How can we attain our rights within a market-based economy, when those who do not experience social and economic exclusion have the the power of the market in their hands? The cost of inclusion is often said to “cost too much”. This is illustrated in the proposed changes to the NDIS. Cost is also the argument some states are using to stall the implementation of accessible housing. Human rights do not feature in these arguments.
In Western societies, justice and fairness are not inalienable rights, but a negotiated process based on mutual advantage.According to Mutual Advantage theory we have to be pragmatic about human rights in a market-based economy. The excluded need to bring a benefit to the negotiating table. Rights get enacted only after a cost-benefit analysis has been carried out and “the excluded” are assessed as being “affordable”. That is, “can we afford to include them?”. This is the wrong question. It should be, “what does it cost to exclude people?” And who is listening to the position of the excluded?
Market economists rarely reside in the excluded group fighting for rights. Measuring disadvantage and exclusion is not something they find easy to measure. Yet they do have a cost to individuals, society and the economy.
For more on this discussion, see my paper from the 2014 Brisbane Housing Forum. The content is once again current. It includes an explanation of Mutual Advantage Theory by Lawrence Becker.
How do you include people in decisions that will affect them when it’s not easy for them to participate? It’s a chicken and egg situation. So, asking people with disability to contribute takes more than a survey or a community meeting. It needs a much more thoughtful process. Janice Rieger has some thoughts on the right to participate and co-design polices and processes.
Public sector co-designing is an emerging field of practice. It provides the opportunity for creativity and innovative ideas. Reframing participatory engagement through a social justice lens takes us towards a co-designing process.
“We are entering a new era in Australia as we envision a new disability strategy to replace the current national disability strategy (2010–2020). During this transition, we can reflect on and recognise the changing disability landscape in Australia and ensure that we create a just and inclusive Australian society. Recent consultations and reports have called for people with a disability to directly engage in designing the new disability strategy in Australia, but what does that entail, and how will the rights of people with disabilities be upheld throughout this process? This brief describes public sector co-designing practice—an emerging practice aiming to open up new trajectories for policy development through a co-design process and to provide best practice recommendations for the next disability strategy in Australia.”
Everything seems more difficult when life is spiralling out of control. And when you can’t understand the forms and documents people are asking you to read, it gets so much harder. Going to court to sort things out is very stressful and even more so if you don’t understand what’s going on.
A new website called The Bumpy Roadwas developed with and for parents with intellectual disability. There are 32 fact sheets on interacting with NSW Community Services and the court system. They cover child protection, going to court, meeting with a lawyer, the role of an advocate and tips from other parents. Information is in Easy English and video format.Child Protection is a companion document. Much of the content will apply to other states.
Women With Disability Australia website hosts many Easy English publications. If you scroll down you will find Auslan videos among others. Scroll further and there are documents in Kriol, Torres Straight Islander Creole, and Warumungu.
Editor’s comment: I’d like to see Easy Read and Easy English standard for all organisations . Universally designed documents make so much sense for everyone. It gives an opportunity to get the key points and before looking at a more complex document.
We hear people talk about the UN Convention on the Rights of Persons with Disabilities (UNCRPD), but how many of us have read it? It’s a big document and not easy to read. It covers every aspect of life and every person of every age. The UNCRPD matters to all of us. Eventually disability will touch each of us and our family members and friends. So disability rights are everyone’s rights. But not everyone can understand the way it is written. The Easy Read UNCRPD is for everyone.
The Easy Read version of the UNCRPD is a great way to get a grasp of the issues. This version by Enable is complete with illustrations. There is also a child-friendly version.
These documents make for handy ready reference for everyone without having to work through the UN document itself. You can access all documents through the UN website.
There’s also a great two-minute video from the Disability Advocacy Resource Unit. This is very useful for anyone wanting to get the disability rights message across, say, in a training session or group meeting. Different people with disability each list a right that is within the UNCRPD. Nicely put together and easy to watch.
Universal design isn’t just or only about disability. But it does have a major role to play in improving the lives of people with disability. The UN Convention on the Rights of People with Disabilities, cites universal design as the way to gain inclusion and equity. So does Australia’s National Disability Strategy. But discussions and actions on human rights often get diverted by politics and ideologies. The way we frame and word our responses can make a big difference in cutting through. But what words and what frame?
A Brilliant Way of Living our Lives: How to Talk about Human Rights by Anat Shenker-Osorio has some good answers and examples. The first part of the document looks at messaging pitfalls and fixes. The second part of the document looks at words that work, and the third part covers common critiques. Here is Shenker-Osorio’s introduction to the document:
“Using language data from advocacy, opposition, political speech and popular culture, I analyzed why certain messages resonate where others falter in the human rights sector in Australia, the UK and the US. Complementing this written discourse were 53 interviews with advocates in these three countries in order to draw out what we wish people believed – the vision for which we’d like to inspire increased activation from present supporters and persuade new ones. Recommendations here also draw upon previous research and empirical testing across issues related to human rights.”
Editor’s note: It is worth noting the change in public attitude in the same sex marriage campaign. It gained momentum when it moved from the right to marry whoever you want to being about marrying the person you love. In that vein, universal design is about the people we love.
The introduction to a special issueof Design Issues focuses on the way design can reproduce inequality in society. It asks questions such as: In what ways do designers or design processes emerge in relation to social inequalities? How can the discussion of inequality be broadened within design practices? This introduction discusses the rise of design and refers to different concepts and debates relating to design and designing. An academic journal asking important questions about the role of design in exercising power, creating accessibility, capitalism and consumption, cultural reproduction, oppression and neglect. An important contribution to the discourse on design.
“This collection offers Design Issuesreaders insight into the multi-layered connections between design and inequalities. All the articles address issues that are both deeply sociological and acutely concerned with design. They move across themes like the economy, labor, gender, disability, politics, colonization, material culture, class, and (social) policy. The essays clearly position themselves in the context of design inequality by pushing for greater criticality and reflexivity in design scholarship and practice.”
Emily Steel has written a thoughtful piece about how the thrust of Australia’s National Disability Strategy is languishing while everyone focuses on one small part of it – the National Disability Insurance Scheme (NDIS). She argues that the NDIS runs the risk of further marginalising people because it is still treating people with disability as needing special (that is, separate non-mainstream) treatment. This is where the concepts of universal design come to the fore. Yes, some people will need specialised equipment as part of experiencing inclusion, but that equipment doesn’t make for inclusion unless the person can use the equipment to merge into the mainstream. For example, a person with paraplegia needs both a wheelchair and a step-free entry to buildings. One is no good without the other. The good thing is that a step-free entry is good for everyone – inclusive universal design. Only a small percentage of people with disability will qualify for the NDIS and this is also why we need universal design – for everyone, including people with and without NDIS packages. See Emily’s article for some good points on this issue. Emily will be speaking at the 3rd Australian Universal Design Conference. She is Senior Lecturer, School of Health & Wellbeing at University of Southern Queensland.