Category: Human Rights

What is Easy Read and who needs it?

page from Access Easy English on COVID. Writing for readers.
  Example of Easy English

Easy Read is a good example of how less is more. But conveying messages in fewer words is more difficult than writing more words. Easy Read is for people with low levels of literacy. It’s mostly used for essential information such as health alerts and legal terms and conditions. Writing with minimal words is a skillset of its own. It’s not easy. But it does make you think about what you really need or want to say.

Proficient readers can use Easy Read versions to get the take-home message quickly and easily. That’s also why it’s universal design – it’s for everyone. However, Easy Read is not the same as Easy English – the example in the image. It has even fewer words and focuses on actions not just information. Cathy Basterfield says that Easy Read is not simple enough for some people and explains this in a simple poster analysing the difference

Easy Read not the same as plain English or plain language. Complex documents such as research reports are beginning to include a plain language summary. However, these require an average level of literacy. They are usually presented as a paragraph or a list of sentences in dot points. Easy English drills down further to the key words and concepts. The techniques include:

      • a lot of white space
      • directly relevant illustrations (not photos) to convey the meaning of the text
      • short words and sentences
      • minimal punctuation
      • positive phrasing
      • bullets to separate items in a list. 

Editors can learn from Easy English

The Chartered Institute of Editing and Proofreading blog has a more detailed article. It summarises Cathy Basterfield’s presentation at their annual conference. She shows how editorial professionals can learn from Easy English. 

Blog writer, Anna Baildon, said she learned a lot from the session and had her assumptions challenged. She said she could see “the links to plain English but it goes further”. The headlines she remembers are:

      • It’s hard to write in Easy English
      • Access to written information should not be a reading test. It should be enabling
      • Unpacking the language so the meaning becomes accessible.
      • Access to information is a right. ‘Access’ means that a person reads, understands and knows what they can do.

The Chartered Institute of Editing and Proofreading has a guide to Editing in Plain English. 

Many people need it

More than 40% of the population has low literacy skills. In some remote parts of Australia and in institutions it is higher than this. There are several reasons why so many Australians need information in easy to understand formats:

– acquired disabilities
– lifelong disabilities
– poor educational outcomes
– psychiatric or mental illness
– dyslexia
– early school leavers
– older people
– different cultural backgrounds
– hearing impaired and/or people from the Deaf community

Accessibility and universal design needs to be considered at the outset of any project, not as an afterthought. Information formats such as brochures and websites are no exception. Some important government documents include an Easy Read version, but this is still rare. 

Cathy Basterfield has pioneered much of the work on Easy English in Australia. People with high level literacy skills can grasp the key points with little effort. And there are times when people with good literacy skills need help. For example, the stress of a court hearing can temporarily affect one’s reading skills and level of understanding. 

Cathy Basterfield presented a paper on this topic at the Australian Universal Design Conference, UD2021. There is a related post on choice of typeface or font for easy reading. Cathy has an Easy English blogsite that explains more. She did a lot of work for COVID-19 too. 

There is an Easy Read version of the UN Convention on the Rights of Persons with Disabilities.  The Bumpy Road website is a good example of Cathy’s work for interacting with the justice system. 

Stella Young and Inspiration Porn

In this entertaining video The Late Stella Young explains why disability isn't your inspiration porn. She is wearing black with red shoes and is sitting in a power chair.the late Stella Young talks about “inspiration porn”. She says we have been sold a lie about people with disability being ‘inspirational’ for just being themselves.

She says that people with disability are objectified in this process as being ‘special’ in some way. They are discounted as normal everyday people doing everyday jobs in an everyday world.

On the topic of a positive attitude Stella says, “No amount of smiling at a flight of stairs has ever made it turn into a ramp.”

 

The economics of assistive technology

Chart showing return on investment for individuals, families and society.Why is some technology called “assistive” technology?  After all, isn’t all technology assistive? It seems that any technology developed for people with disability is assistive, while other technology is just, well, technology. A report on the economics of assistive technology outlines the benefits of investment.  Technologies specific to disability used to be called “aids and equipment”, but we have moved on. Smart phones are  everyday technology for most people. For people with disability they can also be an important part of a suite of technologies.  In Australia and other countries, access to assistive technology (AT) is not automatic. It has to be applied for and justified and then a budget assigned to it. Some people have to resort to charities for help. Imagine if you had to do this for cancer treatment. Denying and delaying access to AT comes at a cost. It’s a quality of life cost and an economic cost to the wider community. Instead of talking “cost” we should be talking “investment”. The value of providing AT is documented in a global report. The research focused on four devices, hearing aids, prostheses, eyeglasses, and wheelchairs. They found that for every one dollar invested, nine dollars are gained. That’s a return on investment of 9:1.

What about the built environment?

If we include home modifications in the suite of technologies to enhance functioning and independence, we would no doubt find similar a return on investment. It would be a better investment if homes were universally designed in the first place. This is one study that recognises the benefits to the whole family, not just the individual. This is an important point. Most people with disability do not live alone.  The title of this document is, The case for Investing in Assistive Technology. Replace the words “assistive technology” with built environment and housing and the report still makes sense. AT requires the rest of the world to be accessible and universally designed. That way, we can all benefit from people getting the AT they need when they need it. 

Easy English and Bumpy Road

Home Page of Bumpy Road website showing nine coloured sections, each with a separate document.Everything seems more difficult when life is spiralling out of control. And when you can’t understand the forms and documents people are asking you to read, it gets so much harder. Going to court to sort things out is very stressful and even more so if you don’t understand what’s going on.  A new website called The Bumpy Road was developed with and for parents with intellectual disability. There are 32 fact sheets on interacting with NSW Community Services and the court system. They cover child protection, going to court, meeting with a lawyer, the role of an advocate and tips from other parents. Information is in Easy English and video format. Child Protection is a companion document. Much of the content will apply to other states.  Women With Disability Australia website hosts many Easy English publications.  If you scroll down you will find Auslan videos among others. Scroll further and there are documents in Kriol, Torres Straight Islander Creole, and Warumungu. Your Human Rights Toolkit is a bundle of four documents in Easy English. Easy Read UN Convention on the Rights of Persons with Disabilities is also a good resource for getting a grasp of this long complicated document. Editor’s comment: I’d like to see Easy Read and Easy English standard for all organisations . Universally designed documents make so much sense for everyone. It gives an opportunity to get the key points and before looking at a more complex document.

Easy Read UNCRPD

Front cover of Enable Easy Read version of the UN ConventionWe hear people talk about the UN Convention on the Rights of Persons with Disabilities (CRPD), but how many of us have read it? It’s a big document and not easy to read. It covers every aspect of life and every person of every age. The CRPD matters to all of us. Eventually disability will touch each of us and our family members and friends. So disability rights are everyone’s rights, but not everyone can understand the way it is written. The Easy Read CRPD captures the key content in less words.

The Easy Read version of the CRPD is a great way for most people to get a grasp of the issues. This version by Enable is complete with illustrations. 

These documents make for handy ready reference for everyone without having to work through the UN document itself. You can access all documents through the UN website.

There’s also a great two-minute video from the Disability Advocacy Resource Unit – see below. This is very useful for anyone wanting to get the disability rights message across, say, in a training session or group meeting. Different people with disability each list a right that is within the CRPD. Nicely put together and easy to watch. 

Beginning of the video. A man is standing in a large empty room that looks like a performance space.

The Australian Human Rights Commission has an overview of human rights on their website. 

UN Strategy for disability inclusion

Front cover of the UN report with icons for the four areas of action.In the context of “leave no-one behind” the United Nations is keen to live the message of disability inclusion in its own operations. The UN can better support member states with their own challenges if they are practicing inclusion in their own operations. The United Nations Disability Inclusion Strategy spells out what to do. 

The Convention on the Rights of Persons with Disability (CRPD) is no longer a side event to everything else. Disability inclusion is written into the Sustainable Development Goals (SDGs). The UN Strategy was launched in 2019, and the 2020 report provides a first baseline of disability inclusion across the system. The report lays down concrete steps for improvement and to support Member States to implement the CRPD and the SDGs.

Mainstreaming is the key strategy for inclusion and empowerment. It’s about seeing people with disability as agents of change and not a vulnerable population.

There are 15 common indicators against which all UN entities will report annually. It covers leadership, strategic planning and management, inclusiveness, programming and organisational culture. Time to get real about disability inclusion.

The full strategy document is available on the UN Disability Inclusion Strategy website. A short video from the Secretary General is below. 

UN Convention on the Rights of Persons with Disabilities sets out the obligations of signatories to the Convention. Australia is a signatory and the obligations are detailed in separate sections called Articles. The General Principles of the Convention align with the Principles of Universal Design.

Article 3 – General principles

The principles of the present Convention shall be:

    1. Respect for inherent dignity, individual autonomy including the freedom to make one’s own choices, and independence of persons;
    2. Non-discrimination;
    3. Full and effective participation and inclusion in society;
    4. Respect for difference and acceptance of persons with disabilities as part of human diversity and humanity;
    5. Equality of opportunity;
    6. Accessibility;
    7. Equality between men and women;
    8. Respect for the evolving capacities of children with disabilities and respect for the right of children with disabilities to preserve their identities.

Who do designers design for?

Four women and one man sit casually around a table where there are coloured pens and drawings.Who does the designing and what do they design? If the design works, users don’t think about the designer. But when the design works poorly, or not at all, the designer becomes the focus. “What were they thinking?” is the catch-cry. In spite of much research and literature on designing thoughtfully and inclusively, we still have a long way to go. So who do designers design for? A short paper takes a critical look at five design approaches from last century that remain current. The author discusses “Accessible” in terms of partial inclusion and design afterthoughts. “Inclusive/Universal Design” is discussed from the perspective of eliminating disability rather than embracing diversity. Six degrees of “User-Centred Design” is the focus of this design approach where users get a say in the design. An extension of user-centred design is “Participatory Design” which is also a learning experience for designers. Lastly, “Emancipatory Design” is praised for being empowering for people with disability. The title of the short paper is, Design Methodologies and Ethos in Disability: Research Snapshot. Editor’s Note: The Universal Design movement is sometimes accused of wanting to design out disability. Perhaps this view can be traced back to the mistaken interpretation of universal as “one-size-fits-all”. The concept of universal design in the context of the UN Convention of the Rights of Persons with Disabilities is very much one of inclusion, equity and acceptance of diversity. 

From the Introduction

The subject of design is one that dominates the disability literature. Throughout the past number of years, there has been a push among researchers and advocates to think critically about the ways in which design is executed and by whom. Design has taken on a central role in the ‘normalization’ of disability. Each of these design methodologies and ethos has had an essential impact on built and design environments; however, there is still a considerable need for progress. Importantly, these design methodologies and ethos bring to light the significance of understanding that in today’s society, it is normative that environments and technologies are designed for people with disabilities, not by people with disabilities.   

Who thought of kerb cuts?

A concrete kerb ramp with yellow tactile markers on the slope.Who thought of kerb cuts in the footpath? 30 years ago policy makers couldn’t understand why anyone needed kerb cuts in footpaths. “Why would anyone need kerb cuts – we never see people with disability on the streets”. This is part of the history of disability rights that we rarely think about these days. But kerb cuts (curb cuts) didn’t happen because of policy – they happened because people took matters into their own hands. And accessibility eventually shaped the streets.

Stories of activists pouring concrete on kerbs have made their way into urban legends. It is sometimes referred to as the “Curb Cut Revolution”. (Note the American spelling. In Australia we call them kerb ramps.) It was the beginning of a turning point for accessibility.

Of course, the injustice is not evident to those who are perhaps inconvenienced but not excluded. And it’s not just about wheelchair users. Anyone using a wheeled device: delivery trolley, pram, bicycle or luggage knows the value of the kerb cut. They’ve also benefited from the other accessibility features in the built environment. That’s how the term “universal design” was coined – good for wheelchair users, good for everyone. 

The Forgotten History of How Accessible Design Reshaped the Streets is a nicely written blog article. It provides an interesting context to what we know now as access standards. But compliance to legislation does not guarantee inclusion. It only provides access. That’s why we still need universal design thinking.

We still need universal design

The Universal Design Movement goes back to the 1970s and it’s still going. That’s because every improvement for inclusion is hard won. The article has a great quote:

“When injustice is tied up with the physical spaces of cities and the policies that create them, it becomes difficult to assign responsibility for it – and hence difficult to change.”

The article is from Bloomberg CityLab. 

Inclusive Courts Checklist

This new courtroom has timber backed seats and a long timber desk that seats the justices. A abstract painting covers the wall behind the bench. Daylight comes in through large windows.Courts and justice systems across the world are going through a digital transformation. It’s happening behind the scenes and up front. But are these systems and processes inclusive?  A survey in 2018 revealed that court administrators don’t know about the advances in inclusive solutions. With the current pandemic, reliance on technology has increased. So this matter is more urgent now.

Technology is making it easier for court staff. For example, their payment and filing processes. But we run the risk of making it more difficult for people who find themselves the subject of court processes. The survey by G3ict and International Disability Alliance revealed that people with disability face significant barriers in the justice system – digital and non-digital. As a result of this survey, G3ict has come up with an Inclusive Courts Checklist. It lists 10 Core Capabilities and related Enabling Activities.

The ten core capabilities include, a digital inclusion strategy, leadership, budgeting, and a culture of inclusive engagement, diversity and transparency. The checklist provides a short overview of the issues and the survey, and the checklist is presented as a table. The checklist is on the G3ict website where you can find more useful publications.

Elements of this checklist apply to other organisations that are moving to digital processes and practices. This checklist has a focus on people with disability, but could equally apply to people from diverse backgrounds and to people who have little or no experience of digital applications.

 

Easy Read COVID-19

A poster with three graphics. One of a rugby goal post, one of a calendar with the start date marked, and one showing a television set.Access Easy English has fact sheets and posters on staying COVID-safe. As each state changes their rules a new fact sheet is produced. That makes a lot of fact sheets and posters. They cover sport, schools, travelling interstate, quarantine, childcare and more. 

Each state has its own set of fact sheets that you can download in both Word and PDF. Here are some examples:

Come to South Australia explains who can and who cannot go to South Australia.

We can go out. ACT explains when it started and the number of people you are allowed to meet up with.

The website also has information on Easy Read and Easy English on the home page. With more than 40% of the Australian population with low literacy skills, easy to understand information is vital for everyone. Even people with good literacy skills! 

 

What does Inclusion really mean?

“Inclusion” is a word used widely, but what do we mean by this? How does it happen? Who makes it happen? Given that we are not inclusive now, it has to be a futuristic concept – something we are striving for. If we had achieved it we would be talking about inclusiveness, and we wouldn’t be writing policies and advocating for it.

Picture of a slide with key points on inclusion.A conference paper discusses what we mean by inclusion and it illustrates why it is hard to achieve. The difference between inclusion and inclusiveness is more than semantics. They have different perspectives and ask different questions. Inclusion relies on one group looking at another group and inviting them in. It maintains a language of separation, for example, accessible, disabled, elderly and design-for-all. Inclusiveness looks at everyone equally and supports a whole population approach. Economic arguments and solutions are viewed differently. Inclusiveness is not a contest of rights and not one group giving something to others. All costs and benefits are measured from this perspective. 

The key concepts are captured in a PDF of a PowerPoint presentation and the full paper is titled, Turning Back Time for Today as Well as Tomorrow available on ResearchGate. 

Mismatch: How Inclusion Shapes Design by Kat Holmes discusses similar concepts.