Category: Co-design processes

Articles and research on co-design and co-creation methods

Engaging with local communities

Co-creation and co-design processes are gaining traction in urban regeneration projects across the globe. A study of three different urban regeneration projects in three countries shows the flexibility and value of this method. Successful implementation of equitable and inclusive public space also depends on a multi-sectorial approach.

The three cities in the study were Dhaka in Bangladesh, Maputo in Mozambique, and Santo Domingo in the Dominican Republic. The research group consisted of an architectural firm, and academics from three universities in the relevant countries.

Seven challenges emerged: inclusive mobility, housing, climate change, local economy, governance, gender and participatory planning. The one thing the case studies have in common is the value of engaging local communities.

Aerial view of Dhaka city in Bangladesh showing densely packed apartment buildings.

The case studies offer different situations for learning and are explained in detail. The participative process revealed a stark imbalance in the inclusion of girls, women and marginalised groups in planning processes. The researchers repeat the call by others to include a diversity of user groups in co-creation methods.

Rapid urbanisation and inadequate public transport in the Global South has lead to half the people having their mobility restricted. This means they are less likely to access employment, education and recreational facilities.

Public space is often a place for trade and commerce in the Global South. Informal economies sustain livelihoods where there is little demand for labour. While this type of economic activity can revive public space, it can also foster unjust distribution of public space.

The title of the article is, Creating Resilient Public Spaces – a Global Perspective on the Conditions for Integrated Urban Development.

From the abstract

Inclusive and sustainable design is crucial for creating equitable and climate-resilient urban environments. This paper presents a research project that involved case studies in three cities on three continents – Dhaka, Maputo, and Santo Domingo.

The researchers used a participatory design process during the COVID-19 pandemic. Academic urban living labs in partner cities generated urban design solutions for co-designing public space.

This approach aimed to ensure that the proposals were holistic and responsive to the specific needs and aspirations of the local communities. The case studies encompassed sites reflecting diverse urban contexts. The urban lake of Shahjahanpur Jheel in Dhaka, public spaces surrounding the centre of Maputo, and a central expressway in Santo Domingo.

Researchers identified the needs and aspirations of local populations for these places. Co-creation opportunities and place-making events empowered residents and local entrepreneurs to take an active role in the transformation of their neighbourhoods.

Established participation tools were adapted to each local context and new techniques were developed for specific user groups. Young professionals were included in the design process through cooperation with local universities. Academic partnerships and the cooperation with local city administrations also supported capacity building and knowledge exchange.

The results of the process included integrated urban strategies, urban designs, architectural solutions, and cost estimates for implementation. We identified seven overarching challenges for action. They were, inclusive mobility, housing, climate change adaptation, local economy, governance, and gender-sensitive and participatory planning.

Healthy and inclusive neighbourhoods in Florence

Participatory action research was at the centre of a project for the Municipality of Florence in Italy. The focus was on green and public spaces and involved several different stakeholder groups. The outcome was the creation of a “health map” with design ideas to enhance the neighbourhood. Co-planning activities involved citizens and researchers used different methods and tools at different times.

The title of the article is Quartieri Sani Hub: Healthy and inclusive neighborhoods for the communities of the metropolitan City of Florence.

The Ponte Vecchio bridge over the river in Florence. It shows the buildings and shops on the bridge.

From the abstract

Health has a place-based dimension that needs addressing at the neighbourhood scale. The contribution is based on the Quartieri Sani Hub (Healthy Neighbourhoods Hub) ongoing research. The aim is to investigate the issue of health and wellbeing based on spatial and social knowledge to define strategies and design scenarios for an inclusive and healthy neighborhood.

Co-design in Toronto’s Chinatown

“Planting Imagination” is a case study of a two year project to establish and design a community garden. It brought together a group of Chinatown community organisations and university researchers. 60 diverse Chinatown Activators and 6 Community Facilitators used virtual reality technology to co-design a community garden.

This project aims to promote community resilience, reduce stress and stigma, and support the affected groups in Chinatown during and after the COVID-19 pandemic. Image from Toronto Metropolitan University.

A community garden with many different coloured blocks and shapes that can be moved for different purposes including seating.

They used virtual reality visioning within a co-design process. The Chinatown community was provided with the tools to envision the future of their own community in a collaborative way. They explored ways to transform built environments and reconstruct community identities and strengthen resilience. The end goal was to promote social justice and equity.

The process strengthened community solidarity for enabling local residents to steer the future of the built environment. Bringing diverse disciplines an practices together, Planting Imagination developed models of VR co-design using online and in-person. The multi-lingual community co-design session prioritised communities disproportionately impacted by COVID-19.

The paper lists the key challenges and provides recommendations for future projects.

The title of the paper is, Planting Imagination: Community Co-Design for Toronto’s Chinatown West. A university news item briefly explains the project as well.

Inclusive Design Wheel for transport

The University of Cambridge’s Inclusive Design Team, have applied their Inclusive Design Wheel to transport. As with many frameworks, it lists a step-by-step process, but with a twist. It is a co-design process. The key principle of the Inclusive Design Wheel is that the process is highly iterative and involves users.

The Inclusive Design Wheel for Transport consists of four phases of activity: Manage, Explore, Create and Evaluate

The Inclusive Design Wheel for transport showing the four phases of the framework.

The Wheel is flexible and it is not always necessary to carry out all activities in every iteration. Successive cycles of Explore, Create and Evaluate are used to generate a clearer understanding of needs.

Each of the four phases is broken down into guiding tasks. For example, in the Explore phase, engage with users, examine user journeys, and capture wants and needs. In the Create phase, involve users, stimulate ideas, and refine ideas. In the Evaluate phase, agree success criteria, gather expert feedback and gather user feedback.

The Inclusive Design Wheel is a detailed online toolkit. While some of the steps appear obvious, the step-by-step process keeps you on track. This is a useful tool which can be applied in other contexts.

The underpinning research

The Inclusive Design Team completed their Dignity project on digital access to transport. They worked in four European cities to see how best to help travellers and providers. The aim of the project was to see how all stakeholders can help bridge the digital gap. They did this by co-creating more inclusive solutions using co-design methods. Their Inclusive Design Wheel is the result and is applicable to all aspects of public transport.

The evolution of paper-based train and bus timetables to digital formats has benefits and drawbacks. On one hand, digital formats offer more detailed information to help plan journeys. On the other, the amount of information can be overwhelming – that is, if you can find what you are looking for. And if you don’t have access to digital services then this format is of no use at all.

At first glance the Inclusive Design Wheel looks complex. The research team used feedback from the research project to fine tune the framework to its current form.

A graphic showing a complex circular chart with many elements. It looks very academic and take time to read and perhaps understand.

The Dignity report is long, comprehensive, and uses academic language. It details the methods in all four cities: Ancona Italy, Barcelona Spain, Flanders, Belgium, and Tilbug Netherlands.

Universally designed infrastructure planning

An aerial view of a new highway junction with overpasses.

One of the underpinning tenets of universal design is to involve users in the design process – at the beginning. Involving citizens in early stages of design can avoid costly retrofits, but more importantly, it is more likely to give people what they want. That means they are more likely to use it. Transport planning can also be universally designed. An article in The Fifth Estate argues that to leave out citizens is asking for trouble, and it is also undemocratic. Infrastructure is a public thing regardless of  who owns it, runs it or controls it. It is about good city governance. Planners need to do three things:

  1. consult and engage citizens early in infrastructure planning
  2. improve quality and access of citizen engagement at the strategic planning stages
  3. use more sophisticated strategic planning tools and practices to improve decision-making

The original article was in The Conversation. 

Digital first and last mile

A young woman is sitting in a bus shelter and looking down the road. The shelter is lit and has an information board.

Many car trips in Australia are less than 2km. So there is room for a re-think in personal e-mobility and digital solutions.  The Future of Place organisation recently ran an online workshop on the digital last mile. It drew together technology and data solutions to support first and last mile experience. The key question was what does the last mile of the future look like? It therefore follows: will everyone be included in the digital first and last mile solutions?

Four guests gave their expertise to the workshop. Katherine Mitchell reminded us that regular commuters have high levels of digital literacy. But not everyone has a smart device. She focused on accessibility, safety, confidence and wayfinding.

Damien Hewitt posed the idea of bus stops offering more local information, not just about transport or timetables. Stephen Coulter discussed the opportunities for micro-mobility and e-mobility. With 12 billion car trips of less than 2km made each year it’s time for transformation.

Oliver Lewis advocated for a greater level of digitisation to manage assets for real time experiences for users. He also introduced the idea of “Digital Twins”. An example of a digital twin is a digital 3D model of a real physical object or process. It helps predict how a product will perform.

Workshop participants gave their ideas via a process of “card-storming”. The results were captured in a document on the Future of Place website. 

Design justice in engineering courses

Typical engineering courses have plenty of design content but they lack concepts of design justice. Engineers have done much to improve lives for the better. However, there are instances where the opposite occurs and unintentional harms are caused. Time to introduce the concepts of design justice into engineering courses, according to a recent paper.

Using a design justice lens, the inequities in the built environment come to light. Design justice seeks to address the ways in which design decisions perpetuate systemic injustices.

A six lane highway through an urban area.

The paper describes how undergraduate students were tasked to assess an established neighbourhood where major highway now divides what was a thriving neighbourhood. Students were asked to review the case using principles of design justice.

Principles of design justice

The 10 principles of design justice are compared to the Engineering Code of Ethics. This is important because engineering ethics are about engineer practice, not who they design for. For example, avoiding conflicts of interest is not the same as being collaborative and a facilitator of design. The list of principles focus on the users of the design and introduces elements of co-design. These principles shift the focus from their skills as engineers to their skills of listening to and understanding users.

Self reflection on the learning

The author tracks the methods used and then uses direct quotes from students to highlight the learning. Here are two examples:

“The real lesson of the exercise though is just how big of an impact design can have on people and how long that the impact can be felt even generations later.”

“I have been aware that design can cause unintended harm but have never had a list of principles to reference when creating a design. I can now use this list to create just designs in my life.”

A group of men in hard hats, and with tools in their hands, stand near a bulldozer in an urban road. A run down apartment block is in the background.

The principles of design justice are a good framework for engineers and others involved in design. The engineering profession is seeking ways to improve diversity and inclusion within their ranks. Now it is time to ensure diversity and inclusion is part of their everyday activity.

The title of the paper is, Incorporating Design Justice Activities in Engineering Courses, and good for all built environment educators.

Teaching engineers empathy

Universal design and empathetic design for engineers discusses similar issues. Here is an excerpt from the abstract.

This article explores the relevance of universal design and empathic design in education. Universal design focuses on creating accessible and usable products, environments, and systems for individuals with diverse abilities.

Empathy involves understanding and sharing the feelings of others, encompassing cognitive, emotional, and compassionate empathy. Teaching empathy to engineers is emphasized as a crucial aspect. By developing empathic skills, engineers gain a deeper understanding of user needs and perspectives, leading to more inclusive and user-centered design solutions.

Effective communication techniques such as asking open-ended questions, active listening, observation, and perspective-taking are explored. The article also explores methods for measuring empathy, thus enabling engineers to assess the effectiveness of their empathic design approaches. The challenges facing students, teachers, and university authorities in implementing such courses are also bulleted.

Spatial justice and creative co-design

Inclusive design concepts go beyond codes and standards. This requires new approaches using creative practices according to Janice Rieger’s new book. She presents creative co-design methods well beyond standard workshop techniques. For designers in any discipline these techniques shine a light on spatial justice and creative co-design methods.

The case studies centre on museums, malls, universities and galleries illustrate co-design methods applicable to other public places. The book exposes ableism in architecture and design and stimulates debate about current practice. Rieger challenges and expands our understanding of power in architecture and design that creates injustices.

Using a justice-based lens the case studies in each chapter have take-aways for creating inclusive, universally designed places and spaces. The language in this text is generally for professionals and scholars.

Perspectives of power leads the discussion followed by issues of ableism and how to design differently. Here Rieger uses her experiences of using short films and multisensory storytelling. Part 3 looks at constructing inclusive experiences followed by a look at spatial justice in the future.

The title of the book is, Design, Disability and Embodiment: Spatial Justice and Perspectives of Power. The book is available for purchase from the Routledge website with access to a preview and the table of contents.

From the Overview

This book explores the spatial and social injustices within our streets, malls, schools, and public institutions. Going for a walk, seeing an exhibition with a friend, and going to school are conditional for people with disability.

This book stimulates debate and discussion about current practice and studies in spatial design in the context of disability. Case studies of inclusive design in museums, malls, galleries and universities challenge and expose the perspectives of power and spatial injustices that still exist within these spaces today.

The international case studies purposely privilege the voices and perspectives of people with disabilities, to expose the multisensorial perspectives of spatial justice in order to understand inclusion more holistically through embodiment.

This book is for anyone in the design or arts who want a world where spatial justice is possible. It offers a new perspective of spatial design through critical disability studies, allyship and codesign, where tangible approaches and practices for inclusive design are explored.

From Rob Imrie’s review of the book

Highly regarded researcher and author Rob Imrie has written a review of Rieger’s book in Disability & Society. He writes of her challenge to the power of ableist architecture and the bias towards sight and seeing. Here are two pertinent extracts from Imrie’s review:

“For Rieger, echoing earlier work by Oliver (1992), about the need for emancipatory research, there can be no such thing as inclusive design based on data generated by conventional social relations of research, in which disabled people are objects of the process. Rather, what is needed is a transformation in the conduct of research, in which disabled people participate in a process of co-design. While the book describes a variety of co-design projects, I wonder if these are sufficient in tackling disablism and spatial injustice?”

“[Rieger’s observations] raise the question of how far design professionals are willing or able to cede control, and embrace a different set of relationships with their clients and users? More importantly, how will such changes transpire, given that much of the design of space is channelled through corporate development companies, in which architects have little influence?”

Community driven design

Architectural competitions can bring design quality to cities. But the design competition process misses the opportunity to engage deeply with the public. And that means social value could be missing too. The process of community driven design competitions addresses unequal access to design decisions and cultivates social ties.

“Design has a role in building social capital. During a design competition, there are opportunities for placemaking and designing in social connectors.” Georgia Vitale

Image: 11th Street Bridge Park. Courtesy OMA + OLIN

An aerial view of 11th Bridge Street Park which spans a river. It was community driven design.

Community consultation takes many forms, some of which are perfunctory while others are more meaningful. That is, meaningful for the public – the users of places and spaces. The judges of architectural design competitions are other architects. So how does community consultation and engagement fit into this process?

Vitale’s article explores the drawbacks of limited or no meaningful public participation or interaction with users of the building or place or other stakeholders in design competitions. This is at a time for an increased need for social capital to be included in the planning and design process for more socially sustainable communities.

Social infrastructure, shared spaces and streets, and public transport are the outputs of design. However, community engagement with diverse community members helps create new connections. it also encourages people to become involved in the lives of their neighbours. That’s the social benefit of community driven design competitions.

Case Study

Vitale uses 11th Street Bridge Park DC as a case study. The goal is to knit together the two communities on either side of the river. And that’s without displacing people in the marginalised neighbourhoods on the eastern bank.

Bridging community and design: a new way forward is the title of the article in The Fifth Estate. See the original article for links to cited research and case study.

Co-design and engineering education

Project-based learning is common within engineering education, particularly in design courses. This is where students follow a standard design process to solve a specific problem. In some cases, students are paired with community partners to solve real-life problems.

A research paper documenting how engineering students engaged in co-design methods uses the design of a clip mounted on a mop bucket as an example. The aim was to make the mop and bucket easier to move and transport. What began as a two-week design assignment turned into a 10 month iterative co-design experience. The result was the implementation of a successful product for multiple users across campus.

The commercial mop bucket did not have a restraint for the mop when the bucket was being wheeled to a new place. The users were concerned that the mop could cause an accident on campus. They had complained about it, but until the student project nothing had been done.

A black commercial mop bucket similar to that used in the project.

The case study

Over time, using the mop bucket, the “pet peeve” eventually became something really annoying. The community partners became worried about the unpredictability of the mop handle. The new clip not only secured the mop handle, it improved the ergonomics for the users. The co-design process also revealed how users felt their worries were ignored and how they felt belittled.

The paper, Embracing Co-Design: A Case Study Examining How Community Partners Became Co-Creators explains the process and the outcomes. Both the actions and reactions of the students and community partners are documented. With the success of this project, the authors hope more engineering educators will promote co-design in their project-based assignments. A good example of how good solutions emerge when everyone works together.

Co-design ensures the desires, opinions, and concerns of people affected by the design, are incorporated. This widens the circle of designers and improves the final design and the experience for all participants. Incorporating community partners early in the process produces more novel ideas and improved ergonomic products.

In addition, communities tend to embrace the solution more and support its long-term maintenance because they were involved in decisions. However, it’s important to make sure no marginalised voices are excluded, unintentionally or otherwise.

From the abstract

Co-design increases the number of voices in a design project, which enhances the experience for all co-creators and produces a better product. A case study is presented of a ten-month co-design project-based learning experience between two engineering design students and two community partners during a first-year engineering design course, which resulted in the implementation of the device across campus.

This paper evaluates the elements of co-design in the design process that was employed, documents the design product that was produced, and examines the experience of the community partners through a qualitative study. The design process demonstrated an increase in the amount of collaboration between co-creators as the project progressed and identified 15 iterations of the design.

Comparing the experience of community partners throughout the design process, five themes emerged from the semi-structured interviews: (1) emotional effects, (2) physical and mental effects, (3) productivity, (4) safety, and (5) job satisfaction. Documenting the experience of community partners throughout the design project can encourage educators to adopt co-design practices in project-based learning.

Teaching engineers empathy

Universal design and empathetic design for engineers discusses similar issues. Here is an excerpt from the abstract:

This article explores the relevance of universal design and empathic design in education. Universal design focuses on creating accessible and usable products, environments, and systems for individuals with diverse abilities.

Empathy involves understanding and sharing the feelings of others, encompassing cognitive, emotional, and compassionate empathy. Teaching empathy to engineers is emphasized as a crucial aspect. By developing empathic skills, engineers gain a deeper understanding of user needs and perspectives, leading to more inclusive and user-centered design solutions.

Effective communication techniques such as asking open-ended questions, active listening, observation, and perspective-taking are explored. The article also explores methods for measuring empathy, thus enabling engineers to assess the effectiveness of their empathic design approaches. The challenges facing students, teachers, and university authorities in implementing such courses are also bulleted.

Older people, ageism and digital design

Do stereotypes of older people affect how digital technology is designed? A team of researchers found that ageism has the potential to influence design in negative ways. They found co-design partnerships overcame ageist attitudes and were more likely to produce digital technologies that are needed, wanted and used.

Ageism can have a detrimental role in how digital technologies are designed. Participating with older people in the design process has the additional benefit of countering stereotypes. Image shows a group of older people on a desert camping expedition.

Of a group of older people having fun together on a camping tour.

Older people said the “ultimate partnership” in co-designing is to be involved from the beginning through to the end of the design process. Sharing control over design decisions was an important part of the process. They are more than informants – they are equals who have valuable contributions.

The researchers noted that although this vision of co-design is shared by designers, it is not always the case in practice.

Image shows older people working together on a workshop question.

Older people sit at round tables discussing questions. There are four round tables shown in this picture.

Older people in the study also said that ageism emerges in implicit and explicit language about ageing. And ageist images can influence the design process. Consequently, the researchers say it is important to view the diversity of older people.

Co-design with older people

How and when to involve older people in digital design is also important. Understanding co-design with older people has the potential for avoiding insufficient prototyping, biases and errors in the design process.

The title of the article is, An “ultimate partnership”: Older persons’ perspectives on age-stereotypes and intergenerational interaction in co-designing digital technologies.

From the abstract

There is a gap between the ideal of involving older persons throughout the design process of digital technology, and actual practice.

Twenty-one older people participated in three focus groups. Participants experienced ageism in their daily lives and interactions with the designers during the design process. Negative images of ageing were pointed out as a potential influencing factor on design decisions. Nevertheless, positive experiences of inclusive design pointed out the importance of “partnership” in the design process.

The “ultimate partnership” in co-designing were where they were involved from the beginning, iteratively, in a participatory approach. Such processes were perceived as leading to successful design outcomes, which they would like to use, and reduced intergenerational tension.

Co-designing with people living with dementia

A diagnosis of dementia used to mean staying home and being cared for. Those who work in the area of dementia are doing their best to change this view. But is the design community prepared to embrace people living with dementia? Paul Rogers reports in Co-designing with people living with dementia disruptive design interventions to break the cycle of well-formed opinions and mindsets. The co-design method has provided ways for people with dementia to continue contributing to society and have fulfilling lives.

The co-design project was to create a new tartan design. Each person with dementia directed the researcher to co-create their digital design one colour at a time.

A tartan from the research paper with orange and green colouring. Co-designing with people with dementia.

The paper describes the process in detail. The Disrupting Dementia tartan project shows how co-design methods and tools can enable people living with dementia to make a significant contribution to society after diagnosis. Although dementia changes some aspects of a person, it does not affect their sense of self. Projects such as these not only inform designers, they also give a sense of inclusion and belonging to people with dementia.

From the abstract

This paper illustrates methods for co-designing with people living with dementia in developing a mass-produced product. The research was carried out in collaboration with Alzheimer Scotland using a range of disruptive design interventions. The aim was to break the cycle of we-formed opinions, mindsets, and ways-of-doing that remain unchallenged. The research has resulted in co-designed interventions to help change the perception of dementia.

People living with dementia can offer much to UK society after diagnosis. Co-designed activities and interventions help reconnect people recently diagnosed with dementia to help build their self-esteem, identity and dignity. Co-design processes help keep people with dementia connected to their community, thus delaying the need for formal support,

We worked collaboratively with over 130 people with dementia across Scotland in the co-design and development of a new tartan. The paper concludes with recommendations for researchers when co-designing with people living with dementia.

Altering design mindsets

Breaking Well-Formed Opinions and Mindsets by Designing with People Living with Dementia is a similar paper. You will need institutional access for a free read, or access via ResearchGate.

The paper reports on three design interventions using co-design activities with people diagnosed with dementia. The interventions offer innovations for co-designing with this group.

Inclusive tourism with universal design

Research on the business opportunities in accessible and inclusive tourism is extensive. However, the intent of this research is largely staying on the shelf. A mix of attitudes towards people with disability and a sense of “not knowing where to start” are likely reasons. But you can get inclusive tourism with universal design by co-designing with tourism operators.

” Surprisingly, many cases did not meet the minimal requirements for “older people” and “people in a wheelchair.” … but this result did function as an eye-opener”.

A hotel receptionist is talking to a man and woman across a reception counter. Inclusive tourism.

A research group in Belgium has devised a method to uncover business opportunities through universal design. Collaborating with 17 accommodation providers they came up with a seven step process to integrate universal design into their business model. The process is also a way to increase knowledge and understanding of diverse guests and their experiences.

The research group documented their project in a conference paper. It begins by explaining inclusive tourism as a right, a business opportunity and a challenge. They devised a method to use the potential of universal design as a “business transformer”.

Co-designing the 7 steps

  • Step 1: We created a literature-based universal design screening based on mindset, management and infrastructure.
  • Step 2: We tested and updated the screening in each of the 17 accommodation providers.
  • Step 3: We analysed the data for each business which was given to them in a report.
  • Step 4: The results were further processed with the participant, who decided on priorities.
  • Step 5: An action plan was devised based on step 4.
  • Step 6: A concise checklist and a guide with relevant information (tools).
  • Step 7: A re-evaluation of the business to assess the actual improvement after interventions. Unfortunately the COVID pandemic impacted this research and the last step was not possible with the downturn in tourism.
Hotel bedroom with polished floors, orange and red pillows on a couch and textured wallpaper

The title of the paper is Inclusive Tourism: Co-developing a Methodology to Uncover Business Opportunities through Universal Design. Scroll past the first paper in the conference proceedings to get to this one.

From the abstract

We describe a 2-year project where the possibilities of universal design were explored. The purpose was to structurally uncover and address potential business opportunities.

The method was based on: inclusive customer journey, linking mindset, management and infrastructure, and diverse user needs. We collaborated with seventeen accommodation providers and developed a seven-step process. The process integrates universal design into their business model.

The Disabled Tourist: a book

Here is the overview from the publisher of The Disabled Tourist: Navigating an Ableist Tourism World. It’s an academic text by Brielle Gillovic, Alison McIntosh and Simon Darcy.

This book addresses a growing demand to hear the authentic voices and understand the lived tourist experiences of people with disability. The latest volume in The Tourist Experience series challenges what is arguably an exclusionary, marginalising, discriminatory, and ableist (tourism) world.

Front cover of The Disabled Tourist.

By drawing attention to the ‘dis/’ in ‘disabled’, the authors provoke the need to change binary thinking about people who live with disability so that they may be ‘able’ to assume the role of tourist.

They engage critical tourism and critical disability studies, and their respective theories, perspectives, and debates, around, for instance, models of disability that shape conceptualisations and worldviews, inclusive research and enabling language, and the ethics of care.

These are pivotal to dismantling normative structures to enable a more inclusive, equitable, and socially just tourist experience that promotes a more independent and dignified tourism world for people with disability.

Tourism and Disability: Book review

A woman in a yellow jacket is being assisted onto the tour bus by two men up a ramp.

Tourism and Disability is a new book addressing the existing  challenges and opportunities related to tourism for people with disability. The Booktopia review describes this as an underdeveloped and underestimated niche market. While there is a larger market for family group travel, there is also a market for disability-specific tourism products. 

The book examines the strategies, policies, and initiatives at regional, national, and international levels. The aim is to foster the development of accessible tourism.  It examines the different social, cultural, legal, and information/interactive barriers to inclusion. The book’s focus is on the distinctive travel demands of people with disability and how their needs differ from the preferences of travellers without disability. 

The various chapters provide a multidisciplinary approach to the topic covering management, economics, and statistical analysis. This makes it useful for academics and practitioners alike. 

The Title of the book is Tourism and Disability: An economic and managerial perspective. Published by SpringerLink you can purchase individual chapters online. The book is also available from other suppliers. The editors and most contributors are based in Europe where tourism is a key part of the European economy. 

Front cover of Tourism and Disability.

Who do we include in co-design?

Traffic light icon with Problem in red, Analysis in Yellow, and Solution in Green. Academics talk about “vulnerable groups” based on ethics approval language. But what they mean is, people who have difficulty participating because they have a disability, illness, or some other condition. Indeed, some ethics requirements are so protective of “vulnerable groups” that they make it difficult to include them from research projects. Consequently their voices are silenced. So how do we include them in co-design and when?

While co-design is the new buzz word, participatory design has been around in academia for many years. Involving communities in decision-making is now recognised as being responsive to community needs. That means going beyond a one-size-fits-all approach to design. 

Participatory design

Participatory design, or co-design, is about genuine inclusion. That is, not just informing the design, but being participants in the design process. However, involving people with complex needs poses some challenges. It’s easy to make assumptions about their capacity to participate and collaborate. However, this comes down to the way the participation process is designed. 

Participatory design and the inclusion of vulnerable groups is the topic of an article from Finland. They use three projects to compare how participatory design might work best. The first explored co-design activities with people with intellectual disabilities living in supported housing. The second focused on culturally diverse young people experiencing crisis situations. The third dealt with nursing students with learning disabilities adapting to work in the health sector.

Challenges and power dynamics

The article covers the challenges, the power dynamics and their methodology. Each of the three projects is documented in detail. The findings show some similarities between the projects, but when it came to users, there were different outcomes and processes. Participatory design became more challenging when there were more pronounced differences in power dynamics.

These three projects provide good information for involving vulnerable groups in participatory design processes. Questions of equality and genuine inclusion is about both the design activities and how the entire project is planned. 

The title of the article is, Whom do we include and when? participatory design with vulnerable groups

From the abstract

This article makes three contributions to participatory design (PD) research and practice with vulnerable groups:

    1. A framework for understanding stakeholder engagement over the course of a PD project.
    2. Approaches to making user engagement and PD activities more inclusive.
    3. An analysis of how the design and power dynamics of PD projects affect vulnerable groups’ participation.

A map of engagement evaluates stakeholder involvement from initial problem definition to design outcome. 

The first looks at codesign activities to support decision-making in the context of intellectual disabilities. The second looks at culturally diverse youth navigating crisis without adequate assistance from public services. The third examines nursing students adapting to work in the health sector without accommodations for learning disabilities.

Comparing the projects reveals patterns in project planning and execution, and in stakeholder relationships. The article analyses how users are defined, engaged and supported in PD; how proxies shape vulnerable groups’ involvement and PD projects as a whole; and opportunities for greater inclusion when the entire PD project is taken into account.

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