Engaging people with intellectual disability in research

People with intellectual disability continue to be excluded from research practices. This is often due to social and economic factors such as limited education opportunities and access to services. Exclusion is easily perpetuated when you add systemic bias to the list.

Ethics approval processes often view people with intellectual disability as “vulnerable”. This makes their inclusion more difficult for researchers.

Four people are seated at a table but their faces are obscured. One is writing on a notepad. A coffee mug and laptop are on the table. Including people with intellectual disability.

The design of research methods systemically excludes people with disability and other marginalised groups. Consequently, their voices are unheard in health, employment, education and independent living research.

According to an article from the US, approximately 75% of clinical trials have directly or indirectly excluded adults with intellectual disabilities. Just over 33% of the studies have excluded people based on cognitive impairment or diagnosis of intellectual disability.

New methods needed

In response to the ethics and research design challenges, researchers are finding new ways to adapt their methods. The article discusses three approaches:

1. Adapting research materials and processes into individualised and accessible formats.

2. Adopting inclusive research participation methods.

3. Community participation and co-researcher engagement.

Although inclusion strategies are making progress, researchers are lacking helpful guidance. Consequently, including people with intellectual disability in research in a meaningful way requires more work.

The title of the paper is, Inclusive Methods for Engaging People With Intellectual and Developmental Disabilities in Research Practices. This is a short paper and easy to read.

Technology and wellbeing

A related article on co-designing with people with intellectual disabilities looks at developing technologies. Here is an excerpt from the abstract:

Involving people with intellectual disabilities on issues relating to their mental wellbeing is essential for developing relevant tools. This research explores the use of inclusive and participatory co-design techniques and principles.

Individuals with intellectual disabilities participated in a co-design process via a series of
workshops and focus groups. The workshops helped participants explore new technologies, including sensors and feedback mechanisms that can help monitor and potentially improve mental wellbeing. The co-design approach developed various interfaces suited to varying ages.

The title of the article is, In the hands of users with Intellectual Disabilities: Co-Designing Tangible User Interfaces for Mental Wellbeing.

People with intellectual disability and support workers

Abuse of people with intellectual disability focuses on extreme forms of violence at the expense of everyday indignities. Humiliation, degradation, and hurt have a negative effect on identity and makes it more difficult to recruit research participants.

An article by a group of Australian researchers recommends taking action to support both workers and people with disability for improved wellbeing. Here are the key points from their article:

  • Everyday harms are the little things that upset people, such as making unkind jokes about you, being ignored, or disrespected, are not treated as abuse
  • In our project, we called this misrecognition.
  • We looked at when misrecognition happened between young people with disability and their paid support workers.
  • Much of the time, people did not intend to cause harm, but the other person was still hurt by the things they did or said.
  • We can improve the way that people with disability and support workers work together if people understand how their actions affect other people.

The article is titled, Recasting ‘harm’ in support: Misrecognition between people with intellectual disability and paid workers.

Theatre, research and intellectual disability

This study aims to demonstrate how disability theatre contributes to inclusive research practice with people with intellectual disability. The title of the article is Disability Theatre as Critical Participatory Action Research (CPAR). Here is an excerpt from the abstract:

This article describes how self-advocates (individuals with intellectual disability), theatre artists, researchers, and a community living society create social justice disability theatre as critical participatory research. It demonstrates how disability theatre can contribute
to and advance inclusive research practice.

Disability justice-informed theatre as CPAR has direct relevance to people with intellectual disabilities. It also offers a platform where self-advocates’ diverse ways to communicate and be in the world are honoured. Mentorship generates opportunities for self-advocates to learn, practice, and develop research skills.

The theatre creation process (devising, developing, and refining scenes) is research in itself where tensions are recognized as sites of possibility. Future research should explore strategies, and protocols for power sharing and problem solving within disability theatre.

Inclusive Design Wheel for transport

The University of Cambridge’s Inclusive Design Team, have applied their Inclusive Design Wheel to transport. As with many frameworks, it lists a step-by-step process, but with a twist. It is a co-design process. The key principle of the Inclusive Design Wheel is that the process is highly iterative and involves users.

The Inclusive Design Wheel for Transport consists of four phases of activity: Manage, Explore, Create and Evaluate

The Inclusive Design Wheel for transport showing the four phases of the framework.

The Wheel is flexible and it is not always necessary to carry out all activities in every iteration. Successive cycles of Explore, Create and Evaluate are used to generate a clearer understanding of needs.

Each of the four phases is broken down into guiding tasks. For example, in the Explore phase, engage with users, examine user journeys, and capture wants and needs. In the Create phase, involve users, stimulate ideas, and refine ideas. In the Evaluate phase, agree success criteria, gather expert feedback and gather user feedback.

The Inclusive Design Wheel is a detailed online toolkit. While some of the steps appear obvious, the step-by-step process keeps you on track. This is a useful tool which can be applied in other contexts.

The underpinning research

The Inclusive Design Team completed their Dignity project on digital access to transport. They worked in four European cities to see how best to help travellers and providers. The aim of the project was to see how all stakeholders can help bridge the digital gap. They did this by co-creating more inclusive solutions using co-design methods. Their Inclusive Design Wheel is the result and is applicable to all aspects of public transport.

The evolution of paper-based train and bus timetables to digital formats has benefits and drawbacks. On one hand, digital formats offer more detailed information to help plan journeys. On the other, the amount of information can be overwhelming – that is, if you can find what you are looking for. And if you don’t have access to digital services then this format is of no use at all.

At first glance the Inclusive Design Wheel looks complex. The research team used feedback from the research project to fine tune the framework to its current form.

A graphic showing a complex circular chart with many elements. It looks very academic and take time to read and perhaps understand.

The Dignity report is long, comprehensive, and uses academic language. It details the methods in all four cities: Ancona Italy, Barcelona Spain, Flanders, Belgium, and Tilbug Netherlands.

Universally designed infrastructure planning

An aerial view of a new highway junction with overpasses.

One of the underpinning tenets of universal design is to involve users in the design process – at the beginning. Involving citizens in early stages of design can avoid costly retrofits, but more importantly, it is more likely to give people what they want. That means they are more likely to use it. Transport planning can also be universally designed. An article in The Fifth Estate argues that to leave out citizens is asking for trouble, and it is also undemocratic. Infrastructure is a public thing regardless of  who owns it, runs it or controls it. It is about good city governance. Planners need to do three things:

  1. consult and engage citizens early in infrastructure planning
  2. improve quality and access of citizen engagement at the strategic planning stages
  3. use more sophisticated strategic planning tools and practices to improve decision-making

The original article was in The Conversation. 

Digital first and last mile

A young woman is sitting in a bus shelter and looking down the road. The shelter is lit and has an information board.

Many car trips in Australia are less than 2km. So there is room for a re-think in personal e-mobility and digital solutions.  The Future of Place project recently ran an online workshop on the digital last mile. It drew together technology and data solutions to support first and last mile experience. The key question was what does the last mile of the future look like? It therefore follows: will everyone be included in the digital first and last mile solutions?

Four guests gave their expertise to the workshop. Katherine Mitchell reminded us that regular commuters have high levels of digital literacy. But not everyone has a smart device. She focused on accessibility, safety, confidence and wayfinding.

Damien Hewitt posed the idea of bus stops offering more local information, not just about transport or timetables. Stephen Coulter discussed the opportunities for micro-mobility and e-mobility. With 12 billion car trips of less than 2km made each year it’s time for transformation.

Oliver Lewis advocated for a greater level of digitisation to manage assets for real time experiences for users. He also introduced the idea of “Digital Twins”. An example of a digital twin is a digital 3D model of a real physical object or process. It helps predict how a product will perform.

Workshop participants gave their ideas via a process of “card-storming”. The results were captured in a document which is no longer on the Smart Cities Council website.  

Design justice in engineering courses

Typical engineering courses have plenty of design content but they lack concepts of design justice. Engineers have done much to improve lives for the better. However, there are instances where the opposite occurs and unintentional harms are caused. Time to introduce the concepts of design justice into engineering courses, according to a recent paper.

Using a design justice lens, the inequities in the built environment come to light. Design justice seeks to address the ways in which design decisions perpetuate systemic injustices.

A six lane highway through an urban area.

The paper describes how undergraduate students were tasked to assess an established neighbourhood where major highway now divides what was a thriving neighbourhood. Students were asked to review the case using principles of design justice.

Principles of design justice

The 10 principles of design justice are compared to the Engineering Code of Ethics. This is important because engineering ethics are about engineer practice, not who they design for. For example, avoiding conflicts of interest is not the same as being collaborative and a facilitator of design. The list of principles focus on the users of the design and introduces elements of co-design. These principles shift the focus from their skills as engineers to their skills of listening to and understanding users.

Self reflection on the learning

The author tracks the methods used and then uses direct quotes from students to highlight the learning. Here are two examples:

“The real lesson of the exercise though is just how big of an impact design can have on people and how long that the impact can be felt even generations later.”

“I have been aware that design can cause unintended harm but have never had a list of principles to reference when creating a design. I can now use this list to create just designs in my life.”

A group of men in hard hats, and with tools in their hands, stand near a bulldozer in an urban road. A run down apartment block is in the background.

The principles of design justice are a good framework for engineers and others involved in design. The engineering profession is seeking ways to improve diversity and inclusion within their ranks. Now it is time to ensure diversity and inclusion is part of their everyday activity.

The title of the paper is, Incorporating Design Justice Activities in Engineering Courses, and good for all built environment educators.

Teaching engineers empathy

Universal design and empathetic design for engineers discusses similar issues. Here is an excerpt from the abstract.

This article explores the relevance of universal design and empathic design in education. Universal design focuses on creating accessible and usable products, environments, and systems for individuals with diverse abilities.

Empathy involves understanding and sharing the feelings of others, encompassing cognitive, emotional, and compassionate empathy. Teaching empathy to engineers is emphasized as a crucial aspect. By developing empathic skills, engineers gain a deeper understanding of user needs and perspectives, leading to more inclusive and user-centered design solutions.

Effective communication techniques such as asking open-ended questions, active listening, observation, and perspective-taking are explored. The article also explores methods for measuring empathy, thus enabling engineers to assess the effectiveness of their empathic design approaches. The challenges facing students, teachers, and university authorities in implementing such courses are also bulleted.

Co-design and engineering education

Project-based learning is common within engineering education, particularly in design courses. This is where students follow a standard design process to solve a specific problem. In some cases, students are paired with community partners to solve real-life problems.

A research paper documenting how engineering students engaged in co-design methods uses the design of a clip mounted on a mop bucket as an example. The aim was to make the mop and bucket easier to move and transport. What began as a two-week design assignment turned into a 10 month iterative co-design experience. The result was the implementation of a successful product for multiple users across campus.

The commercial mop bucket did not have a restraint for the mop when the bucket was being wheeled to a new place. The users were concerned that the mop could cause an accident on campus. They had complained about it, but until the student project nothing had been done.

A black commercial mop bucket similar to that used in the project.

The case study

Over time, using the mop bucket, the “pet peeve” eventually became something really annoying. The community partners became worried about the unpredictability of the mop handle. The new clip not only secured the mop handle, it improved the ergonomics for the users. The co-design process also revealed how users felt their worries were ignored and how they felt belittled.

The paper, Embracing Co-Design: A Case Study Examining How Community Partners Became Co-Creators explains the process and the outcomes. Both the actions and reactions of the students and community partners are documented. With the success of this project, the authors hope more engineering educators will promote co-design in their project-based assignments. A good example of how good solutions emerge when everyone works together.

Co-design ensures the desires, opinions, and concerns of people affected by the design, are incorporated. This widens the circle of designers and improves the final design and the experience for all participants. Incorporating community partners early in the process produces more novel ideas and improved ergonomic products.

In addition, communities tend to embrace the solution more and support its long-term maintenance because they were involved in decisions. However, it’s important to make sure no marginalised voices are excluded, unintentionally or otherwise.

From the abstract

Co-design increases the number of voices in a design project, which enhances the experience for all co-creators and produces a better product. A case study is presented of a ten-month co-design project-based learning experience between two engineering design students and two community partners during a first-year engineering design course, which resulted in the implementation of the device across campus.

This paper evaluates the elements of co-design in the design process that was employed, documents the design product that was produced, and examines the experience of the community partners through a qualitative study. The design process demonstrated an increase in the amount of collaboration between co-creators as the project progressed and identified 15 iterations of the design.

Comparing the experience of community partners throughout the design process, five themes emerged from the semi-structured interviews: (1) emotional effects, (2) physical and mental effects, (3) productivity, (4) safety, and (5) job satisfaction. Documenting the experience of community partners throughout the design project can encourage educators to adopt co-design practices in project-based learning.

Spatial justice and creative co-design

Inclusive design concepts go beyond codes and standards. This requires new approaches using creative practices according to Janice Rieger’s new book. She presents creative co-design methods well beyond standard workshop techniques. For designers in any discipline these techniques shine a light on spatial justice and creative co-design methods.

The case studies centre on museums, malls, universities and galleries illustrate co-design methods applicable to other public places. The book exposes ableism in architecture and design and stimulates debate about current practice. Rieger challenges and expands our understanding of power in architecture and design that creates injustices.

Using a justice-based lens the case studies in each chapter have take-aways for creating inclusive, universally designed places and spaces. The language in this text is generally for professionals and scholars.

Perspectives of power leads the discussion followed by issues of ableism and how to design differently. Here Rieger uses her experiences of using short films and multisensory storytelling. Part 3 looks at constructing inclusive experiences followed by a look at spatial justice in the future.

The title of the book is, Design, Disability and Embodiment: Spatial Justice and Perspectives of Power. The book is available for purchase from the Routledge website with access to a preview and the table of contents.

From the Overview

This book explores the spatial and social injustices within our streets, malls, schools, and public institutions. Going for a walk, seeing an exhibition with a friend, and going to school are conditional for people with disability.

This book stimulates debate and discussion about current practice and studies in spatial design in the context of disability. Case studies of inclusive design in museums, malls, galleries and universities challenge and expose the perspectives of power and spatial injustices that still exist within these spaces today.

The international case studies purposely privilege the voices and perspectives of people with disabilities, to expose the multisensorial perspectives of spatial justice in order to understand inclusion more holistically through embodiment.

This book is for anyone in the design or arts who want a world where spatial justice is possible. It offers a new perspective of spatial design through critical disability studies, allyship and codesign, where tangible approaches and practices for inclusive design are explored.

From Rob Imrie’s review of the book

Highly regarded researcher and author Rob Imrie has written a review of Rieger’s book in Disability & Society. He writes of her challenge to the power of ableist architecture and the bias towards sight and seeing. Here are two pertinent extracts from Imrie’s review:

“For Rieger, echoing earlier work by Oliver (1992), about the need for emancipatory research, there can be no such thing as inclusive design based on data generated by conventional social relations of research, in which disabled people are objects of the process. Rather, what is needed is a transformation in the conduct of research, in which disabled people participate in a process of co-design. While the book describes a variety of co-design projects, I wonder if these are sufficient in tackling disablism and spatial injustice?”

“[Rieger’s observations] raise the question of how far design professionals are willing or able to cede control, and embrace a different set of relationships with their clients and users? More importantly, how will such changes transpire, given that much of the design of space is channelled through corporate development companies, in which architects have little influence?”

Community driven design

Architectural competitions can bring design quality to cities. But the design competition process misses the opportunity to engage deeply with the public. And that means social value could be missing too. The process of community driven design competitions addresses unequal access to design decisions and cultivates social ties.

“Design has a role in building social capital. During a design competition, there are opportunities for placemaking and designing in social connectors.” Georgia Vitale

Image: 11th Street Bridge Park. Courtesy OMA + OLIN

An aerial view of 11th Bridge Street Park which spans a river. It was community driven design.

Community consultation takes many forms, some of which are perfunctory while others are more meaningful. That is, meaningful for the public – the users of places and spaces. The judges of architectural design competitions are other architects. So how does community consultation and engagement fit into this process?

Vitale’s article explores the drawbacks of limited or no meaningful public participation or interaction with users of the building or place or other stakeholders in design competitions. This is at a time for an increased need for social capital to be included in the planning and design process for more socially sustainable communities.

Social infrastructure, shared spaces and streets, and public transport are the outputs of design. However, community engagement with diverse community members helps create new connections. it also encourages people to become involved in the lives of their neighbours. That’s the social benefit of community driven design competitions.

Case Study

Vitale uses 11th Street Bridge Park DC as a case study. The goal is to knit together the two communities on either side of the river. And that’s without displacing people in the marginalised neighbourhoods on the eastern bank.

Bridging community and design: a new way forward is the title of the article in The Fifth Estate. See the original article for links to cited research and case study.

Access Audit Handbook

The Royal Institute of British Architects has updated their Access Audit Handbook in conjunction with the Centre for Accessible Environments. Access auditing is an evolving concept and means different things to different people. Some take it as being compliant with a standard while others consider aspects beyond compliance.

The Access Audit Handbook is priced at £40.00 from either the Centre for Accessible Environments or the Royal Institute of British Architects.

Fortunately, the Ergonomics in Design for All Newsletter explains the content of the document. In doing so, the newsletter provides an synopsis of some of the key concepts in the handbook.

Front cover of the access audit handbook.

Similarly to Australian Standards, British Standards only apply to people with disability and do not cover any other groups in terms of access and inclusion. This is despite other groups who fall under anti-discrimination law. The handbook addresses some of these gaps. For example:

Faith spaces, prayer facilities, features relating to women’s safety and their well-being, including pregnancy and menopause, baby feeding and changing, and non-gendered sanitary and changing facilities.

A woman cradles a new baby in her arms. They are both white skinned.

There is guidance on neurodiversity and reducing sensory overload, anxiety and stress, such as quiet rooms. Designers are asked to plan logical wayfinding with straight lines, and create curves rather than corners.

Technology is evolving on building accessibility, space and wayfinding, and auditors need to keep up with these developments. Lift destination control systems are a case in point where people no longer press a button for their floor. The central control system can be very confusing where there is a bank of lifts.

Case studies

The handbook recommends engaging with building users for insights into the level of accessibility and to keep them engaged throughout the project. There are six case studies: a theatre, a zoo, a parish church, a university science lab, and an outdoor space. The case study of an inaccessible heritage town hall shows how to create an accessible community building.

The handbook has 32 checklists for the external environment, internal building space, management and communication.

Thanks to Isabella T. Steffan and Ergonomics in Design for All for the content of this post.

Older people: ageism influences digital design

Do stereotypes of older people affect how digital technology is designed? A team of researchers found that ageism influences digital design in negative ways. However, they found co-design partnerships overcame ageist attitudes and produced needed and used digital technologies.

Ageism can have a detrimental role in how digital technologies are designed. Participating with older people in the design process has the additional benefit of countering stereotypes. Image shows a group of older people on a desert camping expedition.

Of a group of older people having fun together on a camping tour.

Older people said the “ultimate partnership” in co-designing is to involve them from the beginning through to the end of the design process. Sharing control over design decisions was an important part of the process. They are more than informants – they are equals who have valuable contributions.

The researchers noted that although this vision of co-design is shared by designers, it is not always the case in practice.

Image shows older people working together on a workshop question.

Older people sit at round tables discussing questions. There are four round tables shown in this picture.

Older people in the study also said that ageism emerges in implicit and explicit language about ageing. And ageist images can influence the design process. Consequently, the researchers say it is important to view the diversity of older people.

Co-design with older people

How and when to involve older people in digital design is also important. Understanding co-design with older people has the potential for avoiding insufficient prototyping, biases and errors in the design process.

The title of the article is, An “ultimate partnership”: Older persons’ perspectives on age-stereotypes and intergenerational interaction in co-designing digital technologies.

From the abstract

There is a gap between the ideal of involving older persons throughout the design process of digital technology, and actual practice.

Twenty-one older people participated in three focus groups. Participants experienced ageism in their daily lives and interactions with the designers during the design process. Negative images of ageing are potential influencing factor on design decisions. Nevertheless, positive experiences of inclusive design pointed out the importance of “partnership” in the design process.

The “ultimate partnership” in co-designing is to involve older people from the beginning, iteratively, in a participatory approach. Such processes were perceived as leading to successful design outcomes, which they would like to use, and reduced intergenerational tension.

Microsoft’s new inclusive design toolkit

Microsoft wants designers to see beyond physical and sensory disabilities. So they have updated their popular Inclusive Design Toolkit to include cognition – the brain. Cognition is about getting, storing and retrieving information. It’s also about focusing, learning, memorising and making decisions. So how to design for people who process thoughts in different ways?

Microsoft launched it’s first inclusive design toolkit in 2015, but it only focused on physical and sensory disabilities. The second edition takes a broader approach to address cognitive exclusion.

A black and white graphic of stick people in various states of being. Microsoft's Inclusive Design Toolkit

The new toolkit has three key principles for cognition, which can be applied in many other design contexts:

  • Understand the user’s motivation, and the goals and tasks they are trying to complete.
  • Discern the cognitive load required to reduce that mismatch.
  • Co-create the final product with a diverse community of people across the spectrum.
A man wearing a black t-shirt holds his hand to his forehead in an act of desperation.

The toolkit is not about specific industries or specific conditions. Rather it encourages designers to collaborate with users and find out first hand how they learn and think. The Inclusive Design 101 Guidebook has the basics. The Inclusive Design Cognitive Exclusion is a separate document.

The toolkit and guides are useful for anyone who wants to learn how to design inclusively – to take a universal design approach to design.

FastCompany has an article about the Inclusive Design Toolkit’s development. Christina Mallon, Microsoft’s head of inclusive design, discloses that she has ADHD. She couldn’t complete certain tasks and felt stupid. When she learned about inclusive design she realised that she was not stupid, just designed out of products. Now she just wants her job to be just a designer, not an inclusive designer. The title of the article is, Microsoft’s new Inclusive Design Toolkit is designed for the brain.

Inclusive tourism with universal design

Research on the business opportunities in accessible and inclusive tourism is extensive. However, the intent of this research is largely staying on the shelf. A mix of attitudes towards people with disability and a sense of “not knowing where to start” are likely reasons. But you can get inclusive tourism with universal design by co-designing with tourism operators.

” Surprisingly, many cases did not meet the minimal requirements for “older people” and “people in a wheelchair.” … but this result did function as an eye-opener”.

A hotel receptionist is talking to a man and woman across a reception counter. Inclusive tourism.

A research group in Belgium has devised a method to uncover business opportunities through universal design. Collaborating with 17 accommodation providers they came up with a seven step process to integrate universal design into their business model. The process is also a way to increase knowledge and understanding of diverse guests and their experiences.

The research group documented their project in a conference paper. It begins by explaining inclusive tourism as a right, a business opportunity and a challenge. They devised a method to use the potential of universal design as a “business transformer”.

Co-designing the 7 steps

  • Step 1: We created a literature-based universal design screening based on mindset, management and infrastructure.
  • Step 2: We tested and updated the screening in each of the 17 accommodation providers.
  • Step 3: We analysed the data for each business which was given to them in a report.
  • Step 4: The results were further processed with the participant, who decided on priorities.
  • Step 5: An action plan was devised based on step 4.
  • Step 6: A concise checklist and a guide with relevant information (tools).
  • Step 7: A re-evaluation of the business to assess the actual improvement after interventions. Unfortunately the COVID pandemic impacted this research and the last step was not possible with the downturn in tourism.
Hotel bedroom with polished floors, orange and red pillows on a couch and textured wallpaper

The title of the paper is Inclusive Tourism: Co-developing a Methodology to Uncover Business Opportunities through Universal Design. Scroll past the first paper in the conference proceedings to get to this one.

From the abstract

We describe a 2-year project where the possibilities of universal design were explored. The purpose was to structurally uncover and address potential business opportunities.

The method was based on: inclusive customer journey, linking mindset, management and infrastructure, and diverse user needs. We collaborated with seventeen accommodation providers and developed a seven-step process. The process integrates universal design into their business model.

The Disabled Tourist: a book

Here is the overview from the publisher of The Disabled Tourist: Navigating an Ableist Tourism World. It’s an academic text by Brielle Gillovic, Alison McIntosh and Simon Darcy.

This book addresses a growing demand to hear the authentic voices and understand the lived tourist experiences of people with disability. The latest volume in The Tourist Experience series challenges what is arguably an exclusionary, marginalising, discriminatory, and ableist (tourism) world.

Front cover of The Disabled Tourist.

By drawing attention to the ‘dis/’ in ‘disabled’, the authors provoke the need to change binary thinking about people who live with disability so that they may be ‘able’ to assume the role of tourist.

They engage critical tourism and critical disability studies, and their respective theories, perspectives, and debates, around, for instance, models of disability that shape conceptualisations and worldviews, inclusive research and enabling language, and the ethics of care.

These are pivotal to dismantling normative structures to enable a more inclusive, equitable, and socially just tourist experience that promotes a more independent and dignified tourism world for people with disability.

Tourism and Disability: Book review

A woman in a yellow jacket is being assisted onto the tour bus by two men up a ramp.

Tourism and Disability is a new book addressing the existing  challenges and opportunities related to tourism for people with disability. The Booktopia review describes this as an underdeveloped and underestimated niche market. While there is a larger market for family group travel, there is also a market for disability-specific tourism products. 

The book examines the strategies, policies, and initiatives at regional, national, and international levels. The aim is to foster the development of accessible tourism.  It examines the different social, cultural, legal, and information/interactive barriers to inclusion. The book’s focus is on the distinctive travel demands of people with disability and how their needs differ from the preferences of travellers without disability. 

The various chapters provide a multidisciplinary approach to the topic covering management, economics, and statistical analysis. This makes it useful for academics and practitioners alike. 

The Title of the book is Tourism and Disability: An economic and managerial perspective. Published by SpringerLink you can purchase individual chapters online. The book is also available from other suppliers. The editors and most contributors are based in Europe where tourism is a key part of the European economy. 

Front cover of Tourism and Disability.

London Street Accessibility Tool

The City of London Street Accessibility Tool is like an educational access audit report. It shows street designers how street features impact on the different needs of pedestrians. The focus is on people with mobility impairments and wheelchair users, which means everyone wins. The tool recognises that there are sometimes competing needs: what’s good for one group might not be good for another. Co-design is the best way to find the trade-offs to prevent unintended exclusion.  The tool comes in three parts: two Excel spreadsheets and a PDF downloadable from the City of London website.
A photo showing a footpath lined with black bollards with white tops from the Street Accessibility Tool.
Road and footpath image from the City of London Street Accessibility tool.
Two photos from the “Instructions for Use” PDF document.

Doing the analysis

The PDF document begins with a table of different pedestrian types with and without assistive mobility devices. They cover mobility, sensory and neurodiverse conditions. There are three steps for using the tool. The case study for the tool is London Wall, a street in London. A 500m long section is analysed for accessibility and is split into six sections. Each section has detailed access advice for improvements with photographs overlaid with dimensions and text to illustrate issues.

Down to the detail

The first spreadsheet has detailed dimensions, colours, and placements for elements such as tactiles, street furniture, and kerbs. All the necessary technical detail is here. 

What pedestrians said

The second spreadsheet is a route analyser and has a column of photos with user feedback about the issues they see. The feedback sheet highlights the “why” of planning and design. It provides insights for planners and designers in a way that that is missed in 2D drawings. The direct quotes from people with disability provide the necessary insights for planners and designers. However, those responsible doing the actual construction should also have this information. All the access planning and designing goes awry if the “why” isn’t understood by all involved.  Here are two quotes from the spreadsheet on route comments:

I feel quite wary. This is an unmarked crossing as far as I can see, I can’t see any wait signs. Somebody has stopped for me I can see a cyclist, I’m now onto some more tactile paving, this is the sort of crossing I am totally unfamiliar with. Person using a white cane

This is all fine but the paving stones are a little even so I’d be looking down and watching my speed so I don’t knock into one. Person using a wheelchair

A page of photographs of a section of London Wall in the City of London Street Accessibility Tool.
A page from the London Street Accessibility Tool
Ross Atkin Associates and Urban Movement for the City of London Corporation developed The City of London Street Accessibility Tool (CoLSAT).

London’s inclusive design standards

The London Legacy Development Corporation (LLDC) is similar to the Sydney Olympic Park Authority. Both focus on maintaining the benefits of hosting the Olympic and Paralympic Games. Sydney claimed the title of “most accessible games ever” and then the title went to London. Inclusive design is a priority in all developments related to the Olympic precinct, and these Standards are designed to assist.

“Venues excelled in their inclusive design and the story could have ended there. However, LLDC embraced this approach and made ‘Championing equalities and inclusion’ one of their four corporate priority themes.”

Baroness Grey-Thompson LLDC Board Member
Two people walk either side of a woman using a wheelchair. They are on a wide path in a parkland area. Inclusive Design Standards front cover.
Front cover of the Standards

Inclusive design is the favoured term in the UK while other countries and the United Nations use universal design. They mean the same thing – creating inclusive societies.

A Standard not a Guide

The Inclusive Design Standards begin with all the relevant legislation and standards followed by a page on how to use the document. The standards have four key parts: inclusive neighbourhoods, movement, residential, and public buildings. Each part has two sections – the design intent and the inclusive guidelines. The guidance is just that and design teams can create solutions that achieve the same outcomes. This is clearly a standards document and not a guide. It has numbered clauses for designers to reference. As such, it is not an accessible document itself. The language and size of text makes for detailed reading. A summary document with the key points would be useful as a starter.