
Off to work we go. Or do we?

Families living with autism have lots of stories to tell. So researchers set out to capture some of these. The aim of the study was to find supportive home features to make homes more autism-friendly.
A study by Wasan Nagib and Allison Williams uses family stories to explore the challenges they face. The title of the article is, Toward an autism friendly home environment. It covers detached and attached houses, and apartments. Access a free read of the article via ResearchGate originally published by Taylor and Francis in Housing Studies.
This study explores the challenges faced by autistic children and their families in the home environment. It looks at the design or modification of physical elements that can alleviate challenges and create an autism-friendly home.
The research employs qualitative methods to learn from the experiences of architects and occupational therapists involved in creating or modifying the home environment of people with autism. An online survey was carried out across Canada and the United States was conducted to investigate family stories.
The study provides insight into the physical, social, and psychological challenges affecting the quality of life of autistic children in their home environment. The study provides insights into the contribution of home modifications for alleviating the challenges.
Who thought of kerb cuts in the footpath? 30 years ago policy makers couldn’t understand why anyone needed kerb cuts in footpaths. “Why would anyone need kerb cuts – we never see people with disability on the streets”. This is part of the history of disability rights that we rarely think about these days. But kerb cuts (curb cuts) didn’t happen because of policy – they happened because people took matters into their own hands. And accessibility eventually shaped the streets.
Stories of activists pouring concrete on kerbs have made their way into urban legends. It is sometimes referred to as the “Curb Cut Revolution”. (Note the American spelling. In Australia we call them kerb ramps.) It was the beginning of a turning point for accessibility.
Of course, the injustice is not evident to those who are perhaps inconvenienced but not excluded. And it’s not just about wheelchair users. Anyone using a wheeled device: delivery trolley, pram, bicycle or luggage knows the value of the kerb cut. They’ve also benefited from the other accessibility features in the built environment. That’s how the term “universal design” was coined – good for wheelchair users, good for everyone.
The Forgotten History of How Accessible Design Reshaped the Streets is a nicely written blog article. It provides an interesting context to what we know now as access standards. But compliance to legislation does not guarantee inclusion. It only provides access. That’s why we still need universal design thinking.
The Universal Design Movement goes back to the 1970s and it’s still going. That’s because every improvement for inclusion is hard won. The article has a great quote:
“When injustice is tied up with the physical spaces of cities and the policies that create them, it becomes difficult to assign responsibility for it – and hence difficult to change.”
The article is from Bloomberg CityLab.
We all want the same things from rail travel. Value for money, getting a seat, and arriving on time. But some of us need a bit more than this: Step-free access, accessible information, accessible toilets, and easy ticket purchase.
The Australasian Centre for Rail Innovation report is based on an international study of public transport systems in five countries. The aim was to identify good practise and issues yet to have solutions. The executive summary reports:
The title of the report is, Rail travel and disability: an international perspective on accessibility.
A new design guide for accessible inter-city train carriages covers just about everything you need to know. Oregon State University comprehensively researched design options for making passenger trains universally designed. Their findings are reported in Inclusive Universal Accessible Design Guidelines for Next Gen Passenger Rail. With the age of passengers increasing, they recognise the need for improved access for everyone.
The guide has a lot of technical data to support the design options. Wheeled mobility devices and assistance animals are the focus, along with other groups. The trade-off between a larger restroom and the number of wheeled devices in a carriage doesn’t always mean a loss of seating for others. Folding seats are an option and they recognise that some wheelchair users will transfer to a regular seat. The lounge or buffet cars can be universally designed, but sleeper cars, however, were not included in this research.
A good article for anyone involved in the design of rail infrastructure. Lots of detailed technical information including restroom fittings, public address systems and emergency procedures. Diagrams of layouts help with design explanations. While this document is based on USA requirements, it has relevance elsewhere.
Some newer Australian long distance trains have embraced inclusive design for all passengers. The image is from Queensland Rail.
Among the list of invisible disabilities are mental health conditions, as well as compulsory and phobia conditions. While basic physical access is being addressed, different mental health conditions are rarely considered. Using the underpinning principles of the UN Sustainable Development Goals and the Convention on the Rights of Persons with Disabilities, researchers from Austria looked at the issues with participants from the target groups. They found that strategies to support self-distraction as well as relaxing environments helped. The paper concludes,
“In general, measures should concentrate on strategies to support self-distraction and self-manipulation (e.g. personal entertainment, breathing exercises), as well as on infrastructural and organizational improvements (e.g. relaxing environment, improvement of layouts and signage, trained service personnel, raising of public awareness). The target group may get confronted with additional challenges or barriers due to the social and technological developments (e.g. automated driving) in the near future.
The full title of the paper is, Access to Transport Services and Participation in Traffic for People with Mental Health Diseases – Challenges to meet the UN Sustainable Development Goals (SDGs) to provide an overall inclusive Transportation System.
Tactile markers and kerb cuts are commonplace on our footpaths and in other outdoor places. But what suits a person with a mobility restriction can pose problems for someone with low vision and vice versa. This issue of access features as a minimum standard is nicely presented in, Is your inclusive my exclusive?
The article is one of several conference papers in Open Space : People Space 3. It begins with a really good way of explaining the terminology each of which has inclusion as the underlying goal. Accessible design is about accommodating specific individuals and is usually applied at the end of the design process or a retrofit. But accessible design does not suit all.
Universal design is explained as a strategy to make designs usable for any many people as possible. This is less stigmatising for all users. If an outdoor space is designed inclusively, the need for tactile markers is reduced. Architectural features provide guidance instead.
The article includes a case study of tactile paving. Observations of pedestrians and lab tests on different designs are discussed briefly. The way that tactile pavers and kerb cuts are maintained is an ongoing issue for users and should not be ignored. The article ends with a reminder that good design, inclusive design, benefits everyone. Through a process of continuous improvement we can do better than minimum standards.
There are several good papers in this conference which was focused on research into inclusive outdoor environments.
See also a previous post, Tactile ground markers vs wheelchairs: a solution?
Aged care is in the news and not for good reasons. But what do Australians think of aged care and ageing in general? A good question, and the answer depends on your perspective and your age. Regardless, we need to consider home design seriously. That’s because staying put at home is clearly the favourite place for older age.
The Royal Commission into Aged Care Quality and Safety commissioned Roy Morgan to research perceptions of ageing and aged care across all age groups. This report builds on the research by Flinders University about quality of care. Both studies were conducted before the outbreak of COVID-19.
The research confirmed previous studies that older Australians prefer to stay put at home and if needed, receive aged care at home. This desire increases with age. This preference is also expressed in the priority for help in the home rather than health related services. However, younger people rated health services as the highest priority for older age. The implication is that younger people see ageing as a bodily health issue whereas independence and choice are top of mind for older people. That is, their quality of life.
There is much to unpack from this report which also looks at community attitudes and perceptions of aged care. Perhaps the most surprising finding was that few people knew how much the government contributes to aged care costs. Most thought it was around 50% but it is actually 78%. This report is well-written and there are little gems hidden in the data.
The unanswered question remains, “If older people want to receive aged care at home, will the design of their homes support their desire?”
The answer is no in most cases – not if they are to retain their independence. Many older homeowners are in the same home in which they brought up their family. When they bought it there was no thought about whether the design would support them in their older age. Consequently, if we ask younger Australians whether they want access features in their new home they are likely to say no. Few of us can imagine ourselves as being somewhat “lesser” beings – that is, losing capacity over time. That means all our housing stock is unsuited to ageing in place and aged care at home. Time for a change.
The title of the Roy Morgan report is, What Australians think about ageing and aged care.
Design challenges as part of conferences are great for innovative outcomes. The Design for All Europe Summer School in Portugal was no exception. Working as interdisciplinary teams, participants were challenged with addressing the city planning issues in Viana do Castelo.
In her paper, Jenna Mikus from Queensland takes us through the four inclusive design steps for the city planning challenge. Stage 1 is to Explore, Stage 2 is to Focus, and Stage 3 is to Develop by building scenarios. Stage 4 is Delivering the conceptual design concepts to stakeholders. In this context pilgrims and tourism workers were the priority user groups in Viana.
Mikus concludes that following an inclusive design process helps frame design research. User insights help drive innovative ideas and ensures design teams ask the right questions of participants. That leads to design solutions based on feedback – the basis of people-centred design.
There’s more to this paper which details processes and outcomes. The terminology is a bit contorted with “Design-for-All” and “Inclusive Design” but should be read as meaning the same thing – a quest for inclusive societies.
The title of the paper is, Employing the Inclusive Design Process to Design for All. It’s a free read courtesy QUT eprints.
Abstract: The 2019 EIDD Design for All Europe Summer School in Viana do Castelo, Portugal brought together 20 international doctoral students and design professionals to explore and apply Design for All knowledge. The program culminated in a capstone design challenge, during which participants were divided into teams and asked to apply Inclusive Design (ID) principles to address Viana’s urban planning issues. This paper presents the results of one of the four teams—outlining the design process, considerations, objectives, and outcomes. During this challenge, the team followed a prescribed ID process (based on the EIDD Design for All Europe-supported Inclusive Design framework [1] created by Design and Architecture Norway (DOGA) in collaboration with the Helen Hamlyn Centre for Design (HHCD) at the Royal College of Art (RCA)), testing its applicability. By engaging directly with lead user group members and relevant stakeholders, the team identified creative, pragmatic design solutions to meet design goals and innovate across people, planet, and profit. Thus, by applying ID as a people-centered strategy, participants created a conceptual urban design likely to result in sustainable innovation and resonate across demographics.
Universal design is now a key element of the SDG as a means of including people with disability. UN member states are required to report on disability and inclusion within their actions on the SDG. They will need to show measurable actions not just policies. Sustainable Development Goals (SDG) are a blueprint to achieve a more sustainable future for all. The SDG are interconnected and the aim is to “leave no one behind”.
Sweden’s Ministry of Participation virtual event titled, The principle of universal design as a tool for leaving no-one behind provides a good background in how universal design links with the SDG. The video is an hour. At the five minute mark a UN rep explains the UN position. The second speaker listed was not able to join and the moderator spoke about disability and inclusion being at the heart of the SDG. At the 22-23 minute mark there is an interesting presentation on the convergence of UD and the SDG. Data graphics clearly explain why universal design is needed. The final speaker has a short session on a city project which is at the 51 minute mark.
Tip: The video is captioned so you can select a faster speed in the settings to read and hear. You will note that the closed captioning covers some other subtitling. This was the automatic live captioning that is a Zoom option. The closed captioning added later “tidies up” the auto captions and uses a larger font.
The Australian Disability and Development Consortium explains the concepts simply. It picks out the five key SDGs that relate specifically to disability. The Australian Department of Foreign Affairs and Trade has a web page with Australia’s commitments to the SDG. The SDG agenda is not just about government but all sectors of society including business. The UN has an infographic poster that spells out the specific goals relating to disability.
The idea of universal design in housing is not new. Despite academic research proving the need, and practice guidelines based on real lives, we are still a long way from achieving access for everyone at home. Here are some resources with reasons for universal design in housing.
Housing Design for the Ageing: Struggle Toward Supporting Age-in-Place Instead of Special Housing. Discusses the attempts made in Japan, UK and US to introduce universal design features but with little success.
The Home is for Every Body takes a planning perspective.
Flexible housing offsets risk discusses the need for innovation in home design.
Designs for Quality of Life explains the value of home modifications
No Place Like an Accessible Home has qualitative and quantitative research by London School of Economics.
Is there a market for accessible homes? is another UK study based around wheelchair users.
The value of home modifications is a report by AHURI
WHO Housing, Health & Accessibility is a comprehensive guide with a chapter on accessible homes.
You can access the full list in the Housing Research section of this website.