the reuse of materials on a building level. In addition, circular strategies and associated (similar) terminologies were understood and applied in fundamentally different ways. As the CE blurs boundaries of scale and disciplines, there is a need for universal design frameworks and language. The CE concept is expanding the scope of the design process and driving the integration of new knowledge fields and skills in the design process. The successful implementation of the CE in practice is based on extensive collaboration with stakeholders and experts throughout all stages of the design process. Design agencies have addressed the CE by establishing dedicated CE research and design teams, facilitating knowledge exchange, developing their own circular strategies and methods, and striving for long-term client relationships that foster the engagement of designers with the lifecycles of designed artefacts rather than perceiving design projects as temporary endeavors. Ultimately, a holistic and integral approach towards design in a CE is needed to ensure that the underlying CE goals of contributing to sustainable development and establishing a systemic shift are ongoingly considered.

The Conversation has an article explaining the circular economy.

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