What drivers can’t see on the road

A red and white circular sign with a 20 speed limit showing. Drivers can't see invisible disability. Here’s a call to traffic planners. A group in the UK is calling for slower speed limits on roads to help reduce pedestrian accidents. They list all the conditions where slower speeds could make a difference and allow people to cross the road safely. Drivers can’t see if someone has anxiety, dementia, post traumatic stress or sleep disorder. Traffic can make them feel vulnerable and fearful. 20 miles per hour equates to 30 km per hour. 

People who are deaf or hard of hearing, and people with low vision are also at risk of accidents. Pregnant women, older people, and people with prosthetic legs or chronic illness might not be spotted either. Even if they are, it is unlikely to change driver behaviour or alertness. The 20’s Plenty for Us media release links their call to the disability rights agenda which requires equitable treatment for everyone. Traffic planners should therefore assume everyone is vulnerable.

“At first sight it’s impossible to tell if someone has a mental health problem – anxiety, dementia, post traumatic stress or sleep disorder. Yet sufferers are vulnerable and fearful. Also the partially sighted, hearing impaired, those with a prosthetic leg, cancer, the elderly or pregnant women have protected characteristics not obvious at a distance from a driver’s seat behind a windscreen.”

Language Guide for Journalists and Others

Front cover of the language guide for journalists.Acceptable language regarding people with disability has changed, and standards continue to adapt as understanding and perceptions evolve. Many terms once widely used are now considered to imply inferiority and serve to marginalise people. The National Center on Disability and Journalism updated their Style Guide in 2021. It provides alternatives to terms still seen too often in the media.

The guide also gives an explanation for why some terms are considered offensive, derogatory, and/or marginalising. Unless the context of the story relates to the disability, it might not be necessary to point to any kind of impairment. And think about illustrations and photos too.

Here are a few common terms to avoid:

Afflicted with: Implies that a person with a disability is suffering or has a reduced quality of life.

Able-bodied: Refers to a person who does not have a disability. The term implies that all people with disabilities lack “able bodies” or the ability to use their bodies well. Use non-disabled. Use person without disability. 

Confined to a wheelchair: Describes a person only in relationship to a piece of equipment designed to liberate rather than confine. Use wheelchair user.

Stricken with, suffers from, victim of: These terms carry the assumption that a person with a disability is suffering or has a reduced quality of life. Use living with…

Demented: Refer to someone as having dementia only if the information is relevant to the story and a formal diagnosis has been made. Use “a person with dementia” or “a person living with dementia.” Do not use senile.

Special needs: This can be problematic where there are government funded programs for “special schools”. The term is considered stigmatising – use “functional needs” or describe the specific issue or disability. Everyone has needs.

Inclusive illustrations: What’s in a face?

Four male and female couples with different skin tones and face shapes. Inclusive illustrations.It’s often someone other than the writer of an article that chooses a picture to go with it. Usually this is a stock photo that might not convey the intended message. Stock photos of older people are often patronising. They show young and old hands, or a young person looking lovingly at an older person. Most illustrations are far from inclusive. 

Similarly, stock photos of wheelchair users often use non-disabled models and not real wheelchair users. An article and guideline from an illustrator discusses how to add diversity to your brand whether an organisation, service or a product. The title of the article is, Your Face Here: Creating illustration guidelines for a more inclusive visual identity.

Whether being used to distill complex messages or add a touch of whimsy, illustration is one piece that makes up a company’s visual brand identity.”  

Also have a look at these stock photos of older people and see what you think. Note that they are all white and active – no diversity here. 

Do’s and Don’ts of disability language

front cover of the What Do I Say? booklet.Language etiquette around the topic of disability seems to get some people tongue-tied. Fear of offending often results in just that. But so does using outmoded terms such as “handicapped”. So what are the do’s and don’ts of terminology and language use?

People with Disability Australia (PWDA) have a great guide. It gives a context to the importance of language and how it relates to dignity and respect. It is based on the social model of disability. That is, disability is not an individual medical problem. Disablement is the result of an environment filled with physical and social barriers.

Should you say “People with disability” or “disabled person?” It depends on the individual. However, government policies use the person first version – people with disability. The one to avoid is “the disabled” because it dismisses people and puts this diverse group into one category. The same can be said for “the elderly”. 

Adaptations of the word disability, or euphemisms, should not be used either. Terms such as differently-abled, special needs, or handicapable sound clever but are demeaning. Other terms such as “all abilities” suggests the opposite – a special place for people with disability. If it is inclusive it shouldn’t need a “special” title. However, accessible features can be included in any descriptions of the place or service.

The PWDA guide gives an overview of ableist language and its impact, some advice on reporting on disability, and a list of words and recommended alternatives. 

Disability is not about inspiration

One other important aspect of reporting on disability is what the late Stella Young described as “inspriation porn” in an entertaining TED talk. The portrayal of a person doing everyday things, or achieving a goal, as being inspiring gets the no-go signal. People with disability are often portrayed in the media as being “sufferers” or “heroes”. Rarely is either the case. 

 

The evolution of universal design and accessibility

Book cover showing anthropometric diagrams of a wheelchair userBess Williamson takes a look at two books and reviews them in tandem, which makes for an interesting read in its own right. Both are about the history of disability, accessibility and universal design, but approach the topic from different perspectives. Aimi Hamraie takes a legal and rights view of history, while Elizabeth Guffey tracks the work of individual designers and the development of symbols and images, particularly the access symbol we know today. They show how accessible design was developed in more than one place at the same time, which shows at least two family trees of access and universal design. One from the book cover for Designing Disability shows painted floor markings with the international symbol for access.bottom up (“crip technoscience”) and one from the top down (standards and codes). An excellent and thoughtful review by someone who understands this field of research. The books are: 

Aimi Hamraie Building Access: Universal Design and the Politics of Disability (University of Minnesota Press, 2017) 

Elizabeth Guffey Designing Disability: Symbols, Space, and Society (Bloomsbury Press, 2017). Or from Trove (National Library of Australia).  

Accessibility by another name – does it work?

picture of a modern building Norway Opera HouseNorway uses the term accessible to signify solutions specifically for people with disability when not required generally in the population. An interesting distinction by Olav Rand Bringa using his 20 years of experience working in the field of universal design. In his paper says succinctly, “The term accessibility for people with disabilities does not broadcast an understanding of qualities beyond the targeted user group”.  Consequently other terms try to compensate for this. However, it is difficult to move away from this term because it is perpetuated in legal and other statutory documents. Bringa writes thoughtfully and incisively about the issues of getting language right in order to get inclusion right. An important contribution to the quest for inclusive societies. The title of the article is, Universal Design as a Technical Norm and Juridical Term – A Factor of Development or Recession? it’s open access. The picture is of the Oslo Opera House.

Abstract: Universal design was introduced as an ideological and technical concept in Norway in 1996 and was introduced in the first law in 2003. Since then universal design has replaced accessibility for people with disabilities in national policies, laws, regulations, standards, projects and everyday language. Accessibility is now used to characterize solutions made more exclusively for people with disabilities or when a high, general quality is not required. Few countries have made this extensive use of the concept of universal design and the concept has faced several challenges from lawmakers, architects, economists, user organizations, entrepreneurs and debaters. This paper reflects on some aspects of more than 20 years of extensive use of the concept of universal design and try to answer the question: Is universal design an academic invention with little extra positive impact compared to accessibility for people with disability, or does the concept defend its supposed role as a step towards a society with equal opportunities for all?

The article is from the proceedings of the UDHEIT 2018 conference held in Dublin, Ireland, an open access publication.  

UD and public health

Nordic School Pub HealthEvastina Bjork from the Nordic School of Public Health discusses the concept of UD from the perspective of health and wellness in this article. She traces the work done in Norway that precedes the landmark document, Norway Universally Designed 2025” and how it relates to health benefits. Training courses in applying the concepts of UD for professionals were devised and continue to be revised and adapted to keep pace with new learning and updated evidence. Although an academic paper, the discussion about education and training, and application of UD in the health and wellness field is a refreshing perspective.

UD principles for Australia’s aid program

front cover of the DFAT Guideliens for aid programsThe Australian Department of Foreign Affairs and Trade stipulates that all overseas aid programs must follow the Principles of Universal Design. They have produced a comprehensive guide to all types of development projects including water, health, education and the built environment. The title of the 2013 document is, Accessibility Design Guide: Universal design principles for Australia’s aid program

It is useful to see how thinking universally about design can produce such a clear guide to inclusive practice and accessibility. This document was updated with a 2016 brochure with ten tips for promoting universal design in aid projects. There is also the companion document Development for All: 2015-2020 Strategy.  

Mapping Access: People and Place

A Google map with icons for parking and transport - Google is mapping access.Creating access maps using data collected from individuals is part of a Google Maps project. But there is more to this than just knowing how to get from one place to another when you are a wheelchair user. What does it say about architecture and how we value citizens? Codes for architectural compliance do not include the human perspective of how people actually use places and spaces and relate to each other. Mapping access is important for people and place.

Google has updated this information on a blog page which tells you how to find the accessible places on Google Maps. 

The City of Sydney accessibility map has different filters such as toilets, car parks, lifts and mobility parking. The top left hand navigation pane is not clear but clicking on icons should bring up desired results. 

Example of a step-free transport map

Bottom right hand corner of the tube map showing the legend of all the different level of accessThis isn’t something from Transport for London, it’s from a blog site, Step Free London. It shows what can be done with transport maps when users know that attention to detail is everything. The personal experience sets it apart from other maps. An access icon can mean so many things, and this is shown in the legend of the map. For example it could be either: Full step-free access; Step-free access via ramp; Step-free access towards one direction; Out-of-station interchange; and Separate entrance for each direction, plus other combinations of partial access.

The blog site has good information for map designers. It also contains all the latest information about travelling by train in London.

10-step guide to queer UX

smoke swirls of rainbow coloursThe concepts of universal design are expanding to encompass marginalised and disenfranchised groups in our community. In the article A 10-step guide to queer UX, there is a nice quote “There’s nothing revolutionary about technology if it is only for a limited number of people.” Making products and places more accessible for gender non-conforming and trans folk is also making them more welcoming for everyone. Roniece Ricardo writes about her observations and interaction with software as a queer gender non-conforming woman. She makes ten points:

    1. Allow users to change or write in their own gender
    2. Consider not having users specify gender
    3. Allow users the choice to hide or display identifying information from profiles
    4. Don’t assume anything about gender presentation
    5. Don’t assume your user’s pronouns
    6. Be careful with your marketing materials
    7. Don’t make assumptions about who your users date (or don’t)
    8. If you are making a niche product, receive actual feedback from the people in the niche
    9. Be mindful of regionalisation
    10. Diversify your staff.

For more detail on these ten points go to the article on the FastCompany website.    

Access to Premises Standard and existing buildings

A Westpac bank branch in NSW country town. It is a large old two storey house with steps to the entrance. Is the Access to Premises Standard now in the hands of industry?Michael Small’s Churchill Fellowship report tracks and compares discrimination laws and industry practice in relation to public buildings. He questions whether the control of the Access to Premises Standard is falling more into the hands of industry as Human Rights Commission resources are becoming increasingly constrained.

Three of his recommendations are: that more training is needed for industry to help them understand the standards; more flexibility is needed for building upgrades; and better systems are needed for compliance enforcement and auditing. The title of his report is, Ensuring the best possible access for people with disability to existing buildings that are being upgraded or extended. The countries visited and compared are Canada, United States of America, Ireland and United Kingdom. 

Housing quality improves health

A man in a bright yellow T shirt is painting and archway in a wall inside a home. The wall is grey and there are tools on the floor. Housing quality improves health.Ever wondered what the long term effects of a home modification are? A longitudinal study from the UK shows that household improvements in social housing can reduce risk of hospital stays, particularly in older people.

While the study picks up major improvements in chest and heart health, it also found that falls and burns were reduced too.

Over the ten years of the study, they found that homes that were modified and upgraded correlated with reduced hospital events. That means savings in the health budget or beds freed up for other patients. Obviously it is better for occupants too.

It is not clear how poor the condition of the housing was prior to the upgrade or modification relative to Australian housing.One key finding was: “Using up to a decade of household improvements linked to individual level data, we found that social housing quality improvements were associated with substantial reductions in emergency hospital admissions for cardiovascular conditions, respiratory conditions, and fall and burn injuries.”

The title of the study is, “Emergency hospital admissions associated with a non-randomised housing intervention meeting national housing quality standards: a longitudinal data linkage study”. Sarah Rodgers et al. Journal of Epidemiology and Community Health.

Universal Design drives Housing Quality

Big houses are still being built without accessibility in mind. Universal design for housing quality.Although there have been fundamental changes in the building code and regulations in Norway, it seems that none of this has guaranteed improvements in quality on the usability of homes. Perhaps there are some lessons for Australia when it comes to implementing the new building code for housing in 2022. 

In a research study, the authors conclude that architects, more than any other group in the construction industry are trained to break conventional frameworks. How the regulations are applied by users is the key to success – this is where the education of architects and building designers comes in.

Architects are often willing to innovate, the authors claim. “One chief intention of the building code is to promote universal design in the built environment. It seems that the appending regulations may not follow up the intention as it could be expected. Amendments are probably needed and should be based on a broader view on the design process.”

The title of the article is, Universal Design as a Booster for Housing Quality and Architectural Practice. It seems we could learn from this experience – regulations are one thing, but applying them appropriately and for maximum effect is another. The abstract gives a good overview of the project. 

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