Author: Jane Bringolf

What’s disability got to do with climate change?

white background with orange logo depicting a tsunami coming to a house with a person with a can walking away. Disability and climate change.Climate change is affecting everyone, but when a catastrophic event occurs some people are more at risk than others. Evacuation, temporary shelter, and access to specialist assistance pose specific problems for older people, children and people with disability. So the UN is calling on governments to listen to those who are most affected by natural disasters.

Some countries and regions have disaster plans that pay attention to vulnerable groups. But individuals rarely have plans. Many older people and people with disability are not able to evacuate as quickly as others. Accessing assistance afterwards is also a problem. As a disaster can cause disability this aspect is all the more important. This is one of the findings in Disability and Development Report which collated data from more than 100 countries. The specific section on disasters is on page 240. The situation appears to be the same in both developed and developing countries. 

You can read an overview in the Pacific Standard article, The UN is calling for inclusion of people with disabilities in the climate change debate. 

Safe Evacuation for All

Picture taken looking up a building where a man in striped pajamas is being helped onto a ladder by two firefightersNext time you have a fire drill take a moment to consider whether anyone could be experiencing difficulty getting out. And it is not all about mobility issues. In a real situation some people are likely to panic or experience high levels of anxiety. Fire wardens can be trained to manage these situations, but is the design of the building helpful as well? The guide, Safe Evacuation for All has some really useful information to help. 

The guide is for anyone involved in planning and managing safe evacuation from buildings. This includes facilities and accommodation staff, health and safety staff, access officers, human resource professionals and others. Design professionals and fire engineers will find it useful too. The guide was developed by the National Disability Authority in Ireland. Each section is available to download separately: the guide, a risk assessment checklist and a PEEP template.

The aims of this publication are to:

    • encourage anyone preparing an evacuation plan to consider the needs of people of all ages, sizes, abilities and disabilities;
    • help those responsible for buildings to recognise the evacuation features relevant for people with disabilities;
    • give guidance on providing safe evacuation for everyone; and
    • identify good practice in providing safe evacuation for everybody.  

The title of the guide is, Safe Evacuation for All. 

Tourism for All Manual

Front page of Tourism for All Manual showing a pathway between large trees.Tourism is big business, but some operators are missing out. State and local governments have an interest in tourism and they can lead the way for operators. The Accessible Tourism for All Manual shows how. 

The manual is a simplified version of a larger research project and this makes it easy to follow in five separate modules.

Module 1 gives a definition and context for accessible tourism. Module 2 is about accessibility chain, and Module 3 is about action and implementation. 

Module 4 is about evaluation and progress, and Module 5 provides principles, tools and good practice examples. 

The full title of the publication is, Accessible Tourism for All: An Opportunity Within our Reach.  The research paper with greater detail is Manual on Accessible Tourism for All: Principles, Tools and Best Practices.

From the abstract:

The Manual on Accessible Tourism for All: Principles, Tools and Good Practices is intended to provide stakeholders with a useful tool to understand the needs of the tourism sector in terms of accessibility, the competitive advantages of tourism for all, and the methods for its implementation.

Best and least accessible cities for tourists

A scene of a medieval part of Luxembourg showing a town square with old building surrounding it. One of the most accessible cities. While airlines and airports are making an effort to be  accessible, the same cannot be said for tourist destinations. An article on ThiisCo website reports on a new study that has evaluated Europe’s capital cities for accessibility.  Luxembourg takes top spot and Chisinau, Moldova is ranked bottom with four others.  London came in 11th place.  It would be interesting to have the same study done in Australia. The full list is in the article, Europe’s most and least accessible capital cities ranked for disabled travellers.  Here is the information on Luxembourg:

“The research highlights that the most accessible city in Europe is Luxembourg, with 18.56 percent accessible accommodation available, 33.33 percent accessible attractions, a fully accessible airport, an Access City award and an ongoing council campaign for accessibility.

The small European city won third prize at the Access City Award 2018 after it actively raised awareness of various disabilities. It reduced the stigma associated with them and coined the term “specific needs” to reframe the way people discuss disabilities.

In addition, the city overhauled its public transport system to improve accessibility for all residents and visitors.  

Co-design with older adults

A creative workshop scene. A woman is holding a pair of scissors, another is holding a pen over paper. Co-design with older adults.Finding out what older adults might want and need in their daily living experiences takes more than just asking them, especially if they have a cognitive impairment. Using creative methods, such as drawing and creating models, older people can express their needs in a tactile format. This also creates rapport with designers who can then devise better mobility, dining and leisure activities. This method is enjoyable for all participants.

The title of the article is, Participatory Design with Older Adults: Exploring the Latent Needs of Young-Old and Middle-Old in Daily Living Using a Universal Design Approach. You will need institutional access for a free read from SpringerLink.

Or ask for a free read through ResearchGate.

From the abstract:

This paper discusses co-design experiences with various stakeholders to explore latent needs of older persons in their daily living using a universal design approach. Through iterative use of creative methods, freehand sketching and physical models, older adults express their needs in a more accurate, tactile format.

Findings reveal that commonality of interest among older persons are important in building rapport among other participants. It also helps designers develop designs related to health care, mobility, dining and leisure activities.

Older adults and co-design

Close up of an older man and woman with their heads together dancing. He is wearing a hat and cravat, and she is wearing a red flower in her hair. They look loving.Older adults want the same designs as anyone else. Too often older people are gathered together under the umbrella of “the elderly”. This term assumes everyone is the same. It’s applied to people as young as 60 or 65 and every age after that. We can debate the terms but in the end, we are talking about people and design.

An article in Design Week challenges assumptions about older people and design. It reports on a study involving older people in design projects. They found older people “want what we want”. The ‘we’ in this context is young designers.

A key point is that people can live independently for longer if things are designed around their needs. In the end, age isn’t relevant. But designing inclusively is. That’s why devices designed specifically for older people are bought but often abandoned. 

The title of the article is, Why age is often the “least relevant thing” when co-designing with the elderly.  It’s an easy read magazine article with good points for designers. 

Maximise inclusion for ageing in place

A row of red brick terraced houses where people will age in place.
An image from the report

What does ‘ageing in place’ actually mean? For some it means staying put in the family home in their later years. For others it means staying in the same community. 

Researchers at the University of Manchester developed a ‘village’ model of support based on those in the US. The residents came together to identify the services that they need and how they could be better managed. Storytelling was an integral part of the data collection. Ideas were generated for supporting ageing in place at a local level. 

Front cover of the report on ageing in place.
Front cover of the report

The report recounts the difficulties recruiting volunteers and participants as well as overcoming distrust of decision-makers. Access to formal and informal meeting places was also an issue.

Recommendations include building social infrastructure and strengthening organisations led by older people. The title of the report is, Community interventions to promote ‘ageing in place‘. This is a large file. 

Co-designing with people living with dementia

A diagnosis of dementia used to mean staying home and being cared for. Those who work in the area of dementia are doing their best to change this view. But is the design community prepared to embrace people living with dementia? Paul Rogers reports in Co-designing with people living with dementia disruptive design interventions to break the cycle of well-formed mindsets. The co-design method has provided ways for people with dementia to continue contributing to society and have fulfilling lives.

The co-design project was to create a new tartan design. Each person with dementia directed the researcher to co-create their digital design one colour at a time.

A tartan from the research paper with orange and green colouring. Co-designing with people with dementia.

The Disrupting Dementia tartan project shows how co-design methods and tools can enable people living with dementia to make a significant contribution to society after diagnosis. Although dementia changes some aspects of a person, it does not affect their sense of self. Projects such as these not only inform designers, they also give a sense of inclusion and belonging to people with dementia.

From the abstract

This paper illustrates methods for co-designing with people living with dementia in developing a mass-produced product. The research was carried out in collaboration with Alzheimer Scotland using a range of disruptive design interventions. The aim was to break the cycle of we-formed opinions, mindsets, and ways-of-doing that remain unchallenged. The research has resulted in co-designed interventions to help change the perception of dementia.

People living with dementia can offer much to UK society after diagnosis. Co-designed activities and interventions help reconnect people recently diagnosed with dementia to help build their self-esteem, identity and dignity. Co-design processes help keep people with dementia connected to their community, thus delaying the need for formal support,

We worked collaboratively with over 130 people with dementia across Scotland in the co-design and development of a new tartan. The paper concludes with recommendations for researchers when co-designing with people living with dementia.

Altering design mindsets

Breaking Well-Formed Opinions and Mindsets by Designing with People Living with Dementia is a similar paper. You will need institutional access for a free read, or access via ResearchGate.

The paper reports on three design interventions using co-design activities with people diagnosed with dementia. The interventions offer innovations for co-designing with this group.

To move or not to move?

We expect to grow old, but because we don’t aspire to grow old, we rarely plan for it. “I’ll worry about it when the time comes” is a usual response. A report from AHURI looks at the housing situation for older Australians and some previous research is confirmed.

Front cover of the AHURI report on older Australians and the housing aspirations gap.

Most respondents felt their current home would suit them as they grow older, but they are not planning ahead. If they are, they lack information on how to go about it, what to look for, and what their options are other than age-segregated housing.

A significant proportion of respondents hadn’t thought about planning ahead for their living arrangements. This is one reason why we need the Livable Housing Design Standard adopted in all states and territories. It is in the 2022 edition of the National Construction Code and there is a handbook for designers. 

Title of the report is, Older Australians and the housing aspirations gap. There’s a full report and an executive summary.

But do all older people want to stay put?

Apartment block with blue windows and balconies with plants and washing drying.

It is often said that older people want to stay put, but this may not be the case for everyone. A study from Berlin, Germany looked at this issue in depth. While some of the findings might be specific to Berlin, the article raises interesting questions.

The researchers found that social class, gender, age and migrant history were not necessarily measures of movement behaviour. The top three reasons that emerged were: to have a smaller apartment, an obstacle-free apartment, and to have to a cheaper apartment. 

The title of the article is, Why Do(n’t) People Move When They Get Older? Estimating the Willingness to Relocate in Diverse Ageing Cities. This is an open access article in Urban Planning journal. The results indicate decisions to move are multifaceted. Older adults are not an homogeneous group with the same needs. As with other studies, older people want the same things as younger people. 

United Nations Inclusion Strategy

United Nations Building in New YorkThe United Nations is planning to actively include people with disability at all levels of their operations. It’s one thing to have a Convention on the Rights of Persons with Disability, but not a good look if the UN itself isn’t leading by example.

UN Secretary-General, António Guterres, said, “Realizing the rights of persons with disabilities is a matter of justice as well as a common-sense investment in our common future”, but “we have a long way to go in changing mindsets, laws and policies to ensure these rights”.   Global Accessibility News has more detail on this story. Better late than never.

What is “reasonableness’ in the concept of reasonable accommodation” when it comes to applying accessibility and universal design? Professor Rafael de Asis Roig discusses this philosophical question in the context of the UN Convention on the Rights of Persons with Disability. He contends that the content of universal accessibility is “constrained by three types of circumstances that could be considered as the bounds for what is necessary, possible and reasonable”.

Universal Design and Reasonable Accommodation

Australian Human Rights Commission logoFor anyone interested in the debate about reasonableness, and the application of “unjustifiable hardship” rulings by the Australian Human Rights Commission, this article explores reasonableness from different perspectives and concludes,

“Therefore, in accordance with the foregoing, it is possible to have a comprehensive vision about reasonableness in the disability domain. This demand makes it necessary to deem a measure as reasonable in the context of disabilities when:

    • It is justified because it adequately provides for full participation in society.
    • It shall be deemed as possible, taking into account the state of scientific, technical and human diversity knowledge.
    • It shall be deemed as a non-discriminatory differentiation or undifferentiation which is not harmful for physical and moral integrity and at the same time does not prevent from meeting basic needs nor avoids participation in society on an equal basis.
    • It shall be deemed as proportional and, therefore, entails more advantages than sacrifices within the context of human rights.
    • It shall be deemed as acceptable by the community to which it is addressed.”

The article, Reasonableness in the Concept of Reasonable Accommodation, was published in The Age of Human Rights Journal, 6 (June 2016)

An earlier unpublished article tackles the issues of human rights and “unjustifiable hardship” in the Australian context by Schraner, Bringolf and Sidoti which discusses the issues from an economic perspective. Written in 2012, it pre-dates the implementation of the National Disability Insurance Scheme.

  

Australia’s Digital Inclusion Index

Front cover of the Digital Accessibility Report.The international Digital Accessibility Rights Evaluation Index (DARE) rates Australia as 71 points out of 100. Apparently this makes us 12th in global rankings with an implementation ranking of 10th. The index takes Australia’s laws and regulations, policies and programs, and capacity to implement inclusive technology into the scale. It seems Australia has full capacity to implement, but has only just passed the halfway mark in actual implementation.

More detail is available on the G3ict website. You can also see the score of other countries. Oman has the top overall global ranking of 81 points.

G3ict has also produced a report with more detail. “The report gathers insights from the survey by Level Access in cooperation with G3ict on the current state of accessibility in organizations as undertaken by 550 professionals from organizations of all sectors. The high number of responses shows the considerable interest for trends in accessibility implementation. Readers are encouraged to go through the detailed results of the survey and compare them to their own experience to help advance their own endeavors and the accessibility profession at large.”

Tourism Tips for increased business

A distance view of an English coastal village showing a harbour wall.Holidays for All is a key section in a new research report by Barclays. It is a pity that this section ends up in the latter part of the report because it applies to all other sections. The tips and case studies in a pdf document cover all aspects of the hospitality and tourism business.  Although the report focuses on the UK domestic tourism market, the principles for increased business are applicable elsewhere.

The title of the report is the Great British Staycation. It is a very readable report and the section on holidays for all is worth a look, and it ends with strategies for success with key points from each of the chapters:

    • Know your demographic
    • Foster Loyalty
    • Capture early bookers
    • Add value through collaboration
    • Reap digital dividends
    • Provide options where possible
    • Take them behind the screen
    • Be accessible to all

It is not unusual to find references to accessibility and inclusion somewhere in a subheading of a research report. This is unfortunate because this is the one part that applies to all other sections. See also the economic argument from Simon Darcy.

Diversity, Disability and Disbelief

A young man stands between library book shelves. He has a large book open in his hands. Diversity, disability and disbelief.Diversity, disability and disbelief jointly create barriers to creating an inclusive workplace. When the disability isn’t obvious, disbelief by others becomes another barrier to inclusion. Owning up and spelling out what you need is painful enough. So not being believed is the final straw. If you have a mental health condition this can be devastating. A personal story by a library employee highlights how attitudes are just as important as any physical workplace accommodations.

The title of the article is, The Impact of Disbelief: On Being a Library Employee with a Disability. You will need institutional access for a free read or ask for a free copy from ResearchGate.

From the abstract:

As a library employee with a hidden disability (post-traumatic stress disorder [PTSD]), just going through the accommodation process is difficult. The process is invasive and includes an in-depth interview with a disability specialist who knows nothing about you.

The process also requires a letter from a care provider detailing both the accommodation and why it is necessary. So, the person must first be diagnosed by a medical professional or a psychiatrist. The process is made more difficult and painful when supervisors and administrators do not recognize the validity of the condition for which the accommodation is needed.

This paper explores the accommodation process, its impact on the employee, and the politics and psychology of disbelief and suspicion. Through the lens of personal experience and reflection, I will explore how the library can be a place of ableist views that limit the abilities and potential of employees with disabilities. I will also provide guidelines for combating ableism in the library workplace.

There is a companion article Disability, the Silent D in Diversity, which gives the library experience of wanting to have diversity, but not wanting it to be too difficult.

Diversity and inclusion: why don’t they care?

A bearded man in a white shirt leans back from his desk and computer. He is laughing and has a sticker on his forehead that reads, be happy.When the terms ‘diversity’ and ‘inclusion’ fall on certain ears, it raises hackles and is considered a big problem. The Fifth Estate has published a very interesting article titled, Why people hate on diversity and inclusion (and how to get them not to). It’s by the CEO of Diversity Council Australia, Lisa Annese. She quotes David Gaider, “Privilege is when you think something is not a problem because it’s not a problem to you personally.”

Annese discusses the research that shows the more diverse a company’s workforce, the more satisfied the whole workplace is. And that leads to improved productivity. It should also lead to better service for their customers. They are a diverse lot too!

Politics of Disability and Universal Design

Book cover showing anthropometric diagrams of a wheelchair user. The politics of disability.Book reviews can reveal good information in their own right. One such case is the review of Aimi Hamraie’s book, Building Access: Universal Design and the Politics of Disability. The book traces the history of universal design from the 1950s in the United States to current ideas. Hamraie discusses the issues of the politics of disability from both design and disability perspectives.

Chapter 4 of the book discusses how the curb cut campaign in the USA became disability politics in action. Curb cuts cannot be considered universal design because they don’t benefit everyone. They do not further the rights or inclusion of people with disability. However they became a sign that people with disability had rights that were being ignored.

This is an academic text of value to both design and disability studies.

Other articles about Hamraie posted previously are:

UD: Social justice or just marketing? 

The evolution of UD and accessibility

Mapping Access: People, Place and Justice  

Universal design approach to internal environments

Front cover of the publication - a universal design approach to internal environments.Floor finishes, lighting, acoustics, hearing systems, signage and alarm systems are all included in a guide to taking a universal design approach to internal environments and services. 

Building for Everyone covers each of the features in detail. Of course, they also have to be considered within the overall design of the building.

There is also a section at the end on human abilities and design. It covers walking, balance, handling, strength and endurance, lifting, reaching, speech, hearing, sight, touch and more.

Universal design approach to fitouts

Front cover of the guideAll you ever wanted to know about reception desks, waiting areas, storage, coin operated machines, kitchen sinks and ticket dispensers? These and other related topics are covered in a guide to taking a universal design approach to facilities in buildings. This is a companion to the internal environments booklet. One of the key issues in creating universally designed places and spaces is that the details are often left until last and not integrated into the whole of design. 

Published by the Centre for Excellence in Universal Design in Ireland, these guides are is very detailed. Checklists help guide the reader through the material. The guides links with others in the series.