Diversity and inclusion: not the same thing

The feet of two dancers. The woman is wearing red and white shoes and the man regular black shoes“Diversity is being asked to the party; inclusion is being asked to dance.” This is a great quote from Verna Myers. She is referring to the workplace and the employment and advancement of women and people of colour. It is relevant to all other groups because diversity and inclusion are both part of the movement for more inclusive and equitable societies.

The Harvard Business Review discusses this issue in Diversity doesn’t stick without inclusion. It is one thing to have a diverse population, but that doesn’t mean equity or inclusion will automatically follow. Diversity and inclusion are often lumped together in the employment context. They are assumed to be the same thing. But this is not the case.

In the workplace, diversity equals representation. Attracting diverse talent requires full participation to foster innovation and growth. This is inclusion. Getting diverse talent is one thing, including them fully is another. 

Diversity & Inclusion: Start Here

A hand-drawn graphic with faces of bright colours with big eyes. They are grouped in a bunch.

The Commons Social Change Library is about social change and driving social movements in Australia. While the context of their guide is about driving social change, most of the information is applicable in any situation. 

The Diversity & Inclusion: Start Here guide introduces key concepts and links to other resources. The key point is that inclusion is a social change movement and we can all do our part by including marginalised people in our ranks. That’s whether it’s the workforce, our local sporting team or our social change campaigns.

Carly Findlay is a disability activist who reminds us that disability is part of diversity. Carly’s video explains her experience. Judy Heumann’s TED talk is also worth a look. 

Kimberlé Crenshaw’s TED talk, The urgency of intersectionality is about race and gender bias. 

Kaytee Ray-Riek discusses marginalisation across the spectrum and ways of building trust and encouraging inclusive practice.  

Organisers of social justice events sometimes forget the basics of inclusion. Make your social justice event accessible spells out how to do it. 

Before people can get to an event they usually need information. The Internet is usually the first stop. So it’s important to Improve your website accessibility

There are many more resources on this website – you don’t need to be a campaigner to benefit from them. 

Brightly coloured books on a bookshelf with titles that represent social change.

The Commons Social Change Library is a not for profit organisation committed to educating for community action. They collect, curate and distribute the key lessons and resources of progressive movements around Australia and across the globe.

Editor’s note: I co-wrote a paper on inclusion being something where you have to wait for the “mainstream” group to invite you in. Inclusiveness is something that is present, it is happening now. You can see the slideshow version too which has some explanatory graphics.

Easy Read Disability Strategy

Front cover of Easy Read Disability Strategy.The National Disability Insurance Agency (NDIA) has an Easy Read guide to the Disability Strategy 2021-2031. However, you need good reading and web navigation skills to get to it. The information is spaced out over 44 pages in the PDF version. 

The key objective of the strategy is about living a life you want to live. The goals are:

      1. Working and earning money
      2. Inclusive homes and communities – living where you want to live
      3. Rights for fair treatment and feeling safe
      4. Getting support as an individual and to be part of the community
      5. Being independent
      6. Learning and getting skills
      7. Access to health services and enjoying life
      8. More inclusive community attitudes
      9. Getting the outcomes we want by working together

The text only Easy Read Word document is on the Disability Gateway website.

The NDIS website has two other reports:

Home and Living consultation summary report

Support for Decision Making consultation summary report  

There are Easy Read versions of the reports and a videos with Auslan if you scroll down the each report page. 

There is also an Easy Read version of the UN Convention on the Rights of Persons with Disability

 

Universal design and cognitive accessibility

Partial view of a bronze statue of a man with his head in his hand. It represents thinking. Universal design for cognitive accessibility.Universal design is most commonly associated with the built environment. This is where the physical barriers to inclusion are most visible. But the concept of universal design goes beyond this to include cognitive accessibility.

Emily Steel writes a concise article on how universal design informs cognitive accessibility standards. There are many types of cognitive disability and it would be difficult to have separate standards for each one. So the working group has adopted the Universal Design for Learning framework to promote better design for all people.

Brightly coloured strips lay on top of each other, each one with the day of the week. Universal design for cognitive accessibility.The working group has published two standards since forming in 2015. The first provides guidelines for the design of products to support daily time management. The second is about the design and development of systems, products, services and built environments. A third standard is under development. This one sets out the requirements for reporting the cognitive accessibility of products and systems. 

As an international standard, working group participants come from around the world and include people with diverse cognition. Online meetings replaced the face to face workshops during the COVID pandemic. 

The article, published in Design for All India Newsletter, provides more detail about how the group works. It’s Article 2 in the October 2021 edition. The online Newsletter is produced in Verdana Bold and is fully justified and also includes a lot of Italicised text. This is not a universally designed publication. 

You can directly download the article titled, Universal design informs cognitive accessibility standards

Interested in this work?

The working group is keen to integrate lived experiences into the guidelines and any revisions. If you are interested in this work you can contact the Technical Committee Secretariat

Dr Emily Steel is the Australian delegate on the International Standards Organization (ISO) cognitive accessibility working group. She also conducted a workshop at the Australian Universal Design Conference UD2021. Dr Steel is also a CUDA board member.

Standard for accessible standards

Emily Steel pointing to the 11 Goals of the Guide on the presentation slide.All standards should ensure they meet the goals of the UN Convention on the Rights of Persons with Disabilities. So there is a Standard for developing Standards documents to be inclusive, accessible and universally designed. ISO Guide 71 shows how to do this. On day two of UD2021 Conference, Emily Steel explained how the international Standard for accessible Standards documents. 

The international standard has done all the thinking for us. The document guides standards committees as they write and update standards for their specific industry or profession. It is also useful for any committee developing guides or standards for accessibility and universal design. So, we don’t have to re-invent the wheel. 

The Guide’s use of the the term “accessibility” relates closely to universal design. “The extent to which products, systems, services, environments and facilities can be used by people from a population with the widest range of characteristics and capabilities to achieve a specified goal in a specified context of use”. 

ISO Guide 71 Accessibility Goals

The Guide has two main parts. The first describes user needs and 11 accessibility goals. These are similar to the 8 Goals of Universal Design. The second describes human characteristics and abilities, and design considerations. 

      1. Suitability for the widest range of users
      2. Conformity with user expectations
      3. Support for individualisation
      4. Approachability
      5. Perceivability
      6. Understandability
      7. Controllability
      8. Usability
      9. Error tolerance
      10. Equitable use
      11. Compatibility with other systems. 

Guide 71 was adapted by the European standards authority and is titled, CEN-CENELEC Guide 6. It is basically the same information. You can see a previous post about this document. 

There is also an Accessibility Masterlist by Gregg Vanderheiden. It’s a collaborative resource for understanding access features in digital applications. Also worth a look.

 

Videos more effective than policy

A brightly coloured film strip with the word Video on it.Policy is often seen as the way to make change. But when it comes to being inclusive it hasn’t worked very well. If policies, codes and papers are not accessible to all stakeholders, how can we create inclusion? Janice Rieger says videos are more effective than policy.

The title of her short paper and workshop is, Reframing Universal Design: Creating Short Videos for Inclusion. Her research provides insights on how videos travel and reach different audiences. This results in a significant impact and enacted change and informed policy. Dr Rieger concludes that “video impacts more than policies, codes and papers ever can”. 

Here is an extract from her paper:

“Video is a visceral medium, offering the opportunity to reframe universal design practice and education. It captures movements and can be co-created with people with disabilities. Videos co-created for inclusion encourage detailed and rich embodied knowledge and experiences because information is prompted by association with one’s surroundings. Significantly, videos have the capacity to excavate personalized knowledge of those with different abilities and uncover systems of exclusion that are often hidden or naturalized, and shamedly rendered invisible through policies, codes and papers.”

In a short video titled, Wandering on the Braille Trail, Sarah Boulton explains how she navigates the environment using her white cane and tactile ground markers.

 

Universal design & Sustainable Development Goals

All 17 icons for the SDGs in an infographic. Universal design is now a key element of the SDG as a means of including people with disability. UN member states are required to report on disability and inclusion within their actions on the SDG. They will need to show measurable actions not just policies. Sustainable Development Goals (SDG) are a blueprint to achieve a more sustainable future for all. The SDG are interconnected and the aim is to “leave no one behind”.

Sweden’s Ministry of Participation virtual event titled, The principle of universal design as a tool for leaving no-one behind provides a good background in how universal design links with the SDG. The video is an hour. At the five minute mark a UN rep explains the UN position. The second speaker listed was not able to join and the moderator spoke about disability and inclusion being at the heart of the SDG. At the 22-23 minute mark there is an interesting presentation on the convergence of UD and the SDG. Data graphics clearly explain why universal design is needed. The final speaker has a short session on a city project which is at the 51 minute mark.

Tip: The video is captioned so you can select a faster speed in the settings to read and hear. You will note that the closed captioning covers some other subtitling. This was the automatic live captioning that is a Zoom option. The closed captioning added later “tidies up” the auto captions and uses a larger font. 

SDGs and disability

Infographic of the five SDGs relating to disability.The Australian Disability and Development Consortium explains the concepts simply. It picks out the five key SDGs that relate specifically to disability. The Australian Department of Foreign Affairs and Trade has a web page with Australia’s commitments to the SDG. The SDG agenda is not just about government but all sectors of society including business. The UN has an infographic poster that spells out the specific goals relating to disability. 

  • Goal 4 is about education
  • Goal 8 is about employment
  • Goal 10 is about reducing inequality
  • Goal 11 is accessible cities, transport and public spaces
  • Goal 17 is about data and data collection

Counting costs that don’t count

Road workers in hi-vis vests are laying bitumen. Counting costs don't count.
Workers repairing the road

Ever wondered why economic arguments seem to fall on stony ground even when they’ve been well researched and even asked for? Seems politicians’ personal experience counts more when decisions are being made. A Norwegian researcher wanted to find out why road-building priorities diverge from those suggested by cost-benefit analysis. It is likely that many other policy decisions are made in a similar way, not just road investments. That’s why sometimes counting costs don’t count.

Here is an excerpt from the findings about why factors other than cost criteria mean that counting costs don’t count:

Political institutions have created a kind of gift relationship in the road sector, with the state as donor and municipalities as recipients.

To the extent that the state cannot scrutinize all assumptions and calculations of traffic, costs and benefits, an information asymmetry arises and favours the local receivers.

In cases of local/national conflict of interest, some key politicians and other stakeholders at the donor side either have their own agendas (such as campaigning), or their loyalty is with the recipient rather than the donor (society).

It seems reasonable that elected representatives are less likely to vote in accordance with the benefit/cost ratios of projects the more sceptical they are to the method of CBA. When sceptical, they are apt to look for alternative decision support, even if several studies have found CBA results to be quite robust.

The intention has not been to argue that the benefit/cost ratio should be decisive when setting priorities among projects on classified roads, but rather to highlight circumstances that tend to push CBA results into the background. The principle of choosing projects with high benefit/cost ratio may be supplemented by so many other assessment criteria that the difference between professional and political judgement is dissolved.”

The title of the article is, Why don’t cost-benefit results count for more? The case of Norwegian road investment priorities. Published in Urban, Planning and Transport Research an open access article.

Abstract:

The starting point is that the benefit/cost ratio is virtually uncorrelated to the likelihood of a Norwegian classified road project entering the list of investments selected for the National Transport Plan. The purpose of the article is to explain what pushes cost-benefit results into the background in the prioritization process.

The reasons for their downgrading point to mechanisms that are at work not only in Norway. Explanatory factors are searched for in incentives for cost-ineffective action among planners, bureaucrats and national politicians, respectively, as well as in features of the planning process and the political system.

New data are used to show that the road experts’ list of prioritized projects changes little after submission to the national politicians, suggesting that the Norwegian Public Roads Administration puts little emphasis on its own cost-benefit calculations. Besides, it is shown that the petroleum revenues of the state do not provide a strong reason for neglecting cost-benefit accounts.

The overall contribution of the article is to offer a comprehensive explanation why professional and political authorities in Norway set road-building priorities diverging massively from those suggested by cost-benefit analysis.

Diversity, Disability and Disbelief

A young man stands between library book shelves. He has a large book open in his hands. Diversity, disability and disbelief.Diversity, disability and disbelief jointly create barriers to creating an inclusive workplace. When the disability isn’t obvious, disbelief by others becomes another barrier to inclusion. Owning up and spelling out what you need is painful enough. So not being believed is the final straw. If you have a mental health condition this can be devastating. A personal story by a library employee highlights how attitudes are just as important as any physical workplace accommodations.

The title of the article is, The Impact of Disbelief: On Being a Library Employee with a Disability. You will need institutional access for a free read or ask for a free copy from ResearchGate.

From the abstract:

As a library employee with a hidden disability (post-traumatic stress disorder [PTSD]), just going through the accommodation process is difficult. The process is invasive and includes an in-depth interview with a disability specialist who knows nothing about you.

The process also requires a letter from a care provider detailing both the accommodation and why it is necessary. So, the person must first be diagnosed by a medical professional or a psychiatrist. The process is made more difficult and painful when supervisors and administrators do not recognize the validity of the condition for which the accommodation is needed.

This paper explores the accommodation process, its impact on the employee, and the politics and psychology of disbelief and suspicion. Through the lens of personal experience and reflection, I will explore how the library can be a place of ableist views that limit the abilities and potential of employees with disabilities. I will also provide guidelines for combating ableism in the library workplace.

There is a companion article Disability, the Silent D in Diversity, which gives the library experience of wanting to have diversity, but not wanting it to be too difficult.

Diversity and inclusion: why don’t they care?

A bearded man in a white shirt leans back from his desk and computer. He is laughing and has a sticker on his forehead that reads, be happy.When the terms ‘diversity’ and ‘inclusion’ fall on certain ears, it raises hackles and is considered a big problem. The Fifth Estate has published a very interesting article titled, Why people hate on diversity and inclusion (and how to get them not to). It’s by the CEO of Diversity Council Australia, Lisa Annese. She quotes David Gaider, “Privilege is when you think something is not a problem because it’s not a problem to you personally.”

Annese discusses the research that shows the more diverse a company’s workforce, the more satisfied the whole workplace is. And that leads to improved productivity. It should also lead to better service for their customers. They are a diverse lot too!

What does inclusion actually mean?

Graphic of stick people in various poses with the caption, "Inclusiveness,, looking at everyone. What does inclusion mean?Kat Holmes found the origin of include was to “shut in”. Similarly, the origin of exclude was to “shut out”. Maybe “inclusion” is not the right word for describing the inclusion of everyone in products, places and things. So what does inclusion actually mean?

Holmes explains in the video below, that the topic of diversity is discussed as gender, sexual orientation, religious belief, ethnicity, and race. Disability is usually mentioned last in the list, if at all. “But it is the one category that transcends all other categories”, she says. “Abilities are constantly changing”. 

Holmes’ offers an alternative way for designers to consider diversity, and is based on her book, Mismatch: How Inclusion Shapes Design. An engaging talk for all upcoming designers in any field. And not just professional designers either. We all design things every day, so we all have a role to play. 

Editor’s Note: I discussed this issue in a 2009 paper. Inclusion requires those who are already included to invite into the group those who are excluded. Semantics are important. What we need is inclusiveness – that’s where inclusion has already happened and there are no exclusions. Inclusion is a futuristic concept – it’s something we are striving for. It it were achieved, no further discussion would be needed.

Language Guide for Journalists and Others

Front cover of the language guide for journalists.Acceptable language regarding people with disability has changed, and standards continue to adapt as understanding and perceptions evolve. Many terms once widely used are now considered to imply inferiority and serve to marginalise people. The National Center on Disability and Journalism updated their Style Guide in 2021. It provides alternatives to terms still seen too often in the media.

The guide also gives an explanation for why some terms are considered offensive, derogatory, and/or marginalising. Unless the context of the story relates to the disability, it might not be necessary to point to any kind of impairment. And think about illustrations and photos too.

Here are a few common terms to avoid:

Afflicted with: Implies that a person with a disability is suffering or has a reduced quality of life.

Able-bodied: Refers to a person who does not have a disability. The term implies that all people with disabilities lack “able bodies” or the ability to use their bodies well. Use non-disabled. Use person without disability. 

Confined to a wheelchair: Describes a person only in relationship to a piece of equipment designed to liberate rather than confine. Use wheelchair user.

Stricken with, suffers from, victim of: These terms carry the assumption that a person with a disability is suffering or has a reduced quality of life. Use living with…

Demented: Refer to someone as having dementia only if the information is relevant to the story and a formal diagnosis has been made. Use “a person with dementia” or “a person living with dementia.” Do not use senile.

Special needs: This can be problematic where there are government funded programs for “special schools”. The term is considered stigmatising – use “functional needs” or describe the specific issue or disability. Everyone has needs.

Inclusive illustrations: What’s in a face?

Four male and female couples with different skin tones and face shapes. Inclusive illustrations.It’s often someone other than the writer of an article that chooses a picture to go with it. Usually this is a stock photo that might not convey the intended message. Stock photos of older people are often patronising. They show young and old hands, or a young person looking lovingly at an older person. Most illustrations are far from inclusive. 

Similarly, stock photos of wheelchair users often use non-disabled models and not real wheelchair users. An article and guideline from an illustrator discusses how to add diversity to your brand whether an organisation, service or a product. The title of the article is, Your Face Here: Creating illustration guidelines for a more inclusive visual identity.

Whether being used to distill complex messages or add a touch of whimsy, illustration is one piece that makes up a company’s visual brand identity.”  

Also have a look at these stock photos of older people and see what you think. Note that they are all white and active – no diversity here. 

Do’s and Don’ts of disability language

front cover of the What Do I Say? booklet.Language etiquette around the topic of disability seems to get some people tongue-tied. Fear of offending often results in just that. But so does using outmoded terms such as “handicapped”. So what are the do’s and don’ts of terminology and language use?

People with Disability Australia (PWDA) have a great guide. It gives a context to the importance of language and how it relates to dignity and respect. It is based on the social model of disability. That is, disability is not an individual medical problem. Disablement is the result of an environment filled with physical and social barriers.

Should you say “People with disability” or “disabled person?” It depends on the individual. However, government policies use the person first version – people with disability. The one to avoid is “the disabled” because it dismisses people and puts this diverse group into one category. The same can be said for “the elderly”. 

Adaptations of the word disability, or euphemisms, should not be used either. Terms such as differently-abled, special needs, or handicapable sound clever but are demeaning. Other terms such as “all abilities” suggests the opposite – a special place for people with disability. If it is inclusive it shouldn’t need a “special” title. However, accessible features can be included in any descriptions of the place or service.

The PWDA guide gives an overview of ableist language and its impact, some advice on reporting on disability, and a list of words and recommended alternatives. 

Disability is not about inspiration

One other important aspect of reporting on disability is what the late Stella Young described as “inspriation porn” in an entertaining TED talk. The portrayal of a person doing everyday things, or achieving a goal, as being inspiring gets the no-go signal. People with disability are often portrayed in the media as being “sufferers” or “heroes”. Rarely is either the case.