Plain Language Summaries: Good for everyone

A blank page of a spiral notebook and and fountain pen.What are Plain Language Summaries? These are an invaluable adjunct to abstracts in academic papers. They help more readers understand the content of the article, especially if the topic is unfamiliar. Beth Myers and Teukie Martin provide a good example when explaining why they use these summaries:

What are Plain Language Summaries (PLS)?

      • Plain language summaries are short summaries of research articles.
      • They communicate the main ideas of the article and are easy to understand.
      • PLS are also used by the government, doctors, and places like banks and utility companies. Some research journals use PLS, too.

Why are PLS important?

      •  Research articles can be hard to read and understand.
      • PLS make research accessible to many kinds of people.
      • Everyone should have access to information that impacts their lives. PLS help make that possible.

Why are PLS important for the Journal of Inclusive Postsecondary Education?

      • We want our work to be as accessible as possible to as many people as possible, including students with intellectual disability and all people who care about inclusive education.
      • We want to show other journals how to be more accessible.
      • We want to make the world a better and more accessible place.

Plain language writing is clear, succinct, and jargon-free, and is organized in a way that helps understanding. It is a reader-centered way of writing so that readers can access, comprehend, and utilise information. Plain language writing benefits all readers while ensuring crucial access for some. It’s universal design.

The title of the article is, Why Plain Language? Linguistic Accessibility in Inclusive Higher Education. The journal is clearly living the message of inclusion in writing up research. As such, this is a short document with all the key information without jargon. 

Example of a plain language summary

Plain Language Summaries are not quite the same as Easy Read or Easy English documents which use simplified language. The wording and pictures in these documents are carefully placed on the page as well. 

What’s the point of academic research if only other academics can understand it? Governments often fund research, so we should all have access to this new knowledge. But if you want to rise in the ranks of academia you need to follow the “rules” for publishing. You also need to show that you know the language and jargon. There is no need to change this. What we need are additional plain language summaries. The picture below shows an example. 

The front page of the academic article showing how the Accessible Summary is presented.

Academic papers begin with an abstract – an outline of what the paper or article is about. It usually says what the problem is, what they researched and what they found. A plain language summary of the abstract gives the same information but in less words. So what does a plain language summary look like? 

A good example is the article, Co-designing the Cabriotraining: A training for transdisciplinary teams. It begins with an “Accessible Summary” followed by the regular abstract.  This is how it reads:

Accessible summary

    • The research was conducted by a team of researchers. Some of the researchers have experience of living with a disability.
    • The researchers created training for other research teams that include experts by experience.
    • The training has six parts. To decide what happened in the training, the researchers read articles and asked the research teams they trained about what problems they had and what they wanted to know about.
    • The article tells why and how the training was made. It also says what training is needed for researchers with and without disabilities to learn and work together in a way that feels safe and useful.
    • In developing and providing the training, it was very crucial to search for a safe and welcome space for all people involved (Figure 8). As we don’t know what is “safe” for the other, this means we have to search together, in respect and with enough time to get to know each other.

Editor’s note: Great to see an academic paper translated into key points that many more people can understand. From my experience, writing succinctly and plainly is a rare skill in academia. I was delighted to see this example. It’s universal design!

 

A decent home is a human right

Residential homes sit side by side in the landscape.New Zealand has taken a human rights approach to housing in its proposed housing guidelines. The draft guidelines circulated for comment late last year contain no specific design features. Rather, the draft is based on a set of explicit values that a decent home is a human right. The use of the term ‘decent’ is grounded in the Treaty of Waitangi and the impact of colonisation.

The guiding value is that a home is “more than a shelter, bricks, mortar or a house”. It also means a village, relationships and responsibilities to place, people and the natural environment. Consequently, the guidelines mean a decent home is a warm, dry, safe, accessible, and healthy home. The right to a decent home also takes account of the historical, social, economic and legal context in New Zealand.

The private sector is expected to play their part in implementing decent homes. Human rights are not just government business, and that universal design has a role to play:

“One way for individuals, communities, government and the private sector to implement the UN ‘decency’ housing principles is to promote universal design. Universal design advances inclusive, accessible, healthy building and environment and respect for cultural diversity. It considers people throughout the life cycle from childhood to old age, and is alert to different scenarios, including disability.”

The inclusion of first peoples in the construction of the guidelines contrasts with other countries and their housing policies. 

UN Conventions cited

The draft guidelines are underpinned by New Zealand’s obligations to several UN Conventions, which it lists as: 

– Universal Declaration of Human Rights (1948)
– International Covenant on Economic, Social and Cultural Rights (1966)
– Convention on the Elimination of All Forms of Racial Discrimination (1965)
– The Convention on the Elimination of All Forms of Discrimination Against Women (1979)
– Convention on the Rights of the Child (1989)
– Convention on the Rights of Persons with Disabilities (2008)
– UN Declaration on the Rights of Indigenous Peoples (2007)

There are 19 Guidelines in total each with a rationale, history and context. The document is 37 pages but easy to read.  There is also a Word version on the New Zealand Human Rights webpage together with an overview of the guidelines. 

 

Including mobility scooters in planning

A woman in a powered wheelchair and a man in a mobility scooter enjoy the pathway.Powered mobility devices, such as mobility scooters, are forms of transportation, but are they considered in city planning? Little is known about these devices and their users so the likely answer is, no. Climate change is another issue. Transportation systems are turning to renewable power and there is a risk these devices will be left out due to a lack of understanding how they are used. As more electrified devices take their place in our streets, we must be sure we are including mobility scooters in planning as well.

Theresa Harada’s presentation at UD2021 Conference highlighted some of the issues scooter and powered wheelchair users face. Using some of the quotes from participants, the lessons became clear in the slides. On the one hand, mobility scooters allowed a greater freedom to get out and about. But on the other, there were times when it became difficult, such as waiting for a lift along with many others.

The presentation also showed how others perceive disability. When one participant went from a scooter to a wheelchair, she found attitudes towards her changed dramatically. 

picture of a woman on a mobility scooter trying to get under a barrier constructed to prevent vehicles and bicycles from entering the pathMass transportation is for the masses – that means it’s for everyone. With more understanding of “vulnerable” groups we need an inclusive focus within infrastructure planning. The frameworks that govern mobility have barriers to inclusion which good design will overcome. This research gave voice to those who use mobility scooters. Their voices are loud and clear in Theresa’s published paper. 

 

 

The potential of accessible tourism in Australia

Header slide on accessible tourism showing a woman in a wheelchair bending down to feed a wallaby.
Photo courtesy Travability Images. http://travabilityimages.com.au

There’s a lot of potential for accessible tourism in Australia, and everyone stands to win, both operators and travellers. The business case has been well researched over many years and in different countries.  However, the data are not convincing many tourism operators to re-think their business model. 

Nicole Healy’s presentation at UD2021 Conference covered the facts and figures. Tourism Research Australia commissioned a research project which involved Victorian and Queensland governments. Nicole listed the research objectives which included: 

      • The size of the market and drivers and barriers
      • Needs of travellers with disability and their companions
      • The best communication channels 
      • The best ways to support businesses and explore opportunities

The results

The results show the potential of accessible tourism to be in the billions of dollars representing 10% of the total domestic spend. And that’s only for those who are willing to travel. Many others say it is all too hard. 

Travellers with and without disability choose trips for the same reasons. Eating out and visiting family or friends are top of the list for both groups. Sightseeing, pubs, clubs, and shopping are all popular. Going to the beach was not high on the list for people with disability. 

Lack of awareness of what’s on offer and not knowing what to expect were barriers to travel. Attitudes of tourism operators and staff was not encouraging either. Higher costs for people with disability were an issue as well as not enough accessible rooms.

Travellers with disability want to see better staff training and more practical information. Better access to toilets, public transport and airports were also important. More detail is available in Nicole’s presentation slides and the data report. You can download the executive summary of the Victorian and Queensland report.

Victoria has a kit to help businesses, and Queensland has their own guide to inclusive tourism

A separate website, Accessible Victoria has specific information and more links. And one specifically for Melbourne also has brief information and more links. 

There is more about inclusive tourism in the travel and tourism section of this website.

Local Government and Accessible Housing

Exterior of a modern single level home.Local government rarely gets pro-active about accessible housing or Specialist Disability Accommodation (SDA). But the City of Whittlesea bucked the trend. This local government area is one of the fastest growing communities in Victoria. It also has a significant population of residents with a disability, most of whom are ineligible for SDA housing. Consequently, action was needed for mainstream accessible housing.

The Disability Housing Project was established as part of Council’s commitment to inclusion. The project identified the level of demand for both accessible and SDA housing. This information was then used to inform policy and strategic action. 

The slide shows the five elements of the project.
Slide showing five elements of the housing project

Rosie Beaumont and Linda Martin-Chew tell their story of venturing into the emerging disability housing market in their presentation at the UD2021 Conference. Council wanted to explore opportunities to progress commitment to accessible and affordable housing. They involved disability advocates, housing developers, strategic and social planners and residents with disability in the project. Developers keen to get into the SDA market were not going to solve the need for accessible housing overall. This was especially the case in the rental sector. 

The end result was better industry engagement to promote housing that benefits the whole community. It is an example of joining the dots between the niche of specialist housing and mainstream housing. 

There is more detail in the published extended abstract, “From Niche to Mainstream: Local government and the specialist disability housing sector”. 

Editor’s Note: Rosie and Linda were clearly passionate about the topic in their presentation. Whittlesea was one of only four councils that joined the campaign for mandated access features in all new housing.

 

Inclusive Towns Project

Page of website for Inclusive Towns Project.
Inclusive Towns webpage for employment

The Inclusive Towns Project was a collaborative affair between Bendigo City and Lodden Shire Councils. It focused on local businesses to show how being inclusive makes economic sense. The aim was to show that improving the accessibility increased their customer base. 

Nikki Williams’ presentation at UD2021 Conference had some interesting statistics. One third of complaints to the Victorian Human Rights Commission were about disability. One third of these were about employment, and another third about goods and services. Consequently, the aim of the project was to tackle equal access to goods and services and employment. 

A project officer, admin support, and six casual staff with disability were appointed to run the project. It was the role of the casual staff to visit businesses and collect information about their accessibility. They followed up with an action plan and then a review. 

One of the key barriers to overcome was previous poor experience with Council. They also had to overcome lack of understanding of disability in terms of employment and customers. Many businesses thought it would be expensive to make changes. 

Feedback showed that solutions were easier to to implement than first thought. Businesses saw good outcomes from small changes and enjoyed positive feedback from customers. 

The end result of the project is a website with information for businesses and the value of being inclusive. It also has a lot of resources.

The project also saw change both in the community and within Council. The need to build capacity with staff to understand disability better was key. 

Nikki Williams’ explains the project well in her presentation along with her conference abstract. 

 

Speaking fluent universal design

Head and shoulders of Stefano Scalzo.
Stefano Scalzo Executive General Manager Planning and Development

Stefano Scalzo was speaking fluent universal design at the UD2021 Conference. In his keynote address he showcased what the Victorian Government is doing to progress universal design in state projects. Stefano gave practical examples of how universal design has been applied in real life, to real buildings for real people. 

Stefano Scalzo is the Executive General Manager, Planning and Development with the Victorian Government. Their universal design approach is based on their Universal Design Charter, which is: 

      • Equity
      • Respect
      • Participation
      • Sustainability
      • Responsibility
      • Awareness
      • Collaboration

This is not a building code compliance approach: it’s a human rights perspective and putting people first. 

Universal Design Charter slide with 7 elements
The 7 elements of the Universal Design Charter

It’s part of the tender process

The Government’s commitment is not just a policy – it is action. Their procurement process asks prospective tenderers to tell them how they will achieve universal design. And they are promoting a culture of inclusion where universal design is integrated at the beginning of every project. 

Stefano explained more about the tender process and then showed us several examples of buildings that met their charter. He added that we are really just beginning and there is so much more to learn. And he challenged us to keep the conversation going. Specifically he asked delegates to commit to the conversation by:

      • Taking this back to your Director
      • Presenting to your team
      • Forming an advisory group
      • Redrafting the design
      • Listening – really listening – to someone with lived experience
      • Adopting a charter
      • Adjusting your process
      • Thinking beyond accessibility – to participation, safety, welcome
      • Going beyond compliance 
      • Delivering more than a minimum standard. 

It was wonderful to hear a government representative speaking fluent universal design. This is the kind of leadership we all need in Australia if we are to become truly inclusive. 

Slide says How will you keep this conversation going?Stefano shared his slides and his speech notes which have a lot more detail about the work they are doing in Victoria.

Michael Walker’s presentation expanded on aspects of this presentation. Victoria is clearly committed to inclusion and universal design.

What is Easy Read and who needs it?

page from Access Easy English on COVID. Writing for readers.
  Example of Easy English

Easy Read is a good example of how less is more. But conveying messages in fewer words is more difficult than writing more words. Easy Read is for people with low levels of literacy. It’s mostly used for essential information such as health alerts and legal terms and conditions. Writing with minimal words is a skillset of its own. It’s not easy. But it does make you think about what you really need or want to say.

Proficient readers can use Easy Read versions to get the take-home message quickly and easily. That’s also why it’s universal design – it’s for everyone. However, Easy Read is not the same as Easy English – the example in the image. It has even fewer words and focuses on actions not just information. Cathy Basterfield says that Easy Read is not simple enough for some people and explains this in a simple poster analysing the difference

Easy Read not the same as plain English or plain language. Complex documents such as research reports are beginning to include a plain language summary. However, these require an average level of literacy. They are usually presented as a paragraph or a list of sentences in dot points. Easy English drills down further to the key words and concepts. The techniques include:

      • a lot of white space
      • directly relevant illustrations (not photos) to convey the meaning of the text
      • short words and sentences
      • minimal punctuation
      • positive phrasing
      • bullets to separate items in a list. 

Editors can learn from Easy English

The Chartered Institute of Editing and Proofreading blog has a more detailed article. It summarises Cathy Basterfield’s presentation at their annual conference. She shows how editorial professionals can learn from Easy English. 

Blog writer, Anna Baildon, said she learned a lot from the session and had her assumptions challenged. She said she could see “the links to plain English but it goes further”. The headlines she remembers are:

      • It’s hard to write in Easy English
      • Access to written information should not be a reading test. It should be enabling
      • Unpacking the language so the meaning becomes accessible.
      • Access to information is a right. ‘Access’ means that a person reads, understands and knows what they can do.

The Chartered Institute of Editing and Proofreading has a guide to Editing in Plain English

Many people need it

More than 40% of the population has low literacy skills. In some remote parts of Australia and in institutions it is higher than this. There are several reasons why so many Australians need information in easy to understand formats:

– acquired disabilities
– lifelong disabilities
– poor educational outcomes
– psychiatric or mental illness
– dyslexia
– early school leavers
– older people
– different cultural backgrounds
– hearing impaired and/or people from the Deaf community

Accessibility and universal design needs to be considered at the outset of any project, not as an afterthought. Information formats such as brochures and websites are no exception. Some important government documents include an Easy Read version, but this is still rare. 

Cathy Basterfield has pioneered much of the work on Easy English in Australia. People with high level literacy skills can grasp the key points with little effort. And there are times when people with good literacy skills need help. For example, the stress of a court hearing can temporarily affect one’s reading skills and level of understanding. 

Cathy Basterfield presented a paper on this topic at the Australian Universal Design Conference, UD2021. There is a related post on choice of typeface or font for easy reading. Cathy has an Easy English blogsite that explains more. She did a lot of work for COVID-19 too. 

There is an Easy Read version of the UN Convention on the Rights of Persons with Disabilities.  The Bumpy Road website is a good example of Cathy’s work for interacting with the justice system. 

Interoception: A universal design approach

Interoception is an internal sensory system where you notice physical and emotional cues. Most people develop this system and gain awareness of their internal cues as they grow up. But not everyone does. Dr Emma Goodall’s workshop, Interoception: A universal design approach, enlightened us and linked it to universal design in learning (UDL).

Emma explained how poor awareness or misinterpretation of our internal body state, like feeling thirsty or hot, makes it difficult to regulate our emotions and behaviour. Then she took us through some interoception activities so that we were all able to notice our own bodies.

One of the slides showing atypical interoception and difficulty noticing body signals, and difficulty interpreting them.
One of Emma Goodall’s slides showing atypical interoception.

After understanding the theory and having a practice, we were able to consider interoception in our own lives and apply it in other settings. It is particularly useful for teachers of school children who have difficulty learning. Emma explained how students and teachers are more engaged at school and there are fewer suspensions and exclusions. 

Emma made the point that when children and young people have not yet developed interoception skills they will struggle with their emotions and with social interactions. Even just being around others may be difficult for them to manage. This will, of course, affect their ability to learn in and out of school.

Presentation slides and paper

The slides from Emma’s presentation give an overview of interoception and how it applies to children and young people. The title of her presentation is, Interoception as a universal design for learning strategy to support well-being and engagement in learning in education for all children and young people.

There is more in Emma’s published paper where she explains how educators, families and other professionals can implement interoception activities. Other contexts where it is useful is the justice system, mental health and aged care. 

Emma has more resources and information on the Positive Partnerships website

Post by Dr Emily Steel

Standard for accessible standards

Emily Steel pointing to the 11 Goals of the Guide on the presentation slide.All standards should ensure they meet the goals of the UN Convention on the Rights of Persons with Disabilities. So there is a Standard for developing Standards documents to be inclusive, accessible and universally designed. ISO Guide 71 shows how to do this. On day two of UD2021 Conference, Emily Steel explained how the international Standard for accessible Standards documents. 

The international standard has done all the thinking for us. The document guides standards committees as they write and update standards for their specific industry or profession. It is also useful for any committee developing guides or standards for accessibility and universal design. So, we don’t have to re-invent the wheel. 

The Guide’s use of the the term “accessibility” relates closely to universal design. “The extent to which products, systems, services, environments and facilities can be used by people from a population with the widest range of characteristics and capabilities to achieve a specified goal in a specified context of use”. 

ISO Guide 71 Accessibility Goals

The Guide has two main parts. The first describes user needs and 11 accessibility goals. These are similar to the 8 Goals of Universal Design. The second describes human characteristics and abilities, and design considerations. 

      1. Suitability for the widest range of users
      2. Conformity with user expectations
      3. Support for individualisation
      4. Approachability
      5. Perceivability
      6. Understandability
      7. Controllability
      8. Usability
      9. Error tolerance
      10. Equitable use
      11. Compatibility with other systems. 

Guide 71 was adapted by the European standards authority and is titled, CEN-CENELEC Guide 6. It is basically the same information. You can see a previous post about this document. 

There is also an Accessibility Masterlist by Gregg Vanderheiden. It’s a collaborative resource for understanding access features in digital applications. Also worth a look.