The value of home modifications

A white Labrador dog sleeps behind the couch with a view to an alfresco with level access. Value of home modifications.Quantifying the value of home modifications is a tricky business. It depends on who is doing the valuing. Governments look immediately to costs and benefits while home occupants look at their quality of life. Research findings of cost benefits and improved quality of life have done little to change either policy or home design. So we have yet another research article. 

Jesse Abraham’s paper points to our ageing population and the lack of suitable housing for later life. It’s time for America’s existing housing to be made safe and accessible for ageing in place, says Abraham. The healthcare cost of falls is over $50 billion a year in the US. And that doesn’t count the quality of life costs to individuals and the inconvenience to families. 

Abraham looks at the current evidence and takes an economic approach to the issues. That means there are a few equations and tables in his paper. His key argument is that there are cost efficiencies for society and for the government to provide subsidies for home modifications. 

Abraham is curious that so few older people think about modifying their home in preparation for ageing. Usually it’s done as a reaction to a medical event and then done last minute. This is when the family is already coping with other healthcare needs. 

Australian research by Carnemolla and Bridge underpins much of the work in this paper. Abraham cites three of their papers using their map of the evidence. He acknowledges that there are other quantifiable benefits such as improvements in physical and mental wellbeing. 

A government incentive

The key point in the paper is that the cost of updating homes with accessibility features is a cost effective healthcare prevention. Given that older people are reluctant to take steps for their own wellbeing there is much to gain by providing a financial incentive. If governments were to pay half they would still be saving healthcare costs. 

Abraham says that this is a difficult argument to prosecute because there will be costs for those who may never benefit. Perhaps if he had taken a universal design perspective he would see that benefits go beyond older people.

The title of the article is, The Cost Efficiency of Home Modifications to Reduce Healthcare Costs. If you skip the technical bits, this is a relatively easy read. It has a lot of useful information on this topic and good references. 

Humanity is neurodiverse

A brightly coloured and glowing depiction of the brain in action. Humanity is neurodiverse.Comparing people to potatoes is a good way to explain diversity in the workplace. Although potatoes come in thousands of different varieties, shops give us the same regular sample to choose from. The same applies to our workplaces – we choose the same sample of the population. And if an employee doesn’t think or act like the majority, they are “weeded” out. Weeding out is often unintentional. That’s because employers haven’t yet worked out that humanity is neurodiverse. 

The term neurodiverse is often applied to people who are autistic. This is where stereotypes arise. The extra bright person who thinks differently to those around them is just one. Neurodiversity includes people with ADHD, dyslexia, obsessive compulsive disorder, and other cognitive conditions.

According to Kat Crewes we have seen a good deal of progress in workplaces. She says that research from EY suggest that neurodivergent people make up 20 per cent of the population. Yet many can’t get jobs or jobs they could excel in. 

Larger corporations are realising the benefits of designing workplaces that include people who are neurodiverse. Crewes mentions Hewlett Packard, Microsoft, and Deloitte. 

After hiring 100 neurodiverse people, EY found that their problem solving and creativity helped their business. A similar story for Hewlett Packard’s software development. But it is a big risk for someone to say they are autistic or neurodiverse. 

Designing the workplace

Many workplaces are getting up to speed with physical access. But we have to consider other design aspects such as sound and light sensitivity. Neuro-inclusivity requires a more nuanced approach. That includes giving neurodiverse people the opportunity to share their experiences. 

Crewes says that defining what accessibility means for a neurodivergent person is the first step. That means creating a safe place to speak up. She also explains more about people with ADHD and other cognitive conditions. The spectrum includes all genders, cultural backgrounds, and ages. They are working in every type of profession and organisation. 

Icons representing permanent, temporary, situational and cognitive conditions in the workplace. Humanity is neurodiverse.
Image from Aurecon based on Microsoft Design Toolkit

We are a long way from accepting people who are neurodiverse into the workplace. This exclusion is often the result of failing to adjust. It does take effort to design for inclusion. And it is not all one way. Embedding neurodivergent people within the workplace is a learning experience for everyone.

The Kat Crewes’ Aurecon article is titled, Designing for a neurodiverse workplace. The second half of the article has the information on workplace design. 

Hidden Talent- Autism at Work

A man stands with his back to the camera and is looking at lots of pieces of paper pinned to a whiteboard.You’re missing out by not hiring staff with autism. This is one of the points made in a FastCo article, about the ways to support staff with autism. It’s possible you already work with them now, but neither of you know.

Common behaviours are social ineptness, lack of eye contact and blunt remarks. The article gives a brief overview of some of the diverse ways autism presents, but care should be taken not to stereotype.

Many people with autism can focus for long time on a topic – if it interests them. Attention to detail and pattern recognition skills are often well used in technical occupations. Some have unique ways of viewing situations and can bring great insights to problem solving.

The article lists some of the ways to accommodate employees with autism, such as reducing environmental stimuli. Clear communication that doesn’t rely on social cues or facial expression are also recommended (isn’t this good for everyone?) The title of the article is, You’re missing out by not hiring autistic workers. It originally appeared in The Conversation.

See the Harvard Business Review article, Neurodiversity as a Competitive Advantage

Book review: Stories about the neurodiversity movement

Front cover of the book, Autisitic Community and the Neurodiversity Movement.The Commons Social Change website features a new book which is a collection of stories about the neurodiversity movement. The collection gathers the voices of both activists and academics. The introduction explains the approach to commissioning the chapters. 

The chapters are open access and the book title is: Autistic Community and the Neurodiversity Movement: Stories from the Frontline.

Introduction

The first book to bring together a collection of neurodiverse contributors to talk about events that shaped the movement, and which they themselves were involved with. Focuses on activists’ direct experience effecting change for people who identify as autistic rather than abstract accounts that reflect on autism’s social construction or essence.

Provides a one-stop shop for readers interested in the history and ideas of the neurodiversity movement and how these ideas have shaped production of expert and especially lay knowledge about autism. Gathers a collective of autistic activist/academic voices and engages in current theoretical debates around knowledge production and epistemic authority within (critical) research on autism.

From the abstract

This edited collection offers a historical overview of the autistic community and neurodiversity movement through first-hand accounts. Awareness and impact of the movement has grown, but misunderstandings persist. 

The book covers the terms neurodiversity and neurodiversity movement, the breadth of the movement. There is an overlap with and divergence from the medical model, and its emphasis on self-advocacy. 

Contents of the book

Introduction, Steven K. Kapp

Gaining Community

Historicizing Jim Sinclair’s “Don’t Mourn for Us”: A Cultural and Intellectual History of Neurodiversity’s First Manifesto, Sarah Pripas-Kapit

From Exclusion to Acceptance: Independent Living on the Autistic Spectrum, Martijn Dekker

Autistic People Against Neuroleptic Abuse, Dinah Murray

Autistics.Org and Finding Our Voices as an Activist Movement, Laura A. Tisoncik

Losing, Mel Baggs

Getting Heard

Neurodiversity.Com: A Decade of Advocacy. Kathleen Seidel

Autscape, Karen Leneh Buckle

The Autistic Genocide Clock, Meg Evans

Shifting the System: AASPIRE and the Loom of Science and Activism, Dora M. Raymaker

Out of Searching Comes New Vibrance, Sharon daVanport

Two Winding Parent Paths to Neurodiversity Advocacy, Carol Greenburg, Shannon Des Roches Rosa

Lobbying Autism’s Diagnostic Revision in the DSM-5, Steven K. Kapp, Ari Ne’eman

Torture in the Name of Treatment: The Mission to Stop the Shocks in the Age of Deinstitutionalization, Shain M. Neumeier, Lydia X. Z. Brown

Autonomy, the Critical Journal of Interdisciplinary Autism Studies, Larry Arnold

My Time with Autism Speaks, John Elder Robison

Covering the Politics of Neurodiversity: And Myself, Eric M. Garcia

“A Dream Deferred” No Longer: Backstory of the First Autism and Race Anthology, Morénike Giwa Onaiwu

Entering the Establishment?

Changing Paradigms: The Emergence of the Autism/Neurodiversity Manifesto, Monique Craine

From Protest to Taskforce, Dinah Murray

Critiques of the Neurodiversity Movement, Ginny Russell

Conclusion, Steven K. Kapp

Download Full Book
Autistic Community and the Neurodiversity Movement: Stories from the Frontline

The above text is reproduced from The Commons Social Change website. The book is also available on the SpringerLink website. 

Telling stories for inclusion at work

Many coloured heart shapes with black eyes and smiles indicate diversity. Telling stories for inclusion.When it comes to diversity and inclusion, economic arguments tend to fall flat.  For many, economic arguments are academic – just information. Storytelling on the other hand is personal and connects with people. It makes the situation real. Telling stories is also the way to learn from each other. An article in the Harvard Business Review tackles the topic of telling stories for inclusion.

Measuring the number of different categories of person in a company is also an academic pursuit. Scorecards, targets and business cases can measure numbers, but what do those numbers actually mean? Inclusion by mathematics is not likely to create empathy and understanding – the real game changers. But whose stories get told?

Stories from leaders are good, but stories from peers are better. The article gives examples where the workforce might be diverse, but it’s not inclusive. This is where nuanced conversations are needed. Leaders need to hear about the impact bias and exclusion actually has on employees. 

Creating safe spaces for storytelling is one way to find out how inclusive a workplace is. The article, How Sharing Our Stories Builds Inclusion gives more detail on this. 

Summary of article

“It’s time for the conversation around inclusion and diversity to take a human-centric approach. It’s not just about the numbers — it’s about the people. Storytelling, one of the most universal human experiences, gives us a rare chance to look through new lenses. And perspective-taking is a life skill, not just a workplace one.

Companies that prioritize inclusion will emerge from crisis stronger, and stories are one major vehicle to help them get there. Inclusion consultants Selena Rezvani and Stacey A. Gordon offer steps to implement a story-based approach to DEI where employees are encouraged to tell their stories, own them, and consider how they impact their day-to-day experiences at work. 

Can the construction industry be inclusive?

Two construction men sitting at a table look at a complex engineering diagram. The construction industry can be inclusive.There’s an assumption that you can’t be a construction worker if you have a disability. So it’s no use recruiting them. Yet this industry has its fair share of permanently injured workers. Many access consultants also have a disability, so the assumption doesn’t hold. Can the construction industry be inclusive? Yes

At last someone has joined the dots in The Fifth Estate article, Yes, wheelchair users can work in construction. Working in construction is not all about climbing ladders and working in confined spaces, says Jonathan Fritsch. The article is about seeing the opportunities for people with disability. The construction industry employs over one million people. There are many jobs that don’t require ladders and heavy lifting. And not every role is onsite. But like most recruiting companies, they place people with disability at the bottom of the employability scale. 

The full title of the article by Jonathan Fritsch is, Yes, wheelchair users can work in construction. Let’s see this as an opportunity.  

 

Queensland Government likes accessible housing

Facade of a large two storey home commonly called a McMansion. Queensland Government likes accessible housing.The Queensland Government is wasting no time in adopting access features for all new homes. The Government is preparing industry for the changes to the National Construction Code agreed by state building ministers. The Victorian Government is doing the same. 

The Queensland Government is keen to support industry and local government to transition to the new requirements. “This will make a real difference to the large number of people who struggle to find accessible housing”. 

The Victorian Government’s media release encourages all jurisdictions to adopt the changes. If all states and territories adopt the standard we should have 50% of housing stock with access features. The Minister for Planning said that it is time a regulatory standard for all housing in Australia. That’s because the voluntary solution hasn’t worked. 

There are more posts on the 20 years of campaigning by advocates in the Housing Design Policy section of this website. 

Why wouldn’t you?

Graphic of a purple house shape with green outline for a window and a door.The catch cry “Why wouldn’t you? is the three word tag used in promotional material to promote universal design in housing. A builder, and a building designer are calling their collaboration Project Silver

The six minute video (below) puts the case very well. It includes contributions from different people, including the mayor of the Sunshine Coast. It’s worth a watch. Another builder in Townsville is telling the same story

Editor’s comment: The builder claims Silver Level costs an additional $3000 to potentially save $60,000. Possibly it is another way to sell an “extra” and therefore the customer pays over and above the actual cost of the features.

 

Understanding typefaces for accessibility

Example of typefaces images.
Image courtesy Medium

More people have difficulty reading than most people think. Low vision, dyslexia, low literacy, and learning disabilities are some of the reasons. Previous posts have covered the topic of plain language and Easy Read. But choosing the right typeface is also important for communicating successfully. Without understanding typefaces, things like colour contrast will make little difference. 

Gareth Ford Williams explains key elements in his article. He says claims of some typefaces being more accessible than others are not backed up by evidence. 

lower case 'i' and upper case 'L' and '1' look the same.
Gill Sans upper case ‘i’, lower case ‘L’ and ‘1’

Different typefaces provide different styles in how letters are formed. For example, Gill Sans upper case ‘i’ and lower case ”l’ and ‘1’ look the same. However, in Verdana they are distinct from each other. 

Mirroring is something than young children do. For example, muddling ‘b’ and ‘d’ and ‘p’ and ‘q’. However, the letter flipping effect can be lifelong. 

Spacing or ‘visual crowding’ is another consideration. Some typefaces have the same space between letters regardless of letter width. Helvetica is one example. Calibri has different spacing between letters. A wide letter like m has more space around it than an i or a t. In some cases the letters can look joined up such as ‘ol’ or ‘vv’. Tight letter spacing is not great for people with good vision either. 

The article has several good examples to illustrate points made. The title is, A Guide to Understanding What Makes a Typeface Accessible. Williams makes the point that there is no one right typeface. As always, it depends on your audience. However, this article provides great insights into yet another aspect of communicating accessibly. The article is technical in some places.

Thanks to Dawn Campbell on Linked In for alerting me to this article.

Audio Describing for TV and Movies

Cinema packs of popcorn. Audio describing is good for everyone.The art of audio describing has improved considerably since it was first trialled some sixteen or so years ago. Australian produced television programs signal when a program is audio described with a distinct sound. And more movies and stage shows are offering this option. Audio describing (AD) is designed for people with vision impairment, but could sighted people benefit too? 

A group of researchers looked at two questions – the quality of the AD, and the additional benefit to people who are sighted. Currently, the AD process sits outside the creative process. It’s added later in a similar way to captions and subtitles. However, lack of integration can cause misunderstandings about the plot and the characters. 

The research group carried out an experiment with people with vision impairment and sighted people. A short film was shown with enhanced sound effects. For example, bed spring sounds for someone sitting on a bed. Their article explains in more detail and applies the seven principles of universal design to their method. 

In conclusion, the study showed that sound design – that is, non-verbal cues – can replace verbal cues in some films. The enhanced audio description was accepted by both vision impaired and sighted audiences. One sighted participant said that because the AD was integrated into the film it didn’t feel like they were listening to AD. 

It’s universal design!

The article shows the potential for everyone to have an enhanced experience at the cinema and in their lounge rooms. It indicates a strong case for considering AD in the creative process and not leaving it as an afterthought. Integration of AD into the design process is another example of universal design. 

The tile of the article is, Enhancing Audio Description: Inclusive Cinematic Experiences Through Sound Design. The introductory page has both and abstract and a lay summary. Be prepared for a long but easy read. 

Lay summary

Audio Description (AD) is a third person commentary added to film and television productions to make them accessible for visually impaired audiences. Traditionally, AD is added to productions after they have been completed, meaning that the creative and accessibility teams do not work together to produce the accessible version of the production.

This paper explores an alternative to traditional AD, called Enhanced Audio Description (EAD), whose methods are integrated to filmmaking workflows. EAD moves away from a focus on verbal descriptions and instead focuses on sound design strategies. In EAD the traditional third person commentary is replaced by the combination of three techniques.

The first is the addition of sound effects to provide information on actions, convey abstract scenes as well as indicate time, place, and the presence of characters. The second is the use of binaural audio (3D audio over headphones) to convey the position of characters and objects portrayed on the screen. Finally, first-person narration is used to portray feelings, gestures, colours as well as certain actions.

The application of EAD methods results in a form of accessibility that can cater for both visually impaired and sighted audiences, championing inclusive cinematic experiences. Focus groups with audiences of visually impaired and sighted people demonstrated the potential of the format to be widely enjoyed, and to be offered alongside traditional Audio Description (AD) in order to provide accessible experiences which cater for different aesthetic preferences.

 

European built environment access standard

CEN CENELEC logo in black and white for the built environment access standard.European Commission has published a built environment standard for accessibility. It describes basic, common minimum functional requirements using universal design principles. The accessibility and usability requirements relate to the design, construction, refurbishment and maintenance of indoor and outdoor environments. 

The standard was based on consensus between relevant stakeholders. The CEN-CENELEC webpage has more detail about the standard and what it contains. The document is titled, EN 17210:2021 Accessibility and usability of the built environment – Functional requirements

There is a related document about public procurement to support accessibility in the built environment. This is also part of their Active and Health Ageing strategy.

The CEN-CENELEC Protocol on accessibility following a Design for All approach in standardization outlines the procedure to help technical bodies decide whether accessibility, with a Design for All approach, should be addressed when developing or revising a standardization deliverable.

The European Committee for Standardization is one of three European Standardization Organizations (together with CENELEC and ETSI). They are officially recognized as being responsible for developing and defining voluntary standards at European level.

The websites are not the easiest to navigate but there is more information if you care to start searching their standards. 

Compliance, heritage and accessibility: A case study

A busy street in Sri Lanka with a tuk tuk and pedestrians. Compliance, heritage and accessibility. War damages buildings and transport systems. It causes them to fall into disrepair and become inaccessible. Sri Lanka is one such example. But what to do? Sri Lanka is committed to disability access in their re-building process. However, they have a complex web of building compliance, heritage and accessibility to navigate. A universal design training program for built environment practitioners is a good start. 

Penny Galbraith summarises the training process and the historical context in an article. She explains how the technical training was devised and delivered. Workshop scenarios were key to the success of the project. 

More than 80 delegates attended the three day training. They comprised technical staff responsible for compliance with regulations, architects, engineers, town planners, transport operators and civil society organisations. The aim was for participants to understand the concept of universal design as a means of problem-solving the issues. This is because a strict compliance approach was not going to ensure accessibility. Consequently, the emphasis of the training was on design not regulation. 

War also increases the level of disability in the population. Many injured people are excluded from work and education. Superstition about disability as a form of punishment for wrongdoing in a previous life exacerbates the discrimination and stigma. While an accessible built environment can’t change attitudes, it can minimise barriers to work, a social life, and education. 

The intent of Sri Lanka’s accessibility regulations is commendable. However, in practical terms, the regulations and regulatory process make this difficult to achieve and compliance levels are low. Universal design thinking encourages creative problem-solving which involves users in the design process. 

Playing catch-up with investment also allows an opportunity to avoid mistakes and to learn from the journey travelled by other countries towards removing barriers in the built environment. 

The title of the article is, A universal design approach to addressing the inaccessibility and disrepair of the built environment in Sri Lanka. It is downloadable from the Design for All India Newsletter, October 2021 (article 3). Note that this publication uses a large bold font which is not easy on the eye. 

Abstract

The combination of accessibility regulations, a rich architectural and cultural history, and recent civil war poses considerable challenges for remedying a damaged and run-down built environment. Sri Lanka has a commitment to removing barriers in the built environment for people with disability and as such has a set of robust regulations that are prescriptive and retrospective. However, drafting and translation errors have made it difficult to achieve these objectives. Consequently, there is a poor level of understanding and compliance with regulations leading to a seemingly intractable combination of difficulties.

A project funded through the aid program of the Australian Department of Foreign Affairs sought to overcome these difficulties through a training program. It was decided that a robust understanding of universal design principles would provide participants with different ways of thinking about the problems and solutions. Lessons from Australia were shared including whole-of-journey transport planning. Community and industry engagement was a central theme to taking more strategic and universal design approach to solving complex problems.

Penny Galbraith is a director of CUDA.

 

Museums, exhibitions and universal design

One of the galleries at the Victoria and Albert Museum in London. Museums and exhibitions.Museums and exhibitions help us understand the world we live in and give context to our lives. Making the content of museums available to everyone is an important part of the work of exhibition designers.

The Helen Hamlyn Centre conducted research to assist with this. Their findings and conclusions are reported in their articleUsing Design Thinking to Develop New Methods of Inclusive Exhibition Making

The project identified clear guidelines as a necessary factor in a universal approach to exhibition design. The key factor is encouraging designers to be creative and experimental with their designs. Making designers feel like they obliged to follow what they consider stifling requirements is counterproductive. It’s also about co-design and a dialogue between users, the institution and the design team. 

The article is from the proceedings of the UDHEIT 2018 conference held in Dublin, Ireland, an open access publication.

Arts Access Australia also commissioned a report in 2011, Access and Audience Development in Australia: Museums and Galleries research project.

Inclusive Historic Houses

A white painted two storey home with white pillars all round supporting the verandah.Some good advice from a Masters dissertation on how to create inclusive Historic House stories and exhibits. The emphasis is on overcoming the practice of relating the dominant white male narrative. The dissertation discusses issues of diversity of ethnicity, socio-economic status and belief systems.

Seeking stories of forgotten or overlooked people who occupied the house is one way to address the prevailing white male narrative. Gaston advises:

    • Include diverse perspectives and narratives
    • Connect the past to the present
    • Build with shared authority
    • Make the human connection 

The title of the dissertation is, If These Walls Could Talk: Best Practices for Storytelling in Historic House Museums, by Hannah M Gaston. 

Museum has integrated universal design

A distant aerial view of the huge arch and the park and landscapingIntegrating universal design was a priority in the redesigning of the Gateway Arch Museum in St Louis. A gently sloping plaza, architecturally integrated ramps, and engaging exhibitions. An article in the St Louis online news gives a good run-down of the features.

The universal design concepts allow people to interact with exhibits rather than just look at them. The touchable exhibits are a great success, and there are other enhancements for people with disability. The arch and the park are now easier to access by foot or bike as well. The Archinet website features a brief overview by the architects, and pictures of the museum. The timelapse video of the construction is interesting because of the landscaping of the parkland around it. 

 

Examples of universal design policy

Model Position Statement

picture of empty classroom showing wooden desks and a small blackboard. Examples of universal design policy.Here are three articles on universal design policy at national, state and local levels, and CUDA’s model statement. In 2016 the Victorian Government decided to incorporate universal design principles into government procurement processes. New schools were the first examples of Victoria’s universal design policy. 

The Victorian Government updated their universal design policy in 2022. There’s also a summary version. The policy documents are intended for use in procurement processes. They are based on the 7 principles of universal design. Embedding universal design into procurement processes helps ensure the project maintains an inclusive focus. 

Planning Policy at a national level

Front cover of the book. In 1999 Norway turned the notion of universal design upside down. Gone is the idea that it is just about the design itself or the responsibility of the disability officer. Instead, universal design principles were placed at the heart of the planning process. That means everyone has to take responsibility. Their landmark approach to universal design still holds today.  

Olav Rand Bringa’s story on how this was done in Norway is reported in a 2007 publication. The title of the book chapter on page 97 is, “Making universal design work in zoning and regional planning: A Scandinavian approach”. The book is, Universal Design and Visitability: From Accessibility To Zoning

Bringa’s work is the forerunner to the landmark document “Norway Universally Designed by 2025“. He followed up with another update at a UD Conference in 2018 titled, “From Visions to Practical Policy: The Universal Design Journey in Norway. What Did We Learn? What Did We Gain? and What Now?”  The paper is based on almost twenty years of experience and has guidance for others. 

Example for local government

Front cover of the policy statement.Having a universal design policy statement to go beyond access compliance is a relatively new thing. And it is a lot of work to start it from scratch. Fortunately Hobsons Bay Council in Victoria has a good example to refer to. Their Universal Design Policy Statement for council buildings and the public realm is comprehensive and nicely written in 18 pages. It covers cost (or lack thereof), the regulatory framework, applying universal design principles and advocacy with business and governments.  

CUDA has a generic universal design position statement as a model for others to use. There’s also a plain language version.