Category: Policy and Policy Development

Diversity, Disability and Disbelief

A young man stands between library book shelves. He has a large book open in his hands. Diversity, disability and disbelief.Diversity, disability and disbelief jointly create barriers to creating an inclusive workplace. When the disability isn’t obvious, disbelief by others becomes another barrier to inclusion. Owning up and spelling out what you need is painful enough. So not being believed is the final straw. If you have a mental health condition this can be devastating. A personal story by a library employee highlights how attitudes are just as important as any physical workplace accommodations.

The title of the article is, The Impact of Disbelief: On Being a Library Employee with a Disability. You will need institutional access for a free read or ask for a free copy from ResearchGate.

From the abstract:

As a library employee with a hidden disability (post-traumatic stress disorder [PTSD]), just going through the accommodation process is difficult. The process is invasive and includes an in-depth interview with a disability specialist who knows nothing about you.

The process also requires a letter from a care provider detailing both the accommodation and why it is necessary. So, the person must first be diagnosed by a medical professional or a psychiatrist. The process is made more difficult and painful when supervisors and administrators do not recognize the validity of the condition for which the accommodation is needed.

This paper explores the accommodation process, its impact on the employee, and the politics and psychology of disbelief and suspicion. Through the lens of personal experience and reflection, I will explore how the library can be a place of ableist views that limit the abilities and potential of employees with disabilities. I will also provide guidelines for combating ableism in the library workplace.

There is a companion article Disability, the Silent D in Diversity, which gives the library experience of wanting to have diversity, but not wanting it to be too difficult.

Diversity and inclusion: why don’t they care?

A bearded man in a white shirt leans back from his desk and computer. He is laughing and has a sticker on his forehead that reads, be happy.When the terms ‘diversity’ and ‘inclusion’ fall on certain ears, it raises hackles and is considered a big problem. The Fifth Estate has published a very interesting article titled, Why people hate on diversity and inclusion (and how to get them not to). It’s by the CEO of Diversity Council Australia, Lisa Annese. She quotes David Gaider, “Privilege is when you think something is not a problem because it’s not a problem to you personally.”

Annese discusses the research that shows the more diverse a company’s workforce, the more satisfied the whole workplace is. And that leads to improved productivity. It should also lead to better service for their customers. They are a diverse lot too!

Politics of Disability and Universal Design

Book cover showing anthropometric diagrams of a wheelchair user. The politics of disability.Book reviews can reveal good information in their own right. One such case is the review of Aimi Hamraie’s book, Building Access: Universal Design and the Politics of Disability. The book traces the history of universal design from the 1950s in the United States to current ideas. Hamraie discusses the issues of the politics of disability from both design and disability perspectives.

Chapter 4 of the book discusses how the curb cut campaign in the USA became disability politics in action. Curb cuts cannot be considered universal design because they don’t benefit everyone. They do not further the rights or inclusion of people with disability. However they became a sign that people with disability had rights that were being ignored.

This is an academic text of value to both design and disability studies.

Other articles about Hamraie posted previously are:

UD: Social justice or just marketing? 

The evolution of UD and accessibility

Mapping Access: People, Place and Justice  

What does inclusion actually mean?

Graphic of stick people in various poses with the caption, "Inclusiveness,, looking at everyoneKat Holmes found the origin of include was to “shut in”. Similarly, the origin of exclude was to “shut out”. Maybe “inclusion” is not the right word for describing the inclusion of everyone in products, places and things. Holmes explains in the video below, that the topic of diversity is discussed in her workplace as gender, sexual orientation, religious belief, ethnicity, and race. Disability is usually mentioned last in the list, if at all. “But it is the one category that transcends all other categories”, she says. “Abilities are constantly changing”. 

Holmes’ offers an alternative way for designers to consider diversity, and is based on her book, Mismatch: How Inclusion Shapes Design. An engaging talk for all upcoming designers in any field. And not just professional designers either. We all design things every day, so we all have a role to play. 

Editor’s Note: I discussed this issue in a 2009 paper. Inclusion is problematic inasmuch as it requires those who are already included to invite into the group those who are excluded. Semantics can be important. What we need is inclusiveness – that’s where inclusion has already happened and there are no exclusions. Inclusion is a futuristic concept insofar as it is something for which we are striving, for if it were achieved, no discussion would be needed.

Click-away customers

Five red balloons in a row with the title 5 common myths about accessibilityClick-away customers are not those clicking on the pages on your website. They are clicking off because they can’t navigate the pages. A neat video by Barclays Bank debunks common myths about customer complaints, costs of being accessible, access being someone else’s job, it’s too small a market for all that time and effort, and accessible design is boring design. Towards the end there is a great statement, “accessible design should work well for those who need it, and be invisible to those who don’t”. A really useful video for anyone promoting accessible customer service in our digital world, and for others wondering if it really is worth the effort. The video is captioned. 

UD in Housing: Does it really cost more?

Facade of a large two storey home commonly called a McMansionDo homes really have to be larger to incorporate universal design features? Unlikely says Kay Saville-Smith, a housing researcher from New Zealand. In her keynote address at the UD Conference in 2014 she explained why. Her presentation discussed the “size fraud” and the mistaken idea that homes need to be larger and therefore more expensive. She also referred to the “blame game” where nothing changes because no-one takes the first step. Below is an excerpt from the full transcript of her presentation, Making Universal Design a Reality – Confronting Affordability.  

“Builders like to talk about cost per square metre so the larger the living space, the cheaper the perceived cost. Although the floor space need not expand to bring in UD features, it is believed that you do. So people say they won’t pay for that – or more to the point the builders say that”.

She goes on to say, “…there are still the two old barriers to renovating and building homes with universal design and indeed the streetscape, and those two things are twofold. One is what I’ve talked about in the past as the vicious cycle of blame that goes on in the building industry, which is no-one wants to change to do anything because the other person hasn’t asked them to do it. Investors don’t want universal design, so I the builder can’t build that, but if investors want it, sure I will build it. Investors will say I can’t build it because the builder won’t come in at the right cost, and both of them blame the architect, of course, because the architect is off site at that point. So that is one issue.

The other issue is that we have the “innovation chasm” where we have solutions but getting them taken up and getting to a tipping point where it’s an expectation of what you get out of the housing market, is a big jump and typically you need about 30% or so of the market to be taking that kind of innovation challenge rather than taking the opportunity to be an early adopter. 30% is a big jump…”  

What drivers can’t see on the road

A red and white circular sign with a 20 speed limit showing. Drivers can't see invisible disability. Here’s a call to traffic planners. A group in the UK is calling for slower speed limits on roads to help reduce pedestrian accidents. They list all the conditions where slower speeds could make a difference and allow people to cross the road safely. Drivers can’t see if someone has anxiety, dementia, post traumatic stress or sleep disorder. Traffic can make them feel vulnerable and fearful. 20 miles per hour equates to 30 km per hour. 

People who are deaf or hard of hearing, and people with low vision are also at risk of accidents. Pregnant women, older people, and people with prosthetic legs or chronic illness might not be spotted either. Even if they are, it is unlikely to change driver behaviour or alertness. The 20’s Plenty for Us media release links their call to the disability rights agenda which requires equitable treatment for everyone. Traffic planners should therefore assume everyone is vulnerable.

“At first sight it’s impossible to tell if someone has a mental health problem – anxiety, dementia, post traumatic stress or sleep disorder. Yet sufferers are vulnerable and fearful. Also the partially sighted, hearing impaired, those with a prosthetic leg, cancer, the elderly or pregnant women have protected characteristics not obvious at a distance from a driver’s seat behind a windscreen.”

Language Guide for Journalists and Others

Front cover of the language guide for journalists.Acceptable language regarding people with disability has changed, and standards continue to adapt as understanding and perceptions evolve. Many terms once widely used are now considered to imply inferiority and serve to marginalise people. The National Center on Disability and Journalism updated their Style Guide in 2021. It provides alternatives to terms still seen too often in the media.

The guide also gives an explanation for why some terms are considered offensive, derogatory, and/or marginalising. Unless the context of the story relates to the disability, it might not be necessary to point to any kind of impairment. And think about illustrations and photos too.

Here are a few common terms to avoid:

Afflicted with: Implies that a person with a disability is suffering or has a reduced quality of life.

Able-bodied: Refers to a person who does not have a disability. The term implies that all people with disabilities lack “able bodies” or the ability to use their bodies well. Use non-disabled. Use person without disability. 

Confined to a wheelchair: Describes a person only in relationship to a piece of equipment designed to liberate rather than confine. Use wheelchair user.

Stricken with, suffers from, victim of: These terms carry the assumption that a person with a disability is suffering or has a reduced quality of life. Use living with…

Demented: Refer to someone as having dementia only if the information is relevant to the story and a formal diagnosis has been made. Use “a person with dementia” or “a person living with dementia.” Do not use senile.

Special needs: This can be problematic where there are government funded programs for “special schools”. The term is considered stigmatising – use “functional needs” or describe the specific issue or disability. Everyone has needs.

Inclusive illustrations: What’s in a face?

Four male and female couples with different skin tones and face shapes. Inclusive illustrations.It’s often someone other than the writer of an article that chooses a picture to go with it. Usually this is a stock photo that might not convey the intended message. Stock photos of older people are often patronising. They show young and old hands, or a young person looking lovingly at an older person. Most illustrations are far from inclusive. 

Similarly, stock photos of wheelchair users often use non-disabled models and not real wheelchair users. An article and guideline from an illustrator discusses how to add diversity to your brand whether an organisation, service or a product. The title of the article is, Your Face Here: Creating illustration guidelines for a more inclusive visual identity.

Whether being used to distill complex messages or add a touch of whimsy, illustration is one piece that makes up a company’s visual brand identity.”  

Also have a look at these stock photos of older people and see what you think. Note that they are all white and active – no diversity here. 

Do’s and Don’ts of disability language

front cover of the What Do I Say? booklet.Language etiquette around the topic of disability seems to get some people tongue-tied. Fear of offending often results in just that. But so does using outmoded terms such as “handicapped”. So what are the do’s and don’ts of terminology and language use?

People with Disability Australia (PWDA) have a great guide. It gives a context to the importance of language and how it relates to dignity and respect. It is based on the social model of disability. That is, disability is not an individual medical problem. Disablement is the result of an environment filled with physical and social barriers.

Should you say “People with disability” or “disabled person?” It depends on the individual. However, government policies use the person first version – people with disability. The one to avoid is “the disabled” because it dismisses people and puts this diverse group into one category. The same can be said for “the elderly”. 

Adaptations of the word disability, or euphemisms, should not be used either. Terms such as differently-abled, special needs, or handicapable sound clever but are demeaning. Other terms such as “all abilities” suggests the opposite – a special place for people with disability. If it is inclusive it shouldn’t need a “special” title. However, accessible features can be included in any descriptions of the place or service.

The PWDA guide gives an overview of ableist language and its impact, some advice on reporting on disability, and a list of words and recommended alternatives. 

Disability is not about inspiration

One other important aspect of reporting on disability is what the late Stella Young described as “inspriation porn” in an entertaining TED talk. The portrayal of a person doing everyday things, or achieving a goal, as being inspiring gets the no-go signal. People with disability are often portrayed in the media as being “sufferers” or “heroes”. Rarely is either the case. 

 

The evolution of universal design and accessibility

Book cover showing anthropometric diagrams of a wheelchair userBess Williamson takes a look at two books and reviews them in tandem, which makes for an interesting read in its own right. Both are about the history of disability, accessibility and universal design, but approach the topic from different perspectives. Aimi Hamraie takes a legal and rights view of history, while Elizabeth Guffey tracks the work of individual designers and the development of symbols and images, particularly the access symbol we know today. They show how accessible design was developed in more than one place at the same time, which shows at least two family trees of access and universal design. One from the book cover for Designing Disability shows painted floor markings with the international symbol for access.bottom up (“crip technoscience”) and one from the top down (standards and codes). An excellent and thoughtful review by someone who understands this field of research. The books are: 

Aimi Hamraie Building Access: Universal Design and the Politics of Disability (University of Minnesota Press, 2017) 

Elizabeth Guffey Designing Disability: Symbols, Space, and Society (Bloomsbury Press, 2017). Or from Trove (National Library of Australia).  

Accessibility by another name – does it work?

picture of a modern building Norway Opera HouseNorway uses the term accessible to signify solutions specifically for people with disability when not required generally in the population. An interesting distinction by Olav Rand Bringa using his 20 years of experience working in the field of universal design. In his paper says succinctly, “The term accessibility for people with disabilities does not broadcast an understanding of qualities beyond the targeted user group”.  Consequently other terms try to compensate for this. However, it is difficult to move away from this term because it is perpetuated in legal and other statutory documents. Bringa writes thoughtfully and incisively about the issues of getting language right in order to get inclusion right. An important contribution to the quest for inclusive societies. The title of the article is, Universal Design as a Technical Norm and Juridical Term – A Factor of Development or Recession? it’s open access. The picture is of the Oslo Opera House.

Abstract: Universal design was introduced as an ideological and technical concept in Norway in 1996 and was introduced in the first law in 2003. Since then universal design has replaced accessibility for people with disabilities in national policies, laws, regulations, standards, projects and everyday language. Accessibility is now used to characterize solutions made more exclusively for people with disabilities or when a high, general quality is not required. Few countries have made this extensive use of the concept of universal design and the concept has faced several challenges from lawmakers, architects, economists, user organizations, entrepreneurs and debaters. This paper reflects on some aspects of more than 20 years of extensive use of the concept of universal design and try to answer the question: Is universal design an academic invention with little extra positive impact compared to accessibility for people with disability, or does the concept defend its supposed role as a step towards a society with equal opportunities for all?

The article is from the proceedings of the UDHEIT 2018 conference held in Dublin, Ireland, an open access publication.  

UD and public health

Nordic School Pub HealthEvastina Bjork from the Nordic School of Public Health discusses the concept of UD from the perspective of health and wellness in this article. She traces the work done in Norway that precedes the landmark document, “Norway Universally Designed 2025” and how it relates to health benefits. Training courses in applying the concepts of UD for professionals were devised and continue to be revised and adapted to keep pace with new learning and updated evidence. Although an academic paper, the discussion about education and training, and application of UD in the health and wellness field is a refreshing perspective.

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