Category: Policy and Policy Development

Urban life: the political and the architectural

Street scene of Oslo showing footpath dining and 2 cyclistsHow do you draw together the right to an urban life with practical policies? It’s a case of weighing up democratic values and architectural design. Urban life is more than just a place outside of home to visit. It’s also about being visible in public places – a concept much valued by people with disability. The underpinning value is social justice. Universal design is both a concept about inclusion as well as design initiatives. Finding the balance between them is the key.

A  study carried out in Oslo, Norway sought the views of urban experts. They included local government representatives, disability rights organisations and property owners. To sum up, public places can protect equality and dignity if all stakeholders share the same knowledge and understanding.  Once again, we see that inclusion requires knowledge sharing across disciplines. 

The article is titled, “Implementing universal design in a Norwegian context: Balancing core values and practical priorities“.

Excerpt from abstract:  How can urban planning processes include perspectives from people with disabilities? This paper discusses the implementation of universal design and accessibility in a local urban context. Universal design consists of both core values, such as inclusion and equal status, and specific design initiatives, such as design of pavement surfaces and benches. The aim of implementing universal designing strategies is to achieve equal access for all citizens. Based on an empirical study of an urban redesign project, I argue that equal access must imply both access to public places and to political processes.

 

Inclusion should be a choice

A group of young women stand in a circle with their forefingers and middle fingers spread out and joined up to make a star shape.One of the findings from a study of an inclusive youth summit was that inclusion should be a choice. A group of young people with and without disability were brought together to explore art and social justice. Group behaviours were observed and documented in an honours thesis. There are some good take-away messages from this event. The thesis is by Megan Price, who is a youth coordinator. She describes the context, the participants and behaviours and the story of the event. The implications from her observations were:
    • Neurotypical young people needed one to one leadership to understand and practice inclusion
    • The ableist model in the outside world perpetuates excluding behaviour
    • Inclusion needs to be a choice, not forced – you have to want to be included.
    • Building trust and confidence to see how identities overlapped
    • Being open and honest with group members and treating them as people
Megan Price comments in the concluding remarks: “I feel that a properly done inclusive program should be rooted in something that isn’t disability focused. It can be video games, it can be social justice, it can be education or art, it can be literally anything else. But when we make the target group the group’s focus, we’re already offsetting power and inputting a dynamic. Inclusive groups can’t get rid of power imbalances that their larger society has created but they can acknowledge them and work to counteract their effects within the group. “ There is much to gain from reading this thesis as it brings the topic to a grass roots level and out of an academic focus.  The title of the thesis is, “What Makes Inclusion Work: An Autoethnography on Coordinating an Inclusive Youth Advocacy Program”.  Abstract:  In this autoethnographic thesis, I analyze my observations as the co-coordinator of an inclusive youth advocacy program (YAP) to detail what made inclusion successful, and what was ineffective. I had the unique position of facilitating conversations and workshops around social justice issues and how to advocate using self-expression and art. In this thesis, I will reflect on the Inclusive Education Conference (IEC) in Spring of 2019, and the Summer Summit in the summer of 2019, both in Portland, Oregon. At the IEC some of the observations noted as harmful to inclusion included: people wanting to silence the youth, inclusion being coerced, neurotypical youth segregating due to lack of support, youth creating a hierarchy based on disabilities, and inability to support youth due to lack of knowledge. The biggest takeaway was the importance of intersectionality. The observations around detrimental practices led to changes for the summer summit. Changes included: having more understanding of workshop, interview the youth to determine their motivation for being involved and their goals, schedule breaks to encourage socialization outside the workshops which led to more inclusive workshops, and being transparent with the youth so they felt comfortable to express themselves and make mistakes. Ultimately, the most damaging elements to the inclusive youth program were 1) When neurotypical youth are neglected due to the focus on inclusion. 2) when the outside world is still modeling ableist behavior. 3) when inclusion isn’t a choice. The key finds that made inclusion most successful for this program were 1) the focus on intersectionality. And 2) being transparent and open with the youth. I also strongly encourage inclusive youth programs to not be rooted in disability as it already offsets the power dynamic of the group: rather have the group focus on a common interest.  

Future proofing existing social housing: A case study

A group of red brick three storey apartments shaded by trees. What about a post-pandemic social housing stimulus project? Not a new idea, but such ideas usually relate to new housing. So what about modifying existing social housing? This is so that people can stay in their community for longer as they age. Lisa King argues the case in a research paper with a focus on older women. 

King’s paper begins with a literature review of the issues related to older women and housing. The case study takes the floor plans of existing dwellings and makes changes to show how to make them more accessible. The case study includes studio units and two bedroom units. There is also a site plan, a demolition plan and costings too. 

King summarises the research by giving a rationale for choosing 1960s dwellings, and says the project is scaleable, modular and cost effective.  In addition, this type of work provides employment for small and medium businesses. And of course, it optimises existing stock while improving the lives of residents. King sums up with, “The result would be universally accessible housing and an asset which would assist meet the growing demand for residents to age-in-place with dignity.”

A thoughtful and nicely written paper and well referenced. Although the focus is on older women, the concepts apply across all social housing. The title of the paper is, Future-proofing Existing Social Housing: A case study helping meet older women’s housing needs.  

For a short read King’s paper was featured in a Domain article, Trapped inside: Why social housing apartments need an urgent revamp.  

Customer Engagement by Universal Design

Front cover of the toolkit with three overlapping circles, bright pink, purple and turquoise.Communicating effectively with customers is essential for any business or government service. And right now, online communication is taking centre stage. 

The new guide for Online Meeting Accessibility is a supplement to the Customer Communications Toolkit for Public Service. It takes you through the steps of planning and conducting an online meeting, and following up afterwards. The focus is on accessibility and inclusion with many helpful tips.

The Customer Communications Toolkit for Public Service covers planning, training and informing staff and contractors. It takes a universal design approach and is useful for any organisation. Also in PDF format.

The Centre for Excellence in Universal Design has two more toolkits  for private and public entities. They are guides to effective and inclusive communication using a universal design approach. 

Customer Engagement in Tourism Services Toolkit covers best practice guidance for customer engagement using case studies. The four sections cover business objectives, written communication, face to face, and web communication.

Customer Engagement in Energy Services provides best practice guidance for customer communication. In four parts it covers: written form, face to face, telephone and video.

The Centre for Excellence in Universal Design has many more resources on the built environment, products and services and technology/ICT.

What does Inclusion really mean?

“Inclusion” is a word used widely, but what do we mean by this? How does it happen? Who makes it happen? Given that we are not inclusive now, it has to be a futuristic concept – something we are striving for. If we had achieved it we would be talking about inclusiveness, and we wouldn’t be writing policies and advocating for it.

Picture of a slide with key points on inclusion.A conference paper discusses what we mean by inclusion and it illustrates why it is hard to achieve. The difference between inclusion and inclusiveness is more than semantics. They have different perspectives and ask different questions. Inclusion relies on one group looking at another group and inviting them in. It maintains a language of separation, for example, accessible, disabled, elderly and design-for-all. Inclusiveness looks at everyone equally and supports a whole population approach. Economic arguments and solutions are viewed differently. Inclusiveness is not a contest of rights and not one group giving something to others. All costs and benefits are measured from this perspective. 

The key concepts are captured in a PDF of a PowerPoint presentation and the full paper is titled, Turning Back Time for Today as Well as Tomorrow available on ResearchGate. 

Mismatch: How Inclusion Shapes Design by Kat Holmes discusses similar concepts. 

Universal design as policy and practice

Logo of the APA - white text on a mid blue background.Universal design is commonly expressed using the seven classic principles – listing  and explaining them. But what about universal design policy statements? These are not as common. So it’s great to see a major organisation getting to grips with this. The American Psychological Association (APA) has published its Resolution on Support of Universal Design and Accessibility in Education, Training and Practice. It’s a detailed document and a useful reference for anyone tasked with writing a universal design policy.

For organisations that haven’t thought about a universal design policy, perhaps this document will get you started. Their rationale is well thought out and very well expressed. It shows how universal design is a way to create inclusive practice. An excellent piece of work. 

The APA has an overview and rationale of their position, and the policy document itself – Resolution on Support of Universal Design and Accessiblity in Education, Training and Practice. Both very useful documents and good to see mental health embracing universal design in their education and practice.  Here’s three snippets:

Psychological research has clearly demonstrated the negative impact of limited access, stigmatization, and discrimination. …There is a loss of valuable potential when individuals with diverse needs are not included in all aspects of the community, research, and policy making.

The benefits of full inclusion are not only experienced by those individuals not currently served, but also can be fully realized by the greater society as well. 

Psychologists are in a unique position to promote education on diverse identities and barriers to access and provide clinical services to meet the psychological and health needs of consumers. Therefore, it is important that psychologists have a model that incorporates universal design in education, training, and provision of services.

 

Just and Fair Design

How can design be fair to everyone? Is it even possible to design for everyone? The authors of Just Design argue that justice and fairness in design is not about the output but about the process. Inclusion is more about the social context rather than the design of a particular thing.

The authors’ arguments are not new to practitioners and advocates of universal design. They understand the context of inclusion is also about the participation of users with a range of disabilities.

A woman in a powered wheelchair and a man in a mobility scooter enjoy the pathway.

Discussions and decisions between different users help solve the fairness issue. So their argument that making things inclusive can end up still excluding some people while true, is not well encapsulated in some of their examples. The example of a museum entrance below is thought to be universally accessible. However, users tell another story.

Note on the image of a stepped entry: Sometimes called “stramps” – a mix of steps and a ramp are the opposite of accessible and universal design. There are no safeguards for wheelchair users who run the risk of running over the edges as the ramp section is not clear. It does not comply with Australian legislation. 

Museum entrance with steps and ramp integrated. The tiles are a light colour and the way the light falls the whole thing looks very confusing. Architecture and disability.

Integrated steps and a ramp so they cross over each other is an obvious nightmare for someone who is blind, or has perception difficulties, or needs a handrail on all steps. A consultation with users would have produced a different design solution that would be considered fair. They then add the example of a child’s wheelchair – an item that is by its very nature a specialised design. This device cannot fall under the universal or inclusive design flag, but it does allow participation and inclusion in environments designed to accommodate wheeled mobility devices.

Understanding user feedback mechanisms

It is not clear whether the authors understand the role of user feedback and the iterative nature of designing universally. The aim of authors’ discussion is to propose a theory based on justice and fairness of universal and inclusive design. Their references include the thinking of product designers, as well as built environment designers.

The article, Just Design is by Bianchin and Heylighten and is available from ScienceDirect. An interesting, if long read, for anyone interested in the philosophy underpinning universal design and inclusive practice. A similar discussion by the same authors is, Ethics in design: Pluralism and the case for justice in inclusive design.  Also, Fair by Design. Both available for a free read on ResearchGate.

And then there is another aspect of justice – access to the court process and legal proceedings.

Equitable access to justice in courts

Justice systems and courthouses are scary at the best of times – even when you haven’t done anything wrong. The processes and places are foreign to most of us. Interacting with the justice system is very stressful – even more so for people with any kind of disability. It’s the same for people who come from a migrant community. Equitable access to justice is yet to evolve.

The relatively new Brisbane Courthouse has attempted a degree of accessibility. However, much of it is compliance-based and added as an afterthought. This image is of the judges bench in the Supreme Court.

This new courtroom has timber backed seats and a long timber desk that seats the justices. A abstract painting covers the wall behind the bench. Daylight comes in through large windows.

This image of the defendant’s dock shows a ramp entry. However, when the door is opened the fittings block the entryway.

Brisbane court room showing the glass surround for the accused dock.

The newly published guidelines for access to justice for persons with disabilities is available on the United Nations Human Rights web page. It gives the background and a summary of the consultation process. The title of the document is, International Principles and Guidelines on Access to Justice for Persons with Disabilities. The document was developed in collaboration with disability rights experts, advocacy organisations, states, academics and other practitioners. There are ten principles, each with a set of guidelines for action.

Ten Principles for people with disability

  • 1. All persons with disabilities have legal capacity and no one shall be denied access to justice on the basis of disability.
  • 2  Facilities and services must be universally accessible to ensure equal access to justice
  • 3  Children with disabilities also have the right to appropriate procedural accommodations.
  • 4  People with disability have the right to access legal notices and information in an accessible manner on an equal basis.
  • 5  People with disability are entitled to all substantive and procedural safeguards and States must provide the necessary accommodations to guarantee due process.
  • 6  People with disability have the right to free or affordable legal assistance. 
  • 7 People with disability have the right to participate in the administration of justice on an equal basis with others. 
  • 8  People with disability have the right to report complaints concerning human rights violations and crimes and be afforded effective remedies. 
  • 9  Effective and robust monitoring mechanisms play a critical role in supporting access to justice for people with disability. 
  • 10  People working in the justice system must be trained on addressing the rights of persons with disabilities, in particular in the context of access to justice.

The housing timebomb is ticking

Graphic of a stylised house with red roof set on grass with a tree.Australia isn’t the only place where a change to home design is being demanded by various advocacy groups and social policy organisations. The HoMe Coalition in the UK is making similar demands for all new homes to be accessible for everyone. The UK experience with accessibility as Part M of the building code shows how the absolute minimum, that is a level entry and a toilet on the ground floor, is insufficient for being able to live safely and comfortably as people age. So a review is needed.

Anna Dixon, chief executive at the Centre for Ageing Better, which co-chairs the coalition, said: 

“Too many people are today living in homes that limit their independence, as we face a dangerous shortage of homes that are accessible and adaptable. While it’s not inevitable, the likelihood is that most of us will experience disability or difficulties with activities of daily living at some point in our later life. And with more of us living for longer, this dire lack of accessible homes represents a ticking timebomb.”

Dixon also said that keeping people safe at home means we need homes with accessible features. It prevents avoidable admissions to hospital and institutional care: “Every £1 spent on housing adaptations are worth more than £2 in care savings and quality of life gains.” 

HoME (Housing Made for Everyone) is predicting a “dangerous shortage” of suitable homes in the future, with only one new accessible home to be built for every 15 people over the age of 65 by 2030. And that’s in urban areas – it’s much less in rural areas. HoME has an Accessible Housing Charter with seven actions including all new homes to be accessible .

See also briefing paper: Homes and ageing in England by the department of public health. At the end it has case studies that show the costs and savings of doing renovations.

Creating Safe Space for Everyone

A street scene showing a wide footpath and a row of shops in the suburbs. Safe space for everyone?How many urban planners think about accessibility and disability from the outset? Some, no doubt. Urban planners also have to think about personal safety – it’s a core concern. But what about safety for people with disability? Do community norms play a role in design decisions? An article in The Conversation discusses this issue and begins:

“Creating safe and secure urban spaces is a core concern for city managers, urban planners and policy workers. Safety is a slippery concept to pin down, not least because it is a subjective experience. It incorporates our perceptions of places and memories, but also norms in society about who is expected to use spaces in the city, and who is considered to be out of place.”

So it is much more than designing out crime. Different population groups experience safety in different ways – much more nuanced that matching with crime statistics. A study from the University College Cork has looking at this issue in more detail. An overview is in an article in The Conversation by Claire Edwards.

The study looked at three cities in Ireland and some obvious places where people with disability felt unsafe were transport hubs, bars and shopping centres. The Conversation article concludes:

“Urban safety is as much about changing social relations as it is about technical fixes. Disabled people’s experiences show us that it is only by challenging assumptions about who has a right to inhabit urban space that we can create more inclusive, just and safer societies.”

The title of the article is, The experiences of people with disabilities show we need a new understanding of urban safety.  

 

Universal design and talking human rights

A girl holds up a sign that says, Love not Hate. She appears to be sitting on the shoulders of someone in a public street march.Universal design isn’t just or only about disability. But it does have a major role to play in improving the lives of people with disability. The UN Convention on the Rights of People with Disabilities, cites universal design as the way to gain inclusion and equity. So does Australia’s National Disability Strategy. But discussions and actions on human rights often get diverted by politics and ideologies. The way we frame and word our responses can make a big difference in cutting through. But what words and what frame?

A Brilliant Way of Living our Lives: How to Talk about Human Rights by Anat Shenker-Osorio has some good answers and examples. The first part of the document looks at messaging pitfalls and fixes. The second part of the document looks at words that work, and the third part covers common critiques. Here is Shenker-Osorio’s introduction to the document:

“Using language data from advocacy, opposition, political speech and popular culture, I analyzed why certain messages resonate where others falter in the human rights sector in Australia, the UK and the US. Complementing this written discourse were 53 interviews with advocates in these three countries in order to draw out what we wish people believed – the vision for which we’d like to inspire increased activation from present supporters and persuade new ones. Recommendations
here also draw upon previous research and empirical testing across issues related to human rights.”

This article was featured in a longer piece on The Commons Social Change Library. It covers a long list of issues for advocates for all kinds of social change.

Editor’s note:  It is worth noting the change in public attitude in the same sex marriage campaign. It gained momentum when it moved from the right to marry whoever you want to being about marrying the person you love. In that vein, universal design is about the people we love.